Rare Community Profiles: Revving for Hope: Raising HoFH Awareness in One Ride
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Rare Community Profiles: Revving for Hope: Raising HoFH Awareness in One Ride

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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Adding Evinacumab to Care Plan Can Significantly Increase HoFH Life Expectancy
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Adding Evinacumab to Care Plan Can Significantly Increase HoFH Life Expectancy

In the average person, you would expect to see normal to near-optimal low-density lipoprotein (LDL) cholesterol levels sitting at 129 mg/DL or lower; levels under 100 are seen as healthier.…

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Rare Community Profiles: Heart Attack at 27: How an HoFH Diagnosis Allowed Peter to Live a More Empowered Life
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Rare Community Profiles: Heart Attack at 27: How an HoFH Diagnosis Allowed Peter to Live a More Empowered Life

Rare Community Profiles     Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Continue Reading Rare Community Profiles: Heart Attack at 27: How an HoFH Diagnosis Allowed Peter to Live a More Empowered Life
ICYMI: Evkeeza Now FDA-Approved for HoFH
Xanthoma is an easy sign of high cholesterol conditions like HeFH. If you see this, please go to the doctor immediately! Source: Wikipedia

ICYMI: Evkeeza Now FDA-Approved for HoFH

  While there are existing therapies for individuals living with homozygous familial hypercholesterolemia (HoFH), a rare form of high LDL cholesterol, these therapies often fail to control cholesterol levels for…

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Positive Results From Clinical Trial for Children with Homozygous Familial Hypercholesterolemia
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Positive Results From Clinical Trial for Children with Homozygous Familial Hypercholesterolemia

Regeneron Pharmaceuticals Inc. has just released positive results from their Phase 3 investigation of Evkeeza as a treatment for homozygous familial hypercholesterolemia (HOFH). Specifically, this trial studied the treatment for…

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ICYMI: Good Results From Evinacumab for Rare Form of Familial Hypercholesterolemia
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ICYMI: Good Results From Evinacumab for Rare Form of Familial Hypercholesterolemia

  A press release issued recently by Regeneron Pharmaceuticals heralded the acceptance of a Biologics License Application by the FDA for Priority Review of its investigational drug, evinacumab. The Priority…

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BLA for Evinacumab, a Treatment for HoFH, Receives Priority Review Status
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BLA for Evinacumab, a Treatment for HoFH, Receives Priority Review Status

  This week, Regeneron Pharmaceuticals announced that their Biologics License Application (BLA) for evanicumab, a treatment for homozygous familial hypercholesterolemia (HoFH), was granted Priority Review status by the FDA. The…

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New Rare Diseases Have Been Added to the Patient Advocate Foundation’s Co-Pay Relief Program
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New Rare Diseases Have Been Added to the Patient Advocate Foundation’s Co-Pay Relief Program

The Patient Advocate Foundation has recently begun to expand the reach of its popular Co-Pay Relief program. The Co-Pay Relief program is designed to provide financial assistance to qualifying patients.…

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When FH Testing Unveils the Secrets of the Family Tree
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When FH Testing Unveils the Secrets of the Family Tree

What do you think of when you hear the word “family?” You may consider your parents, siblings, grandparents, aunts, and uncles. No matter whom you include, we all share one…

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Fighting FH and LDL Cholesterol with Valuable New Drug
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Fighting FH and LDL Cholesterol with Valuable New Drug

We’ve all heard the expression, “Beauty is in the eye of the beholder.” How about another cliché? “One man’s trash is another man’s treasure.” These trite statements do, in fact,…

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Cómo y por qué usted debe recibir dinero para la medicación HFHo
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Cómo y por qué usted debe recibir dinero para la medicación HFHo

Si usted o su ser querido está viviendo con hipercolesterolemia familiar homocigota (HFH), que va a estar encantados con esta noticia - y se lo merece, también! La Fundación Defensor…

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Nuevo tratamiento para la HFHo te reta a ponerle un precio a la vida
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Nuevo tratamiento para la HFHo te reta a ponerle un precio a la vida

Niveles altos de colesterol, particularmente colesterol de lipoproteínas de baja densidad (LDL-C) es un problema para muchas personas, pero ninguno más que los que tienen la hipercolesterolemia condición heredada genéticamente…

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5 razones por lo que este nuevo tratamiento para la HFHo te hará saltar de alegría
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5 razones por lo que este nuevo tratamiento para la HFHo te hará saltar de alegría

Si usted ha estado sufriendo de colesterol alto con las puntuaciones tristemente lipoproteínas de baja densidad (LDL), aquí hay algunas noticias de última hora que podría salvar su vida! La…

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Esto es lo que ocurre cuando un medicamento pocas personas necesitan recauda miles de millones
Lipitor may go down as one of the most successful drugs in history, but not without some unanswered questions. Source: Drugreporter

Esto es lo que ocurre cuando un medicamento pocas personas necesitan recauda miles de millones

Alan Cassels es un investigador de la política de drogas que, en la edición de agosto de la revista Common Ground, escribió acerca de cómo las empresas y los vendedores…

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