Who knew that good ol' colonialism could be a leading cause of rare diseases?! At least, that's the case for many Quebecers. Tyrosinemia, which affects about 1 in 100,000 babies…
For anyone suffering from chronic pain, you know what it’s like. If you haven’t had that luxury, here’s what it feels like: You feel like Frankenstein. Your friends and family…
When you’ve got a rare disease, people are bound to give you The Look. You know the one. It says: “Oh, bless your heart; you’ve lost so much.” And you…
For parents of children with dystonia, that frustration is a horrible, ongoing reality. Parents like Melissa Phelps from Gallaten, Kentucky knows this all too well—her young daughters Madison and Olivia…
Right now, you and I are smack dab in the middle of one of history’s greatest information ages. We have more ways to learn about the world around us than…
Okay, Dr. House: We've got first-time parents who claim their newborn is "cranky, fussy, projectile vomiting, and refusing to eat." Although they also say the child has a distended stomach,…
13 years ago, after being diagnosed with a chronic illness, Lisa Copen couldn’t sleep. She was trying to figure out how to manage her new normal. She just wanted to…
I'm Caroline McCarry. I'm a daughter and a friend; a sister and a cousin; a baker and a writer; a cheerleader and a person who has suffered from OCD and…
Meet Samanta. She’s been fighting an incredible amount of symptoms since early 2012. She’s currently diagnosed with Celiac Disease, Ulcerative Colitis, Gastritis, Autonomic Neuropathy, Peripheral Neuropathy and Postural Orthostatic Tachycardia…
I'm Charlie, a 27 year old working in digital marketing in Auckland, NZ. I'm a big fan of good coffee, good beer, good wine, good food - and lots of it! I…
“It’s funny. The day you feared the most, the day you realized you were not going to climb Mount Everest has come and gone, and you did not collapse in…
Meet Hannah, you may not not realize all that she struggles with from looking at her. She is twelve. This is Hannah's #InvisibleFight With Albrights Hereditary Osteodystrophy and congenital hypothyroidism.…
I am Carla Fairchild. I am forty-seven years old, and family and fashion mean everything to me; they are me. They both are my love, my life, and my passion. Owning a…
My name is Lisa. I am a 3x cancer survivor thriver, and I am living with the rare autoimmune disease Myasthenia Gravis. I am a mother, a wife and an…
My name is Bonnie and I’ve been fighting for my life for eighteen years, but I have been fighting an invisible fight for the past twelve. This is #myinvisiblefight story.…
My name is Shelly. I am a Christian, a wife, a mom, and a writer- a published author in fact, and that is how the world knows me. But the…
I'm Maria; I'm a wife and mother, fashionista and shoe enthusiast. Not all of my days are bad, but no one knows about the really bad days because I hide…
Meet Melissa, a wife, mother and advocate. Patient Worthy interviewed Melissa about her #InvisibleIllness - gastroparesis. Almost two years ago, un-welcomed and without warning, gastroparesis enetered Melissa's life. “I was fine one day…
This is my son Oakley, a five year old with an adorable smile, who loves the Ninja Turtles, and you'd never guess what we've been through. My little man has…
It's #IIWK15 (Invisible Illness Awareness Week) and it's impossible for us to be more pumped about it! If you have no idea what #IIWK15 is all about, check out blogger…
My name is Lisa and I am living with rheumatoid arthritis (RA) and fibromyalgia. #myinvisiblefight is ongoing, but I have faith, family, and friends. This is my story. I was just…
This introduction to Invisible Illness Awareness Week or as we like to call it #IIWK15 was written for publication on Patient Worthy by Lisa Copen, the founder and director of II…
Check out and pass along the Editor's Choice articles of the week! [one_half] [/one_half] [one_half_last] Learn why this Viral Message is so Important After a waitress took her speech and…
Just like breaking up with your significant other can be hard to do, so can breaking up with your doctor. After all, he or she may have been with you…
It's September! You know what that means? Happy "Dystonia Awareness Month!" Maybe "Happy" is the wrong word... Because, while spreading awareness is always something to cheer about, dystonia is not. Here…
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