To learn more about various conditions, how to treat them, and how to improve patient outcomes, medical research plays a crucial role. According to a news release from Saint Louis…
Although Jackson, age 62, has had CMT for ten years, he only divulged his illness this month. According to an article on eathis.com, Jackson chose a recently aired segment of…
Prior to October 8, 2021, there were no FDA-approved treatment options for pediatric patients with congenital athymia, an ultra-rare immune disorder. However, this all changed when the FDA approved Rethymic…
Patient Worthy makes a point to develop relationships with advocacy groups focused on rare diseases in order to help spread awareness, highlight patient experiences, and bring attention to community events.…
Did you know that just one tick bite could transmit to you a number of infections? That's right, according to a Lyme Science blog post from Dr. Daniel Cameron, MD,…
From October 7-11, 2021, the National Spasmodic Dysphonia Association (NSDA) is holding their 2nd annual Walk for Talk fundraiser to help raise awareness around, and funds for, spasmodic dysphonia, a chronic…
The first patient in a Phase 2a trial of BOS-580 as a treatment for nonalcoholic steatohepatitis (NASH) was recently dosed. Boston Pharmaceuticals, the developer of the drug, aims to address…
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