Raising a Daughter with CHARGE Syndrome: Jessica Lechuga’s Story
According to UIC Today, Jessica Lechuga became immersed within the rare disease community when she was still a teenager. That's because, at age 17, Jessica gave birth to her daughter…
Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
According to UIC Today, Jessica Lechuga became immersed within the rare disease community when she was still a teenager. That's because, at age 17, Jessica gave birth to her daughter…
According to WMC5, a research study out of Cleveland, OH, has been testing the impact of robotic exoskeletons on movement for patients with multiple sclerosis. For Kathy Miska, this is…
Según un comunicado de prensa en Global Newswire, la compañía biofarmacéutica MediciNova recibió un Aviso de concesión para una solicitud de patente para MN-166, que podría usarse para tratar el…
Patients with hemophilia may experience sudden bleeding, joint pain and inflammation, and deep bruising. But according to Hemophilia News, two proteins may be the cause. Researchers found that patients…
COVID-19 has rapidly spread across the globe. With nearly 2.7 million diagnosed cases, the medical field is overworked. As a result, many hospitals and doctors are experiencing a lack…
According to Angelman Syndrome News, researchers used rat models of Angelman syndrome to test gene editing as a potential therapy. They found that CRISPR technology deleted the defective UBE3A gene. However, rats…
As COVID-19 continues to spread, and the length of our lockdowns increases, many patients with rare diseases and their families are wondering what comes next. How will you receive treatment?…
Recientemente, el Dr. Ian Winburn de Pfizer se sentó con Europabio para una entrevista en honor del Día Mundial de la Hemofilia, que acaba de ocurrir el 17 de…
As COVID-19 continues to spread across the globe, more and more people are wondering how this virus might affect them. This is especially true for patients with rare diseases,…
According to a release from the UVA Health System Newsroom, Dr. Zhen Yan, PhD, discovered that exercise can reduce or totally stop severe respiratory symptoms associated with acute respiratory…
According to Medical XPress, hospitalized patients with inflammatory bowel disease are more at risk of developing bacteremia, particularly if they are older in age. Researchers came to this conclusion using…
According to the American Journal of Managed Care, a case study in China has shown that tocilizumab was effective in treating a patient with both COVID-19 and multiple myeloma. When…
When this 20-year-old male patient was serving in the military, he came down with two severe medical issues: pneumonia and adrenal crisis, categorized by an issue with an adrenal hormone…
The world has now hit over 3.5 million diagnosed cases of COVID-19, with 1.2 million cases in the United States alone. Although the pandemic started in December or January, the…
Saying that COVID-19 has impacted the world might just be an understatement. In fact, COVID-19 changed the way we interact with each other, businesses, and the world around us. But how…
Recently, Pfizer's Dr. Ian Winburn sat down with Europabio for an interview in honor of World Hemophilia Day, which just occurred on April 17. In his discussion, Dr. Winburn…
According to a press release on Global Newswire, the biopharmaceutical company MediciNova has received a Notice of Allowance for a patent application for MN-166, which could be used to treat…
According to Angioedema News, the European Medicines Agency (EMA) is now reviewing berotralstat as a potential therapy to combat severe inflammation attacks in patients with hereditary angioedema. Hereditary Angioedema Hereditary…
According to a news release from Biospace, recent data from the KALM-2 Phase III trial highlighted how Korsuva, an injectable, is beneficial in treating severe itching associated with severe chronic…
The FDA recently granted Orphan Drug status to CS1, a drug therapy from Cereno Scientific, according to Pulmonary Hypertension News. CS1 is designed to provide safe and effective treatment for…
When the 31-year-old woman showed up to Massachusetts General Hospital with a nasty respiratory infection, she was somewhat used to it. In fact, she had been plagued with respiratory problems…
Recently, says Medical XPress, an international research team discovered that the drug therapy 2-deoxy D-glucose can slow cell growth. In patients with ovarian cancer, the drug can halt the growth…
Según un artículo en The Asahi Shimbun, científicos japoneses han desarrollado una nueva vacuna para mitigar la degeneración neuronal causada por la enfermedad de Alzheimer. La vacuna, administrada por vía…
According to BioSpace, healthcare technology company RDMD has raised $14 million in Series A financing, and developed a partnership with UCB. In addition to growing their platform to discuss…
If you're like me, news about COVID-19 has been dominating your life recently. The novel coronavirus rapidly spread across the world over the past few months. At the time…