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Author: Patient Worthy Contributor

This author has written 2437 articles
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My Illness and Your Illness Could Kill Me

My Illness and Your Illness Could Kill Me

  • Post author:Patient Worthy Contributor
  • Post published:April 15, 2016
  • Post category:Primary Immunodeficiencies

Excuse me. You’re sneezing and wiping your nose, and that makes me very uncomfortable. I have Primary Immunodeficiency Syndrome. That, in combination with whatever you have, could make me very…

Continue Reading My Illness and Your Illness Could Kill Me
Meme Awareness – #MastocytosisCure

Meme Awareness – #MastocytosisCure

  • Post author:Patient Worthy Contributor
  • Post published:April 15, 2016
  • Post category:Rare Disease

Continue Reading Meme Awareness – #MastocytosisCure
366 Talking Tips – Do more than just follow your Rx

366 Talking Tips – Do more than just follow your Rx

  • Post author:Patient Worthy Contributor
  • Post published:April 15, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Do more than just follow your Rx
10 maneras de hacer limonada de limones #NewYearNewYou

10 maneras de hacer limonada de limones #NewYearNewYou

  • Post author:Patient Worthy Contributor
  • Post published:April 15, 2016
  • Post category:Myasthenia Gravis

Nuevo año, nueva actitud. Todos nosotros que tienen enfermedades crónicas han dicho que en algún momento en que el reloj cuenta atrás para el nuevo año. "Este año voy a…

Continue Reading 10 maneras de hacer limonada de limones #NewYearNewYou
366 talking tips Memory Tip: Use Pen and Paper

366 talking tips Memory Tip: Use Pen and Paper

  • Post author:Patient Worthy Contributor
  • Post published:April 14, 2016
  • Post category:Rare Disease

Continue Reading 366 talking tips Memory Tip: Use Pen and Paper
But I Got So Frustrated, I Stopped Asking Questions
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But I Got So Frustrated, I Stopped Asking Questions

  • Post author:Patient Worthy Contributor
  • Post published:April 14, 2016
  • Post category:Behçet's/Rare Disease

While this information is great, there is still not enough known about Behcet's and its causes... A disease forecast report for Behcet's Disease was recently released by Research & Markets and further…

Continue Reading But I Got So Frustrated, I Stopped Asking Questions
366 talking tips – Importance of talking hobbies with your doctor

366 talking tips – Importance of talking hobbies with your doctor

  • Post author:Patient Worthy Contributor
  • Post published:April 14, 2016
  • Post category:Rare Disease

Continue Reading 366 talking tips – Importance of talking hobbies with your doctor
Mastocytosis Awareness Meme

Mastocytosis Awareness Meme

  • Post author:Patient Worthy Contributor
  • Post published:April 14, 2016
  • Post category:Rare Disease

Continue Reading Mastocytosis Awareness Meme
5 lecciones que nos trae esta madre con fibrosis quística en el 2016
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5 lecciones que nos trae esta madre con fibrosis quística en el 2016

  • Post author:Patient Worthy Contributor
  • Post published:April 14, 2016
  • Post category:Cystic Fibrosis/Rare Disease

La familia Corr ha tenido un año difícil. Resistente, seguro, pero igual de feliz. Ellos han estado adaptando a la vida con su hija mayor año Harriet. Poco después del…

Continue Reading 5 lecciones que nos trae esta madre con fibrosis quística en el 2016
Meme Motivation – Believe in Yourself!

Meme Motivation – Believe in Yourself!

  • Post author:Patient Worthy Contributor
  • Post published:April 13, 2016
  • Post category:Rare Disease

Continue Reading Meme Motivation – Believe in Yourself!
Sjogren’s Awareness Meme

Sjogren’s Awareness Meme

  • Post author:Patient Worthy Contributor
  • Post published:April 13, 2016
  • Post category:Rare Disease

Continue Reading Sjogren’s Awareness Meme
Meme Motivation – Daily Battle for Consistency

Meme Motivation – Daily Battle for Consistency

  • Post author:Patient Worthy Contributor
  • Post published:April 13, 2016
  • Post category:Rare Disease

Opening a can of biscuits can be a terrifying ordeal but feeling like one... ooofff. Just in case you didn't know what a busted can of biscuits feels or looks…

