Happy Almost-Father's Day Patient Worthians! This week, we have some important information on the rare disease myasthenia gravis in the spirit of June being it's awareness month. Also, have you ever…
As featured in this Strawfie Challenge press release last week, two Ohio twins Aleeya and Alani are seeking to spread awareness of cystic fibrosis and the harsh realities of living…
En un momento dado, la medalla de oro ganando Singapur nadador Clemente Lim estaba postrada en cama durante dos días porque tiene espondilitis anquilosante, "Me daba miedo nunca nadar de…
Amyloidosis Trailer: A Tribute to The Amyloidosis Foundation from katelyn Payne on Vimeo. This trailer for the Amyloidosis Foundation's documentary was created by a student whose mother has amyloidosis. It…
Burning Nights is a chronic pain charity in the UK that was set up by Victoria Abbott-Fleming, a CRPS patient and author. The organisation gained official charity status in spring 2016…
es la inyeccion subcutánea parte de tu plan de tratamiento para la ICV? ¿Alguna vez ha quedado sin crema anestésica antes de una inyección? ¿Es usted un fan de Jim…
Después de seis años de diagnósticos erróneos y trituración de la decepción, un médico finalmente cuenta de que Katie tenía una rara condición genética en torno a una proteína llamada…
What do you never leave home without? Is it a purse? Your wallet? Keys? Yeah, I have all of those things too. But September through May, and dozens of other…
Si usted está considerando el embarazo, mientras gestionas tu espondilitis anquilosante, es posible que tenga muchas preguntas, tales como ¿Va a tener el dolor de espalda típico que las mujeres…
Living with Cushing's Disease: How Healthy Eating and Exercise Will Help Cushing's disease is a condition that occurs when there is a high amount of cortisol in your blood. This level…
La espondilitis anquilosante (A. S. por sus siglas en ingles) es una forma de artritis que afecta a la columna, aunque otras articulaciones pueden participar. Que causa inflamación de las…
Happy Friday Patient Worthians! Just because Cystic Fibrosis and Lyme Disease Awareness Month is over, doesn't mean we won't stop fighting the good fight for spreading awareness about these diseases! We…
Los médicos de Global Hospital en Mumbai, India, han logrado una hazaña poco común en la cirugía espinal. Por primera vez, un experto equipo de cirujanos realizaron la cirugía de…
Muchas personas con angioedema hereditario (AEH) le dirá que realmente no están seguros de qué causa sus ataques, pero pueden identificar algunos factores desencadenantes comunes, tales como el estrés, la…
Su hermano dijo que el diagnóstico era imposible; Ella no estaba tan segura En febrero de 2006, Sheryl Stein, de Arlington, Virginia, sabía que algo estaba mal. Ella sufría de…
Press release: 2nd June 2016 Xenia twins urge local community to take the Strawfie Challenge for cystic fibrosis awareness When Heather Scott and Nathan Young received the diagnosis that their daughter Adriana…
Viviendo el sueño como un futuro de béisbol Destacado, Franklin Gutiérrez, alias "Guti" estaba en la cima del mundo. En 2000 los Indios de Cleveland firmaron al agente libre aficionado…
Brie Peters is 25 years old and has been living with Cystic Fibrosis since she was 10 months old. This is Part 2 of her interview. Exercising had become an…
Viviendo con ICV? Aprendiendo a controlarlo? PatientWorthy te está buscando en Instagram si estás viviendo con inmunodeficiencia variable común, ICV. #PatientWorthy Para compartir sus fotos con nosotros! Y comentar a…
Happy Friday Patient Worthians! This week, we have some riveting stories by three PW contributors. Firstly, we have Alexis battling Lyme disease for 8 years and a surprising ending to Part 1…
Bearing both common missense mutations ΔF508 and G551D, Briauna was diagnosed with Cystic Fibrosis (CF) as a 10 month old baby. As a child living and growing up with CF,…
Alexis Plofchan is now 22 years old. In parts 1 and 2 of her interview, Alexis detailed her journey with Lyme disease from pre-diagnosis to post-diagnosis and how Lyme changed…
El corredor David Brumley fue diagnosticado con Variable Común de Inmunodeficiencia (ICV) en 2008, y pensó ponerse en forma no podría hacer su salud peor de lo que ya era.…
PW Contributor Alexis Plofchan is 22 years old and a student at William and Mary. She and her parents have been fighting Lyme disease for the past eight years. In…
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