¿Cómo obtuvieron sus rayas los pacientes con ICV? Las cebras son vistos como único. Se encuentran sólo en determinados lugares con ambientes específicos; hacen alarde de rayas que son icónicos…
Editor's Note: Kara LaFrance is an artist and graphic designer fighting acromegaly. She had a late diagnosis at 28 which led to surgery, radiation and ongoing medication therapy. Pain is a…
Imagine que es un increíblemente feliz y activa 8 años de edad, que ama los deportes. Ahora imagina las rodillas y los tobillos hasta la hinchazón. Se mira hacia abajo…
De acuerdo con la Fundación de Fibrosis Quística, cerca de 30.000 personas viven con FQ en los EE.UU. y casi 1.000 nuevos casos son diagnosticados cada año. La fibrosis quística…
...But you didn’t order fries and you certainly don’t want the combo meal! I recently read about Kelly du Plessis, a Mom in South Africa whose 6 year old son…
This awesome quote comes to you from the Surviving Chronic Pain Facebook community. Not sure who the original source of the quote was but if you know, we wouldn't mind…
Orphan Product Extensions Now Accelerating Cures and Treatments Act of 2015 needs your help! Via Congress.gov the Open Act stands to accelerate cures and treatments for rare disease and it could quite possible double…
Hello Again Patient Worthians! This week we are highlighting part TWO of a story about a man with cystic fibrosis, racing for his non-profit RaceCF and to spread awareness of exercise therapy…
Liz is living with Cushing's Disease and is on a mission to be happy and well Patient Worthy is so excited to welcome Miss Liz Calabro to our family of incredible…
Excuse me. You’re sneezing and wiping your nose, and that makes me very uncomfortable. I have Primary Immunodeficiency Syndrome. That, in combination with whatever you have, could make me very…
Nuevo año, nueva actitud. Todos nosotros que tienen enfermedades crónicas han dicho que en algún momento en que el reloj cuenta atrás para el nuevo año. "Este año voy a…
While this information is great, there is still not enough known about Behcet's and its causes... A disease forecast report for Behcet's Disease was recently released by Research & Markets and further…
La familia Corr ha tenido un año difícil. Resistente, seguro, pero igual de feliz. Ellos han estado adaptando a la vida con su hija mayor año Harriet. Poco después del…
Opening a can of biscuits can be a terrifying ordeal but feeling like one... ooofff. Just in case you didn't know what a busted can of biscuits feels or looks…
Si alguna vez hubo una "girl next door", Ashley Coleman seria la manifestacion de esta idea, una mujer joven y bella, de ojos brillantes, rubia y muy activa! Ella tiene…
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