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Daily Archives: June 17, 2022

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Andrew’s Story: A Heart Transplant to Treat Hypoplastic Left Heart Syndrome

Andrew’s Story: A Heart Transplant to Treat Hypoplastic Left Heart Syndrome

  • Post author:Kendall Mason
  • Post published:June 17, 2022
  • Post category:hypoplastic left heart syndrome

Andrew is a pretty tough kid - he had already undergone four open heart surgeries by the time he was three years old. Now, at age 21, he's added two…

Continue Reading Andrew’s Story: A Heart Transplant to Treat Hypoplastic Left Heart Syndrome
June 19 is World Sickle Cell Day: Spreading Sickle Cell Disease Awareness
source: pixabay.com

June 19 is World Sickle Cell Day: Spreading Sickle Cell Disease Awareness

  • Post author:James Moore
  • Post published:June 17, 2022
  • Post category:Sickle cell anemia/Sickle Cell Disease

June 19, 2022 will be recognized as World Sickle Cell Day. This international event is intended to help spread awareness about sickle cell disease among the general public and in…

Continue Reading June 19 is World Sickle Cell Day: Spreading Sickle Cell Disease Awareness
Positive Initial Data Available on Tovorafenib for Glioma
source: pixabay.com

Positive Initial Data Available on Tovorafenib for Glioma

  • Post author:Jessica Lynn
  • Post published:June 17, 2022
  • Post category:Glioma

Currently, no approved treatment options exist for children with pediatric low-grade glioma, the most common brain tumor found in children. However, shares Day One Biopharmaceuticals ("Day One") in a news…

Continue Reading Positive Initial Data Available on Tovorafenib for Glioma
Study Finds Anemia is Associated With Worse Outcomes in Chronic Kidney Disease
source: pixabay.com

Study Finds Anemia is Associated With Worse Outcomes in Chronic Kidney Disease

  • Post author:Trudy Horsting
  • Post published:June 17, 2022
  • Post category:Chronic Kidney Disease

Anemia is a common symptom for chronic kidney disease (CKD), but there hasn't been much research done on the association between the two or the adverse outcomes which ensue as…

Continue Reading Study Finds Anemia is Associated With Worse Outcomes in Chronic Kidney Disease
Bleach Baths May Improve Severe Atopic Dermatitis Symptoms
StockSnap / Pixabay

Bleach Baths May Improve Severe Atopic Dermatitis Symptoms

  • Post author:Jessica Lynn
  • Post published:June 17, 2022
  • Post category:Severe Atopic Dermatitis

In the past, research has shown that bleach baths can be a helpful tool in addressing or relieving symptoms associated with dermatological issues. For example, some doctors suggest the use…

Continue Reading Bleach Baths May Improve Severe Atopic Dermatitis Symptoms
Rare Classroom: Myasthenia Gravis
source: shutterstock

Rare Classroom: Myasthenia Gravis

  • Post author:James Moore
  • Post published:June 17, 2022
  • Post category:Myasthenia Gravis

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

Continue Reading Rare Classroom: Myasthenia Gravis
Fathers of Children with Rare Diseases Face Extraordinary Challenges
Source: Pixabay

Fathers of Children with Rare Diseases Face Extraordinary Challenges

  • Post author:Denise Crompton
  • Post published:June 17, 2022
  • Post category:Rare Disease

I've known some wonderful fathers throughout my life. My own father was a gem. My siblings agree. However, it was not until I became immersed in the rare disease world…

Continue Reading Fathers of Children with Rare Diseases Face Extraordinary Challenges

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