Continue Reading Meme Motivation – Daily Battle for Consistency

“La Vecina” tiene un destino inspirador con la fibrosis quística y el Ejercicio

  • Post author:Patient Worthy Contributor
  • Post published:April 13, 2016
  • Post category:Cystic Fibrosis/Rare Disease

Si alguna vez hubo una "girl next door", Ashley Coleman seria la manifestacion de esta idea, una mujer joven y bella, de ojos brillantes, rubia y muy activa! Ella tiene…

Continue Reading “La Vecina” tiene un destino inspirador con la fibrosis quística y el Ejercicio
366 talking tips – A Doctor’s Thoughtfulness

366 talking tips – A Doctor’s Thoughtfulness

  • Post author:Patient Worthy Contributor
  • Post published:April 12, 2016
  • Post category:Rare Disease

Continue Reading 366 talking tips – A Doctor’s Thoughtfulness
366 talking tips – Doctor’s appointments are like plays

366 talking tips – Doctor’s appointments are like plays

  • Post author:Patient Worthy Contributor
  • Post published:April 12, 2016
  • Post category:Rare Disease

Continue Reading 366 talking tips – Doctor’s appointments are like plays
366 Talking Tips – Kindness

366 Talking Tips – Kindness

  • Post author:Patient Worthy Contributor
  • Post published:April 12, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – Kindness
Que tienen el alcohol y la fibrosis quística en común? Esta en los genes

Que tienen el alcohol y la fibrosis quística en común? Esta en los genes

  • Post author:Patient Worthy Contributor
  • Post published:April 12, 2016
  • Post category:Cystic Fibrosis

Ayer leí un artículo publicado en la fibrosis quística Noticias Hoy por Patricia Silva, PhD, que fue causante de mucha reflexión. Los científicos han descubierto que hay una comunidad compartida…

Continue Reading Que tienen el alcohol y la fibrosis quística en común? Esta en los genes
4 Times Grey’s Anatomy Featured Rare Disease and We Loved it

4 Times Grey’s Anatomy Featured Rare Disease and We Loved it

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Rare Disease

Eleven seasons have come and gone (we are mid 12 now) and I remain a hard core Grey's Anatomy fan. I remember back in college for a public speaking class I…

Continue Reading 4 Times Grey’s Anatomy Featured Rare Disease and We Loved it
Acromegaly, Goliath and the Book that Inspired Me

Acromegaly, Goliath and the Book that Inspired Me

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Acromegaly/Rare Disease

I am a huge Malcolm Gladwell fan. Published in 2013, Gladwell's David and Goliath: Underdogs, Misfits, and the Art of Battling Giants speaks to those who are at a cross roads, feeling defeated,…

Continue Reading Acromegaly, Goliath and the Book that Inspired Me
Meme Motivation – Prepare For a Wild Ride

Meme Motivation – Prepare For a Wild Ride

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Rare Disease

Continue Reading Meme Motivation – Prepare For a Wild Ride
Monday Rare Disease PSA – It’s NOT all in my head

Monday Rare Disease PSA – It’s NOT all in my head

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Rare Disease

When it comes to getting a rare disease diagnosis, not one person will ever tell it you it was a walk in the park. As Kathryn (a gold level patient…

Continue Reading Monday Rare Disease PSA – It’s NOT all in my head
Meme – The Solo Path is Full of People

Meme – The Solo Path is Full of People

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Rare Disease

Continue Reading Meme – The Solo Path is Full of People
366 Talking Tips – When Doctors Diagnose Stress

366 Talking Tips – When Doctors Diagnose Stress

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Rare Disease

Continue Reading 366 Talking Tips – When Doctors Diagnose Stress
Meme – Five Sarcoidosis Facts

Meme – Five Sarcoidosis Facts

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Rare Disease

Continue Reading Meme – Five Sarcoidosis Facts

5 maneras de hacer 2016 un año mejor #NewYearNewYou

  • Post author:Patient Worthy Contributor
  • Post published:April 11, 2016
  • Post category:Lyme Disease/Rare Disease

Alexis Rosen fue diagnosticado con la enfermedad de Lyme crónica después de mucha confusión y mes de la búsqueda de respuestas. Ha comenzado ya la terapia con antibióticos IV. Después…

Continue Reading 5 maneras de hacer 2016 un año mejor #NewYearNewYou
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