2018 FH Global Summit Highlights

The 2018 FH Global Summit featured fantastic speakers, timely information, and valuable insight about the past, present and future of the way FH is understood, diagnosed, and managed. The summit…

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New Rare Diseases Have Been Added to the Patient Advocate Foundation’s Co-Pay Relief Program
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New Rare Diseases Have Been Added to the Patient Advocate Foundation’s Co-Pay Relief Program

The Patient Advocate Foundation has recently begun to expand the reach of its popular Co-Pay Relief program. The Co-Pay Relief program is designed to provide financial assistance to qualifying patients.…

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When FH Testing Unveils the Secrets of the Family Tree
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When FH Testing Unveils the Secrets of the Family Tree

What do you think of when you hear the word “family?” You may consider your parents, siblings, grandparents, aunts, and uncles. No matter whom you include, we all share one…

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Fighting FH and LDL Cholesterol with Valuable New Drug
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Fighting FH and LDL Cholesterol with Valuable New Drug

We’ve all heard the expression, “Beauty is in the eye of the beholder.” How about another cliché? “One man’s trash is another man’s treasure.” These trite statements do, in fact,…

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Cómo y por qué usted debe recibir dinero para la medicación HFHo
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Cómo y por qué usted debe recibir dinero para la medicación HFHo

Si usted o su ser querido está viviendo con hipercolesterolemia familiar homocigota (HFH), que va a estar encantados con esta noticia - y se lo merece, también! La Fundación Defensor…

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How To Stop Bad Cholesterol in Its Tracks
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How To Stop Bad Cholesterol in Its Tracks

Let's talk cholesterol—the bad kind, 'cause there're different kinds. LDL cholesterol, or low-density lipoprotein cholesterol, is the kind you DON'T want, because it can lead to a whole host of…

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Nuevo tratamiento para la HFHo te reta a ponerle un precio a la vida
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Nuevo tratamiento para la HFHo te reta a ponerle un precio a la vida

Niveles altos de colesterol, particularmente colesterol de lipoproteínas de baja densidad (LDL-C) es un problema para muchas personas, pero ninguno más que los que tienen la hipercolesterolemia condición heredada genéticamente…

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5 razones por lo que este nuevo tratamiento para la HFHo te hará saltar de alegría
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5 razones por lo que este nuevo tratamiento para la HFHo te hará saltar de alegría

Si usted ha estado sufriendo de colesterol alto con las puntuaciones tristemente lipoproteínas de baja densidad (LDL), aquí hay algunas noticias de última hora que podría salvar su vida! La…

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Esto es lo que ocurre cuando un medicamento pocas personas necesitan recauda miles de millones
Lipitor may go down as one of the most successful drugs in history, but not without some unanswered questions. Source: Drugreporter

Esto es lo que ocurre cuando un medicamento pocas personas necesitan recauda miles de millones

Alan Cassels es un investigador de la política de drogas que, en la edición de agosto de la revista Common Ground, escribió acerca de cómo las empresas y los vendedores…

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Aquí están 7 deliciosas cosas que los pacientes con HF pueden comer

Incluso cuando su nivel de colesterol LDL está disparando a través del techo, que todavía puede ser difícil de querer (y elegir!) Lo "saludable" para comer. Pero nosotros hemos hecho…

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Está el nuevo fármaco para la HF Inspirado por Star Wars? A quién le importa, funciona

Parado frente a una multitud de gente hablando sobre su HFHo puede ser intimidante. Imagina que esa multitud fuese un panel de doctores y científicos que son parte de la…

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On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?

Kim Kardashian: one of the most famous women in the world. Why, you ask? I honestly don't know. But due to that fact that so many people know and seem to…

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Eff YOU, FH! See What This Summit is Proving
And so is that chainsaw massacre nobody likes to talk about, but whatever. Source: www.giphy.com Pixabay

Eff YOU, FH! See What This Summit is Proving

You know what they say—everything’s bigger in Texas. And this year’s FH Global Summit, located in sunny Dallas, will be bigger than ever. Nobel laureates as speakers? √ Intensive discussions among healthcare leaders? √…

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20 canciones impactantes Acerca de enfermedades crónicas que te sorprendera

Aquí en PatientWorthy, creemos que la risa puede ser la mejor medicina. Humor irónico es sorta lo nuestro. Pero para aquellos que ofenden fácilmente, o tal vez incluso moderadamente intolerante,…

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FH Patients Win Big In Innovative New “Pay to Perform” Deal

So here’s a nice antidote to all those stories about greedy pharma execs soaking patients for ultra-expensive treatments. There’s a new approach to contrpay-acting between insurance companies and pharmaceutical companies…

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How and Why You Should Get Big Money for HoFH Medication
The PAF is increasing its efforts to fund co-pays for those suffering from HoFH.

How and Why You Should Get Big Money for HoFH Medication

If you or your loved one is living with homozygous familial hypercholesterolemia (HoFH), you’re going to be thrilled with this news--and you deserve it, too! The Patient Advocate Foundation (PAF) just announced on November 2nd,…

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Why “Bad Cholesterol” is Good for People With HoFH

No one wants to have familial hypercholesterolemia—heterozygous (HeFH) OR homozygous (HoFH). Why? It's obvious. Having too much “bad cholesterol” in your system creates all sorts of serious health issues. But…

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