Austin Brown was diagnosed with Wiskott-Aldrich syndrome at three months of age. An uncommon blood disease, Wiskott-Aldrich syndrome results in a weakened immune system. Thanks to a stem-cell bone marrow…
An amazing 6-year-old boy from Bradford, who was diagnosed with a rare heart condition called LEOPARD Syndrome, creatively started a fund raising campaign revolved around Christmas and singing to raise…
A woman had the misfortune of losing her daughter to a rare disease caused by a reaction to medication. Now, she's speaking out to raise awareness for this debilitating condition.…
Samuel Augustine was born 15 weeks early at Jackson Memorial Hospital with breathing problems and question marks surrounding his health. He was born with microcephaly and instantly placed on a…
Jay and Kathy Keller of Franklin, Idaho are getting creative this year with their donation efforts, reports WENY News. The Kellers are asking for people to write Christmas letters to…
Michele Holbrook is a runner-- if you spotted her jogging on the street, you wouldn't believe that her body was plagued by more than 20 tumors due to a rare…
….Now what? A master’s degree in teaching? Would that even make sense for my life if I couldn’t even work an eight hour day and was currently seeking employment for…
Kei Otake is a 19-year-old cello student at The Juilliard School - a prestigious performing arts college in New York City that boasts alumni like Viola Davis, Robin Williams, Adam Driver…
A five-year-old boy who spent the majority of his life battling neuroblastoma can now rest in peace. Jacob Jones passed away at a hospice with his mother and father sitting…
5-year-old Gia Danninger was diagnosed with aplastic anemia last year. Ever since, it's been a constant battle for her life, but Gia fights with courage. This rare blood disorder causes…
After dueling with a fatal rare disease, Makenna Vanzant, will be making her epic return to the basketball court. The high school sophomore has been battling hemolytic uremic syndrome and…
What do Nathaniel, a child with Bardet-Biedl Syndrome and Sylvester Stallone's famous boxing hero have in common? Keep reading below, or follow the original story to find out! Braille reading…
One in 10,000 babies is affected by CHARGE Syndrome. Anabelle is one of them. According to doctors, Anabelle should be deaf and blind. She should need to be fed through…
Allison and Ben Gauvin have been to hell and back, but they manage to keep their spirits up. The couple from Connecticut lost their two children to a rare mitochondrial…
A small town Australian mayor was caught parking in a designated handicapped spot, and the mother of a rare disease girl is not having it. The event took place at…
Birthday’s are important milestones for parents. First birthdays especially. For children with Costello syndrome, however, celebrating doesn’t always come naturally. After many difficulties, Joey and his mom finally shared that…
All the odds were stacked against Jimmy Roberson, a man in Birmingham, Alabama. It all began in 2013. Jimmy was on a trip to the lake, but the relaxing day…
During a time when we get a lot of bad or polarizing news about the world, it's important to highlight the good stuff - so here is some good stuff…
Because of an extremely rare disease, 3-year-old Reshmi's head has doubled its size after a fluid buildup in her brain. Reshmi Marak lives in a poor village in Tripura, north…
You may have seen Sanele Junior Xaba in an ad for Adidas Original, posing in mythical depictions for European artists, or photographed nude, covered by only butterflies in the magazine Label.…
A simple facebook post has led to a life changing event for a young boy with CLOVES Syndrome. Keep reading to find out how, or follow the original story here.…
Bradley Lowery won the hearts of many as a football mascot. After an ongoing battle with neuroblastoma, he lost his life earlier this year. Neuroblastoma is a rare form of…
Brielle Manning has been fighting through seizures for over a year, but the dust has settled and her family is now seeing some relief. Brielle suffers from an incredibly rare…
A teen suffering from a rare disease is receiving some holiday love from kind strangers. When Nathan Kelley started losing his hearing, he knew something was wrong. At first, him…
When Raeno Brendtro was asked to sit down after her diagnosis, she refused. She needed to stand for as long as she could, now that her time was limited. The…
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