Incluso cuando su nivel de colesterol LDL está disparando a través del techo, que todavía puede ser difícil de querer (y elegir!) Lo "saludable" para comer. Pero nosotros hemos hecho…
Doctors in New Delhi, India recently made history by performing a heart bypass surgery on a young boy who has the rare condition called homozygous familial hypercholesterolemia, or HoFH. The…
Parado frente a una multitud de gente hablando sobre su HFHo puede ser intimidante. Imagina que esa multitud fuese un panel de doctores y científicos que son parte de la…
Kim Kardashian: one of the most famous women in the world. Why, you ask? I honestly don't know. But due to that fact that so many people know and seem to…
You know what they say—everything’s bigger in Texas. And this year’s FH Global Summit, located in sunny Dallas, will be bigger than ever. Nobel laureates as speakers? √ Intensive discussions among healthcare leaders? √…
Every so often, I hear someone grumpily complain about their high cholesterol and what they're doing to get it under control. The great majority of people will respond to a change…
Aquí en PatientWorthy, creemos que la risa puede ser la mejor medicina. Humor irónico es sorta lo nuestro. Pero para aquellos que ofenden fácilmente, o tal vez incluso moderadamente intolerante,…
So here’s a nice antidote to all those stories about greedy pharma execs soaking patients for ultra-expensive treatments. There’s a new approach to contrpay-acting between insurance companies and pharmaceutical companies…
If you or your loved one is living with homozygous familial hypercholesterolemia (HoFH), you’re going to be thrilled with this news--and you deserve it, too! The Patient Advocate Foundation (PAF) just announced on November 2nd,…
No one wants to have familial hypercholesterolemia—heterozygous (HeFH) OR homozygous (HoFH). Why? It's obvious. Having too much “bad cholesterol” in your system creates all sorts of serious health issues. But…
We may be heading into the holiday season, but there is no Ho! Ho! Ho! in HoFH. Most people can't even say it, let alone try to live with it:…
For many people in the rare disease community, becoming a medical detective is a matter of necessity. You read everything you can get your hands on, then burn up the…
Familial hypercholesterolemia (FH), a genetic disorder associated with extremely high levels of LDL cholesterol, can be frightening. Many people are diagnosed in infancy, and it’s not uncommon for even children…
Here at PatientWorthy, we think laughter can be the best medicine. Ironic humor is sorta our thing. But to those easily offended, or perhaps even moderately intolerant, we suggest you…
High cholesterol, particularly low-density lipoprotein cholesterol (LDL-C) is a problem for many people, but none more so than those who have the genetically inherited condition familial hypercholesterolemia (HeFH) and homozygous familial…
If you’ve been suffering from high cholesterol with dismally low-density lipoprotein (LDL) scores, here’s some breaking news that could save your life! The FDA has announced the approval of a…
Check out and pass along the Editor's Choice articles of the week! [one_half] [/one_half] [one_half_last] This is Why People Are Shakin’ It for Dystonia Awareness Month When dystonia leaves you…
Little Avery’s family has had to make some major changes ever since Avery was diagnosed with Familial Hypercholesterolemia (HoFH) in December 2014. As discussed in the blog, Avery's Fight, doctors…
Here’s the scenario: You or someone you love has just been diagnosed with high cholesterol. You’re probably on overload trying to digest what this life-threatening condition means, the impact it…
Alan Cassels is a drug policy researcher who, in the August issue of Common Ground magazine, wrote about how pharmaceutical companies and drug marketers employ misdirection so consumers think a medicine does something…
Even when your LDL cholesterol is shooting through the roof, it can still be tricky to want (and choose!) the “healthy” thing to eat. But we’ve made it easy. These…
No one knows the dangers of bad cholesterol better than patients with familial hypercholesterolemia (FH). According to the FH Foundation, there are two forms of FH. 1) HeFH, and 2)…
Standing in front of a crowd and talking about your HoFH can be intimidating. Imagine if that crowd was a panel of doctors and scientists with the US Food and…
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