Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
source: pixabay.com
Want to learn more about recognizing symptoms and diagnosing patients? In a MedPage article, authors encourage readers to follow along on a case study to understand why a 58-year-old…
Continue Reading
Using Imaging to Discover Pleomorphic Sarcoma of the Left Atrium: A Case Study
Source: www.pixabay.com
According to the Daily Beast, the increasing spread of COVID-19 is causing real problems around the globe - and not just in the way that you might think. This viral…
Continue Reading
Rationing Care, Weighing Lives: How COVID-19 Equipment Shortages Can Harm Patients
You've most likely heard of COVID-19. Although the numbers seem to constantly be growing, the current amount of diagnoses sits at just about 2.1 million people. In many articles, you'll…
Continue Reading
Asthma and COVID-19: Is Asthma a Risk Factor for COVID-19?
source: pixabay.com
As originally shared in Tech Startups, an Israeli biotech company called Pluristem has created a placenta-based cell therapy to treat patients with COVID-19. So far, the therapy, which uses PLacental…
Continue Reading
Israeli Placenta-based Cell Therapy for COVID-19 Moved into Clinical Trial
According to an article in the Baker City Herald, a non-profit organization has launched a website designed to support and educate patients with bronchiectasis. NTM Info & Research advocates for patients…
Continue Reading
NTM Info & Research Creates Educational Tool for Patients with Bronchiectasis
A recent release from Yale University highlights research from Dr. Kutluk Oktay, a fertility expert, on how BRCA-mutated breast cancer may affect fertility following chemotherapy treatments. His findings suggest that women…
Continue Reading
BRCA-Mutated Breast Cancer May Negatively Impact Fertility
According to a news release, researchers have found that cysteinase, a compound designed to treat a rare kidney stone disease, may also be effective in treating patients with pancreatic cancer.…
Continue Reading
Treating Pancreatic Cancer with Cysteinase: A Potential New Approach
"An apple a day keeps the doctor away." Growing up, this sing-song refrain stood as nothing more than a reminder from my parents to eat my fruits and veggies. But it…
Continue Reading
“An Apple a Day:” Fruit Peel Compounds May Reverse Neural Damage from Multiple Sclerosis
According to CNBC, there is a shortage across the country of a very important medication: hydroxychloroquine. This is somewhat unsurprising. After all, the Trump administration has been vocal about the…
Continue Reading
Hydroxychloroquine Shortage: What About Patients with Autoimmune Disorders?
According to Business Insider, cases of COVID-19 and deaths attributed to it are rising rapidly. The pandemic was officially declared on March 10th, just about one month ago. At the…
Continue Reading
How 15 Drugmakers Are Making Headway Against the Coronavirus Pandemic
According to an article in The Asahi Shimbun, Japanese scientists have developed a new vaccine to mitigate neuronal degeneration caused by Alzheimer's disease. The vaccine, delivered nasally, had promising results…
Continue Reading
Nasal Vaccine Prevents Neuronal Loss in Mice Models of Alzheimer’s Disease
source: pixabay.com
According to Parkinson's News Today, Dutch neurologist Bastiaan Bloem, MD, believes that the development of Parkinson's disease can be attributed to chemical exposure. About Parkinson's Disease Parkinson's disease is…
Continue Reading
Chemicals Linked to Development of Parkinson’s Disease, Says Dutch Neurologist
According to an article in Healio, the immunosuppressing drug voclosporin was found to be effective in stimulating renal responses in patients with lupus nephritis. About Lupus Nephritis Lupus nephritis…
Continue Reading
AURORA Study Finds Voclosporin Effective for Lupus Nephritis Treatment
According to Healio, a recent study has found that patients with ovaries who have asthma or chronic obstructive pulmonary disease (COPD) are at a higher risk of developing rheumatoid…
Continue Reading
Rheumatoid Arthritis Risk Greater in Patients with Asthma, COPD
source: pixabay.com
According to Oren Goldshtein, CEO of Vectorious Medical Technologies, remote patient monitoring is needed now more important than ever. Nobody knows how long the COVID-19 pandemic will last or…
Continue Reading
COVID-19 Reveals the Future Necessity of Remote Patient Monitoring
source: pixabay.com
The Health Medicine Network has shared that researchers found a potential early biomarker that could help track the development of non-alcoholic fatty liver disease. With up to 80% of…
Continue Reading
Study Finds Biomarker for Non-Alcoholic Fatty Liver Disease
Sourced from publicdomainpictures.net (https://www.publicdomainpictures.net/en/view-image.php?image=275669&picture=chemical-research)
According to new research from the Journal of Infectious Diseases, a new protein epitope has been discovered while testing the immune response of people with Kawasaki Disease. Kawasaki Disease, also…
Continue Reading
New Research Identifies Protein Epitope Targeted in Kawasaki Disease Immune Response
source: pixabay.com
As originally discussed in Muscular Dystrophy News Today, a recent study has discovered that increasing levels of utrophin in the body can improve muscle strength, form, and function for patients…
Continue Reading
Utrophin for Patients with Duchenne Muscular Dystrophy
Sourced from Pixabay
How will this affect my child? Will this diagnosis change the way my child can receive medical treatment? If an emergency arises, do I have the knowledge needed to…
Continue Reading
Is It Safe to Anesthetize Young Patients with Batten Disease?
source: pixabay.com
According to a press release from the Mayo Clinic, new research findings show that in-utero neurological surgery for patients with spina bifida is more successful in strengthening brain structure…
Continue Reading
Fetal Spina Bifida Surgery Shown to Restore Brain Structure
source: pixabay.com
If you're worried or anxious because of COVID-19, you're not alone. If wondering about the intersection of rare diseases and COVID-19 only increases that anxiety, well, we're with you…
Continue Reading
Handling Rare Diseases and COVID-19: National Organization for Rare Disorders Reminds You to Stay Strong
source: pixabay.com
According to a story from Wexford People, 8-year-old Mia-Lily Ruttle wants to spread some hope to people around the globe. The girl, who has neurofibromatosis, was upset by the impact…
Continue Reading
Planting Love Around the World: A Young Patient with Neurofibromatosis Works to Reduce COVID-19 Anxiety
source: pixabay.com
According to a news release from the American College of Cardiology, rivaroxaban is more effective than enoxaprin (heparin) in preventing blood clots or low platelet counts in patients after…
Continue Reading
Rivaroxaban Lowers Risk of Venous Thromboembolism for Orthopedic Surgeries as Compared to Heparin
source: pixabay.com
According to Microbiome Times, Ilya Pharma has received a BIO-X® grant to study gene therapy for patients with inflammatory bowel disease. Their chemokine-based gene therapy drug candidates seek to…
Continue Reading
BIO-X® Grant Given to Ilya Pharma to Develop Gene Therapy Solutions for Patients with Inflammatory Bowel Disease
Cuando algunas personas escuchan el "efecto placebo", evoca imágenes de píldoras de azúcar diseñadas para estimular la creencia del paciente. Pero según Healio, el término tiene un significado diferente…
Continue Reading
El Efecto Placebo y Los Resultados Positivos del Paciente