Patient Worthy Contributor – Page 64

Lyme Gave Me a New Appreciation for “Scrubs”

Post author:Patient Worthy Contributor
Post published:May 11, 2016
Post category:Lyme Disease Rare Disease

You never get warned about how boring being sick is. And when I was on treatment for chronic Lyme last year, that's exactly what is was. And also excruciating, pathetic,…

3 Stops to Increasing Will Power – Hope, Faith, Courage

Post author:Patient Worthy Contributor
Post published:May 11, 2016
Post category:Rare Disease

12 minutos de inspiración – batallando el ICV

Post author:Patient Worthy Contributor
Post published:May 10, 2016
Post category:CVID Rare Disease

Todos nos dirigimos a YouTube aquí y allá; para una buena risa, un pequeño segmento informativo sobre la nueva palabra añadida al Urban Dictionary, o un clip de Saturday Night…

Rare Disease Tip – Don’t Say These Five Things

Post author:Patient Worthy Contributor
Post published:May 10, 2016
Post category:Rare Disease

Rare Mom: POTS and Spoons

Post author:Patient Worthy Contributor
Post published:May 10, 2016
Post category:Dysautonomia POTS Rare Disease

My journey with my 24 yr old daughter's illness began about two years ago. She was living away from home when her symptoms began. She wasn't able to continue to…

366 Talking Tip – Remember Every Medical Professional

Post author:Patient Worthy Contributor
Post published:May 10, 2016
Post category:Rare Disease

366 Talking Tips – Communicate!

Post author:Patient Worthy Contributor
Post published:May 10, 2016
Post category:Rare Disease

366 Talking Tips – Organize Your Team

Post author:Patient Worthy Contributor
Post published:May 9, 2016
Post category:Rare Disease

Mother of Little Girl with Cystinosis Describes Being a Rare Mom

Post author:Patient Worthy Contributor
Post published:May 9, 2016
Post category:Cystinosis Rare Disease

When my daughter was born on August 8, 2012 I became a rare mom. I wouldn't know I was until 15 months later, but my little girl was born with a…

That Time Glenn From The Walking Dead Found a Tick in His Pants

Post author:Patient Worthy Contributor
Post published:May 9, 2016
Post category:Lyme Disease Rare Disease

Conan O'Brien is just a big a Walking Dead fan as I am. If you're fan of the show as well, you know they are in the back woods of…

366 Talking Tips – Doctors are NOT mind readers

Post author:Patient Worthy Contributor
Post published:May 9, 2016
Post category:Rare Disease

George's strawfie. Photo Courtesy of Shaun Williams

Young Woman with Cystic Fibrosis Making the Most of Her 2nd Chance at Life

Post author:Patient Worthy Contributor
Post published:May 9, 2016
Post category:Cystic Fibrosis Rare Disease

Little Miss Positive, Georgina Compton, is making the most of her second chance at life. Last year Georgina (George) Compton faced the very real prospect of dying at the age…

5 maneras fáciles de mejorar tu vida sexual viviendo con espondilitis anquilosante

Post author:Patient Worthy Contributor
Post published:May 9, 2016
Post category:Ankylosing Spondylitis Rare Disease

Es fácil para los jovenes de 20 años de edad bendecidos con cuerpos perfectos para aplicar fácilmente todas las posiciones sexuales locas y acrobáticas que Cosmopolitan te da. Sí colgando…

366 Talking Tips – Bad Habits

Post author:Patient Worthy Contributor
Post published:May 9, 2016
Post category:Rare Disease

366 Talking Tips – Be on time

Post author:Patient Worthy Contributor
Post published:May 7, 2016
Post category:Rare Disease

366 Talking Tips – You are in control

Post author:Patient Worthy Contributor
Post published:May 7, 2016
Post category:Rare Disease

Editor’s Choice: 4 Awareness Months in 1, Rare Moms, Donald Trump and “This is Stupid”

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Acromegaly Cushing Disease CVID Narcolepsy Rare Disease

Happy Almost Mother's Day Patient Worthians! This week is PACKED with announcements. First of all, it's Lyme disease Awareness Month, Cystinosis Awareness Month, Cystic Fibrosis Awareness Month, and Behcet's Awareness…

Cystinosis Awareness – Meme

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Cystinosis

MEME – Keep the Fight Going

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Rare Disease

Pixabay

Compassion is the Best Drug for the Body and the Soul

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Myasthenia Gravis Rare Disease

There are treatments out there to help manage living with Myasthenia Gravis (MG). Whether your infant was born with Congential Myasthenia Gravis or you are an adult who showed a positive result…

Why Mother’s Day is a Great Day for Reflection

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:CAPS POTS Rare Disease

I am a Rare Mom! I love that term, because it covers so many different parts of my life. I’m unique, an individual, a working mom, and I’m also a…

Break in Cystinosis Treatment – InfoMeme

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Cystinosis

Rare Disease Meme – Rise Up

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Rare Disease

Cystinosis Awareness Meme

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Cystinosis

Free-Photos / Pixabay

¿Vas a correr, Eh? Canadienses corren por una buena causa

Post author:Patient Worthy Contributor
Post published:May 6, 2016
Post category:Ankylosing Spondylitis Rare Disease

El 7 de junio de 2015, miles de personas salieron a las calles a través de Canadá en el Paseo anual para poner fin a la artritis. Una causa principal…

Lyme Gave Me a New Appreciation for “Scrubs”

3 Stops to Increasing Will Power – Hope, Faith, Courage

12 minutos de inspiración – batallando el ICV

Rare Disease Tip – Don’t Say These Five Things

Rare Mom: POTS and Spoons

366 Talking Tip – Remember Every Medical Professional

366 Talking Tips – Communicate!

366 Talking Tips – Organize Your Team

Mother of Little Girl with Cystinosis Describes Being a Rare Mom

That Time Glenn From The Walking Dead Found a Tick in His Pants

366 Talking Tips – Doctors are NOT mind readers

Young Woman with Cystic Fibrosis Making the Most of Her 2nd Chance at Life

5 maneras fáciles de mejorar tu vida sexual viviendo con espondilitis anquilosante

366 Talking Tips – Bad Habits

366 Talking Tips – Be on time

366 Talking Tips – You are in control

Editor’s Choice: 4 Awareness Months in 1, Rare Moms, Donald Trump and “This is Stupid”

Cystinosis Awareness – Meme

MEME – Keep the Fight Going

Compassion is the Best Drug for the Body and the Soul

Why Mother’s Day is a Great Day for Reflection

Break in Cystinosis Treatment – InfoMeme

Rare Disease Meme – Rise Up

Cystinosis Awareness Meme

¿Vas a correr, Eh? Canadienses corren por una buena causa

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