Patient Worthy is honored to be able to share Zoe Ridgeway's story by way of theBHDFoundation.org. Zoe's story was shared for Rare Disease Day 2025 and the BHD Foundation believes…
Editor's Note: Patient Worthy is grateful to present this article that was written by and shared with permission from Sue Skavlem, a care partner to her husband who is living with…
Sixty-six-year-old Tim Andrews, a resident of New Hampshire, is the fourth patient worldwide to undergo a pig kidney transplantation. As reported recently in a Mass General News Release, Tim is…
As reported in a recent edition of the Harvard Gazette, AI is commonly used to analyze X-rays and scans. AI has begun to outperform physicians in prognostic and diagnostic assessments.…
The U.S. Food and Drug Administration (FDA) has approved GSK's combination meningococcal vaccine, Penmenvy, for individuals aged 10 to 25 as reported by Biopharma Dive. This vaccine offers protection against…
Patient Worthy is honored to bring you Levi’s story courtesy of our partners Miracle Flights. Miracle Flights is a non-profit organization that provides pediatric patients and their families free commercial…
In June 2023 Jenny Decker took time out from her job as a trauma nurse and sailed out of Kona, Hawaii, beginning her solo voyage around the globe. Jenny’s mission…
This article is written by Enrico Orzes and originally published on Osservatorio Malattie Rare (OMaR). It has been translated from Italian. Patient Worthy is grateful to the team at OMaR…
Heal Canada is a non-profit dedicated to “patient advocacy, education and collaboration among patient advocacy groups and other healthcare stakeholders.” As part of their extensive offerings of support for patients…
Novo Nordisk plans to seek approval in the US and the EU this year for their drug Mim8 for use on pediatric patients with Hemophilia A after promising results from…
Meredith’s Medical Journey Meredith Grace was born full term. During the first few hours of her life, she seemed extremely uncomfortable and would only be content in my arms. After…
Spinogenix has reported that its Phase II trial of SPG601 for Fragile X Syndrome (FSX) has met its primary goal, according to Clinical Trials Arena. FXS is a genetic disorder…
When I ask a patient about their family history, I do so to offer the most accurate risk of disease I can for them or their children. So when a…
Healthcare costs in the United States are rising. This is due to many factors, such as inflation, prescription drugs, and behavioral health. The result has been a redefinition of a…
As reported by Clinical Trials Arena, Genentech and its subsidiary Roche, provided positive Phase III results with the Food and Drug Administration, or the FDA, of their REGENCY trial (NCT04221477)…
In this insightful article, Sierra Domb, Founder and CEO of the Visual Snow Initiative (VSI), a nonprofit organization dedicated to raising global awareness, providing education and resources, advocating for patients,…
According to World Pharma News, an AI technique called machine learning was able to identify a lifesaving treatment for a patient diagnosed with idiopathic multicentric Castleman’s disease (iMCD) by scanning…
Mesoblast Biotechnology Company has received FDA approval for its Ryoncil therapy as the first of its kind to be approved in the United States. The therapy has been developed to…
David Rowland, age 85, has been nourished from food, not chewed, and swallowed, but inserted into his stomach through a permanently placed tube, for the past 12 years following treatment…
On the day of December 5th ,2023, I had no idea my life would completely change. Today, 10 months later, after a misdiagnosis, multiple hospital visits, countless testing, many specialists…
Sickle Cell, an inherited disease, involves crescent shaped red blood cells that are the “vehicles” containing hemoglobin, a protein responsible for carrying oxygen throughout the body. For almost a year…
Nothing about meningitis is fair. In mere moments it can devastate lives and destroy families. It can take away dreams and shatter plans. These factors make marking my 20th year…
If you live in the Northern Hemisphere, Fall has quickly passed, and Winter is upon us. The beginning of Fall is one of favorite times of the year with the…
The team at Patient Worthy is excited to announce the official launch of our collaboration with our companion site WHATNEXT.com, a cancer-focused online community and media platform with the goal…
Roche has been developing an experimental drug for Parkinson’s disease for over ten years. According to BioPharma Dive, the latest statements from the company are that the drug, prasinezumab, failed…
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