We don't laugh because we're happy – we're happy because we laugh. -William James There is nothing funny about having a rare disease, but learning to laugh as often as possible…
Researchers wanted to know how likely it is for patients to have fibromyalgia with ankylosing spondylitis (AS). As a result, they found that particular comorbidity to be common. Marina Magrey,…
Charis Hill believes that changes to the Affordable Care Act (ACA) may be the difference between living and dying. Charis currently gets insurance due to the ACA. She is worried…
The word “marathon” has become so ubiquitous that it is almost cliché. When people hear the word, they think of their favorite reality TV show played for 12 consecutive hours…
High school senior, Mary Lacy Lusk has ankylosing spondylitis (AS). For those who might not know, ankylosing spondylitis is a rare autoimmune disorder that is similar to rheumatoid arthritis. Mary states…
Andrew Graham was diagnosed in 2009 with a rare autoimmune condition called ankylosing spondylitis, or AS. This disorder primarily affects the bones in his back and causes his vertebrae to, over…
There is an old proverb that all sailors know: You can’t control the wind, but you can adjust the sails. Living with persistent, incurable diseases and/or chronic pain is a…
My dad is devoted to the people he loves. I can’t tell you how many times I’ve heard, “You should always honor your family.” I’m probably not as generous a…
Although traveling can be relaxing and rewarding, the physical demands of travel can be stressful, particularly for travelers with Ankylosing spondylitis (AS). With adequate preparation, however, those with AS can…
A story I read about a man with ankylosing spondylitis (AS) brought back a great memory for me. A few years ago, I was spending a lonely New Year's Eve…
We want to celebrate our patient contributors and writers for their efforts in helping the rare community by bringing awareness, understanding and compassion to often neglected disease. The following article…
We want to celebrate our patient contributors and writers for their efforts in helping the rare community by bringing awareness, understanding and compassion to often neglected disease. The following article…
Welcome back to Editor's Choice Patient Worthians! This week we have a story on some awesome rockers that are helping out the POTS community. We also have a sweet TEDx talk…
You may remember AS warrior Charis from our interview entitled "Move Over Barbie. This is the Model Little Girls Should Idolize". She discussed her journey with Ankylosing Spondylitis, detailing her…
Cuando se le diagnostica la espondilitis anquilosante (EA), la última cosa que quiere hacer es trabajar a cabo. A menos que, por supuesto, usted es Nate Lewnes. Nate ya no…
Si usted o su ser querido está viviendo con una enfermedad crónica rara, probablemente ha pasado por las diversas etapas del duelo: negación, ira, depresión, negociación, y es de esperar…
Para alguien que vive con una enfermedad crónica progresiva, la vida no es ninguna "caja de bombones." No importa cómo las personas positivas u optimistas son, vivir con el dolor…
When you have a rare disease like ankylosing spondylitis (AS), one of the most annoying things your doctor can say to you is: "Well, you need to exercise more." Why…
Happy December Friends! Ah, the week after Thanksgiving is always easy for me knowing Christmas is just a few weeks away! This week, we have a story about a doctor with…
Guarnicion para el dia de accion de gracias: porciones: 2 to 4 2 remolachas grandes de oro hinojo 1 bulbo 1 cebolla roja pequeña Opcional: 1-2 colirrábano 3 cucharadas de…
Estoy agradecido por haber sido capaz de abrazar la lucha que tengo contra la terrible enfermedad de la espondilitis anquilosante (EA) y estoy agradecido de que en el proceso, he…
It's no fun when you're plagued with back pain; you know, the kind of pain that just doesn't go away. People who have ankylosing spondylitis, or AS, know this all…
In the case of an emergency, we're all taught to dial 911. We all assume that the police, firemen, or EMTs will be able to help us. But what if…
About a year ago, at the American Academy of Rheumatologists Annual meeting, there was a report presented about tofacitinib (TOFA) for the treatment of ankylosing spondylitis (AS). Tofacitinib (sold as…
Conocemos la persona "típico" que practical el yoga: blanca, "de la nueva era", delgada, extremidades delgadas y acrobáticas. ¿Mencionamos delgada? Con los años, el yoga se ha convertido en la…
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