Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
According to Parkinson's News, researchers have discovered that specific immune cells in the blood of patients with Parkinson's disease appear up to 10 years before motor skills are impacted. This…
So you're looking to get pregnant or curious about some part of it. Well, you've come to the right place! If you're looking to have a baby, but you also…
Saying "coronavirus changed the world" seems like a bit of an understatement right now. Jobs have embraced "work from home" en masse. Doctor's appointments are being rescheduled, school is online, and most…
Ashlyn Sanders was a graduate student at Duke University when she experienced her first seizure. The UNC alumna was shocked. She pursued an MRI, which ended up discovering a…
George and Josie Taylor fell in love in their 20s. 52 years later and happily married, the couple believed that they could conquer anything together. But COVID-19 threw a…
According to the UN News, the first ever World Chagas Disease Day was celebrated on April 14, 2020 to raise awareness for Chagas Disease, a rare disease spread by…
According to Ankylosing Spondylitis News, a recent study has found that TNF inhibitors are often not effective treatments for patients with ankylosing spondylitis. Read the full study in BMC Rheumatology.…
According to Medical XPress, Australian researchers have discovered a new and more effective way to detect remaining cancerous tissue in patients with breast cancer during surgery. This technique will assist…
As COVID-19 continues to spread, more and more people are wondering how they might be affected. If you're a member of the rare disease community, you know it can be…
According to Psychology Today, French physicians may have discovered new early symptoms of COVID-19: dyshydrosis and urticaria. Though the article is published in French, you can read the dermatologists'…
According to Fabry Disease News, patients with Fabry disease may have better outcomes when treated with enzyme replacement therapy PRX-102 over Replagal. In a one year comparison, PRX-102 seems…
According to MedPage Today, a recent study performed by researchers from the Vasculitis and Glomerulonephritis Center of Massachusetts General Hospital and Harvard Medical School found that patients with vasculitis had…
COVID-19 is difficult for many of us. We are facing an unprecedented time and questions abound. How do we handle our work, our families, our health? If you are a…
According to Bronchiectasis News, patients with both HIV and bronchiectasis often have a difficult time being diagnosed with the respiratory condition. After researchers examined data from 14 patients, they discovered…
According to MedPage Today, carriers of the gene variation APOE4 are much more at risk of developing Alzheimer's disease. However, researchers found that one copy of the Klotho gene mutation,…
In Prohealth, Marlane Quade Cook draws on her own experience with Ehlers-Danlos syndrome to question whether the medical community has enough information and education to properly diagnose all 13 subtypes…
We’ve all heard of the common symptoms of COVID-19 infection: fever, body aches, loss of taste and smell, and a dry and persistent cough. But according to Stat News, doctors…
As initially reported by France24, researchers from the United States and China have discovered that artificial intelligence may play a crucial role in understanding the impact of COVID-19 on…
According to Charcot-Marie-Tooth News, a recent case study found that a variation of the SEPT9 gene could contribute to the development of Charcot-Marie-Tooth disease. Read the full findings in BMC Medical Genetics. Charcot-Marie-Tooth…
While genomic research presents the unique opportunity of combating diseases and gene malfunctions at the source, the practice has been incredibly controversial. Some people worry about the ethics of…
According to a press release from the American Society of Clinical Oncology (ASCO), they recently began the ASCO Registry to assist and inform patients with cancer and their families…
12-year-old hockey player Tyler Singletary is a great team player and master on the ice. But, as reported by CBS17, Tyler found himself up against a new opponent in 2019…
With COVID-19 spreading across the country, many people are now thinking of how to keep their friends, their families, and themselves safe from the virus. But for those whose…
For the last month, the world has been living through a pandemic: COVID-19. The situation is rapidly changing daily. As of April 13, there have been 1.8 million diagnosed…
Want to learn more about recognizing symptoms and diagnosing patients? In a MedPage article, authors encourage readers to follow along on a case study to understand why a 58-year-old…
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