Warrior Princess: Fighting with a Rare Disease Under Unprecedented Circumstances, Part Three
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Warrior Princess: Fighting with a Rare Disease Under Unprecedented Circumstances, Part Three

Continued From Part Two Written by Payel Bhattacharya   I hope for aid from the government to cover the high cost of subsequent medicines including anti-rejection medicines, radiological and lab…

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Warrior Princess: Fighting a Rare Disease Under Unprecedented Circumstances, Part Two
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Warrior Princess: Fighting a Rare Disease Under Unprecedented Circumstances, Part Two

Continued From Part One written by Payel Bhattacharya Pharmaceutical science has medications to control the pain. I was initially put on medicine but it mostly didn’t contain the pain. I…

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New Study Offers Promising Results for Identifying the Cause and Finding Potential Treatments for Ulcerative Colitis 

By Natalie Homan from In the Cloud Copy What Is Ulcerative Colitis?  Ulcerative Colitis is a condition where the colon and rectum become inflamed and develop ulcers. It is a painful…

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YouTuber with Ulcerative Colitis Teaches Followers About Sex and Intimacy with a Disability
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YouTuber with Ulcerative Colitis Teaches Followers About Sex and Intimacy with a Disability

By Jodee Redmond from In The Cloud Copy Hannah Witton, a YouTuber with 600,000 subscribers to her sex and relationships channel, got tired of hearing comments that people with disabilities…

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Ava Garnett, Nail-Patella Syndrome Advocate, Praised on NY State Assembly Floor
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Ava Garnett, Nail-Patella Syndrome Advocate, Praised on NY State Assembly Floor

By Jodee Redmond from In The Cloud Copy Assemblywoman Nicole Malliotakis (R-East Shore/South Brooklyn) introduced Ava Rose Garnett in New York’s Capitol building in Albany recently. Miss Garnett is a…

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Boston Man Tackling Duchenne Muscular Dystrophy Cure After Sibling’s Diagnosis
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Boston Man Tackling Duchenne Muscular Dystrophy Cure After Sibling’s Diagnosis

by Jodee Redmond from In The Cloud Copy Rich Horgan is the founder of the Boston-based biotech non-profit, Cure Rare Diseases. The 28-year-old decided to take action over concerns about…

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Literally One of a Kind: 10-Year-Old Child Only Person with Rare Form of Congenital Disorders of Glycosylation
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Literally One of a Kind: 10-Year-Old Child Only Person with Rare Form of Congenital Disorders of Glycosylation

By Caitlin Seida from In The Cloud Copy If you've never heard of CDG, or congenital disorders of glycosylation, you're not alone. The rare family of diseases, all inheritable, are…

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