Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
You've most likely heard of COVID-19. Although the numbers seem to constantly be growing, the current amount of diagnoses sits at just about 2.1 million people. In many articles, you'll…
As originally shared in Tech Startups, an Israeli biotech company called Pluristem has created a placenta-based cell therapy to treat patients with COVID-19. So far, the therapy, which uses PLacental…
According to an article in the Baker City Herald, a non-profit organization has launched a website designed to support and educate patients with bronchiectasis. NTM Info & Research advocates for patients…
A recent release from Yale University highlights research from Dr. Kutluk Oktay, a fertility expert, on how BRCA-mutated breast cancer may affect fertility following chemotherapy treatments. His findings suggest that women…
According to a news release, researchers have found that cysteinase, a compound designed to treat a rare kidney stone disease, may also be effective in treating patients with pancreatic cancer.…
"An apple a day keeps the doctor away." Growing up, this sing-song refrain stood as nothing more than a reminder from my parents to eat my fruits and veggies. But it…
According to CNBC, there is a shortage across the country of a very important medication: hydroxychloroquine. This is somewhat unsurprising. After all, the Trump administration has been vocal about the…
According to Business Insider, cases of COVID-19 and deaths attributed to it are rising rapidly. The pandemic was officially declared on March 10th, just about one month ago. At the…
According to an article in The Asahi Shimbun, Japanese scientists have developed a new vaccine to mitigate neuronal degeneration caused by Alzheimer's disease. The vaccine, delivered nasally, had promising results…
According to Parkinson's News Today, Dutch neurologist Bastiaan Bloem, MD, believes that the development of Parkinson's disease can be attributed to chemical exposure. About Parkinson's Disease Parkinson's disease is…
According to an article in Healio, the immunosuppressing drug voclosporin was found to be effective in stimulating renal responses in patients with lupus nephritis. About Lupus Nephritis Lupus nephritis…
According to Healio, a recent study has found that patients with ovaries who have asthma or chronic obstructive pulmonary disease (COPD) are at a higher risk of developing rheumatoid…
According to Oren Goldshtein, CEO of Vectorious Medical Technologies, remote patient monitoring is needed now more important than ever. Nobody knows how long the COVID-19 pandemic will last or…
The Health Medicine Network has shared that researchers found a potential early biomarker that could help track the development of non-alcoholic fatty liver disease. With up to 80% of…
According to new research from the Journal of Infectious Diseases, a new protein epitope has been discovered while testing the immune response of people with Kawasaki Disease. Kawasaki Disease, also…
As originally discussed in Muscular Dystrophy News Today, a recent study has discovered that increasing levels of utrophin in the body can improve muscle strength, form, and function for patients…
How will this affect my child? Will this diagnosis change the way my child can receive medical treatment? If an emergency arises, do I have the knowledge needed to…
According to a press release from the Mayo Clinic, new research findings show that in-utero neurological surgery for patients with spina bifida is more successful in strengthening brain structure…
If you're worried or anxious because of COVID-19, you're not alone. If wondering about the intersection of rare diseases and COVID-19 only increases that anxiety, well, we're with you…
According to a story from Wexford People, 8-year-old Mia-Lily Ruttle wants to spread some hope to people around the globe. The girl, who has neurofibromatosis, was upset by the impact…
According to a news release from the American College of Cardiology, rivaroxaban is more effective than enoxaprin (heparin) in preventing blood clots or low platelet counts in patients after…
According to Microbiome Times, Ilya Pharma has received a BIO-X® grant to study gene therapy for patients with inflammatory bowel disease. Their chemokine-based gene therapy drug candidates seek to…
Cuando algunas personas escuchan el "efecto placebo", evoca imágenes de píldoras de azúcar diseñadas para estimular la creencia del paciente. Pero según Healio, el término tiene un significado diferente…
COVID-19 and its rapid global spread have been anxiety-inducing, to say the least. For patients with rare diseases and their families, the growth of COVID-19 has also prompted additional…
According to a release on Biospace, the European Commission (EC) has approved Takeda Pharmaceutical's ALUNBRIG (brigatinib) as treatment for patients with anaplastic lymphoma kinase-positive (ALK+) advanced non-small cell lung cancer…
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