Scientists need to get on the same page on Lyme Disease
Welcome to Lyme Disease Awareness Month
May is Lyme Disease Awareness Month and like other awareness months, it's all about educating the medical community and the community at large. Lyme disease is one of, if not the…
Meme Motivation – Lyme is no walk in the park
Will You Be At This Year’s Lyme Conference?
Have Lyme disease and want to to learn more about it? What about meeting other people with Lyme disease? Sound like something you're into? Come out to the 10th annual Lyme…
Fight for a Lyme Disease Diagnosis
And you thought walking down a dark alley was dangerous?! Well, try your own back yard! Vanessa Boyd is fighting for her life having been most likely bitten by a…
5 maneras de hacer 2016 un año mejor #NewYearNewYou
Alexis Rosen fue diagnosticado con la enfermedad de Lyme crónica después de mucha confusión y mes de la búsqueda de respuestas. Ha comenzado ya la terapia con antibióticos IV. Después…
Editor’s Choice: Man Races to Breathe, Odd Lymie Behaviors and Narcolepsy Video Series
Happy Friday Patient Worthians! This week we are highlighting a story of a man with cystic fibrosis, racing to breathe and spread awareness of exercise therapy for those with CF.…
7 maneras extrañas que sabes que tienes el síndrome de taquicardia postural ortostática (POTS)
Antes de que me diagnosticaran oficialmente con el síndrome de taquicardia postural ortostática (POTS, por sus siglas en ingles), pensaba que los síntomas extraños eran una parte de mí ser.…
Editor’s Choice: 3 Powerful Messages From Inspiring Women
It's officially April and it's officially the WEEKEND! PW Contributor Alexis writes of how her experience with PTSD relates to going through the process of diagnosis and treatment of chronic…
7 Unusual Things I Did While on Lyme Treatment
Chronic Lyme is as the name indicates...chronic. But it definitely was at it's worst during tough antibiotic treatment. I was recently talking to my girlfriend who is currently going through…
Pat, I’d Like to Solve the Puzzle
One Thursday night, I was completely emotionally wiped out. There was something that went down in my family and I spent that evening on the phone and in tears. I’m…
Traumatic Experience and Grief that Comes with Chronic Illness
When people hear the word “trauma” they often think of a car crash, assault, witnessing a robbery and sudden violent acts that alter our lives. Throughout my own life I…
Sponsored Research of Pharmacodynamic Biomarkers
Michael J. Fox Foundation Announces New Research Initiative for Pharmacodynamic (PD) Biomarker Like many other diseases such as Lyme disease, there is no current, easily measured bio-marker for Parkinson’s. Without…
5 Ways to Exercise With Lyme Disease
If you have chronic Lyme like me, then you know that exercising can be a huge challenge. Your joints might hurt or swell, you might even find it difficult to…
The 2016 Time for Lyme Gala is in TWO weeks!
Mark your calendars: The Global Lyme Alliance is hosting the 2016 Time for Lyme Gala on April 2, 2016. Where: Hyatt Regency Greenwich When: April 2, 2016, 6:30 pm-12 am (Midnight)…
Sport Your St. Patty’s Day Lyme Green
Happy St. Patty's Day Patient Worthians! But really, what better day (other than all of Lyme Disease Awareness Month in May) than today to spread Lyme Disease Awareness? We have the…
Editor’s Note on Rare Disease Day NIH 2016
When I walked in to Rare Disease Day 2016 at NIH, the atmosphere was full of hope, on a scientific level, legislative level and patient level. And I'm not just…
Can Bee Pollen Actually Help Recovery From Disease Treatment?
I have been off of long-term antibiotic treatment for Lyme disease now for 6 months. How FREEING! During treatment I had so many chemicals running around my body. I had…
Editor’s Choice: Morgue Nightmare and D-Day
Welcome to this week's Editor's Choice! You won't believe this woman's story of waking up in a morgue because her rare disease wasn't recognized. And one of PW's contributors finally gets a…
D-Day (A Diagnosis!) Part 2
“Chels, I really think you should get tested for LYME.” That's where we left off in Part 1 of Chelsea's post. And now... Part 2. I kind of balked at…
D-Day (A Diagnosis!) Part 1
First, I’d like to start by saying that no chickens were harmed in the making of this article. Second, I’d like to announce to the world that I have a…
Editor’s Choice: Pot, POTS and Virginia’s Awesome Lyme Legislation
Did you guys know Rare Disease Week is next week? Come participate with us! This week however, we wanted to address some rare diseases of our own: Lyme and POTS. Though POTS…
Virginia Spearheading Lyme Disease Legislation
Guys, I am so pumped to be from Virginia right now. Having gone to the University of Virginia, I definitely have state pride, but the latest legislation passed in my…
Why You Should Seek a Second Opinion
Here at Patient Worthy, we can't stress enough how important it is for patients to advocate for themselves. With rare disease, you often have to fight for a diagnosis. But…
