Tags Posts tagged with "Contribution"

Contribution

10 Cosas que he aprendido de vivir con el síndrome de Ehlers-Danlos   1. No es tan malo ser espontáneo Cuando era más joven tenía planes y...

Me encanta postres. Su "destacado" escrito al revés. Sólo hay algo para aliviar el de ser capaz de hundir sus dientes en algo dulce. Pero...

Para ponerse al día en el viaje de la enfermedad de Lyme de Alexis, echa un vistazo a la parte 1 de su historia...

Para cualquier persona que todavía está dudando Disautonomía y POTS, yo he llegado con lo que llamo el Challenge Trick Disautonomía Parte. Por favor,...

¿Se ha sentido perdido en su propio cuerpo alguna vez? ¿Alguna vez ha perdido temporalmente su audiencia debido a la masiva sonando en los...

When faced with the unexpected, we often are overwhelmed with fear about of what lies ahead. If you or a loved one have dealt with...

He estado usando los sitios de citas por Internet durante los últimos once años. También he estado tratando con una enfermedad rara y sin...

Puedo parecer "bien" para que en el exterior, pero lo que estoy experimentando en el interior no es "fina". Tengo un par de diferentes formas...

Estoy agradecido por haber sido capaz de abrazar la lucha que tengo contra la terrible enfermedad de la espondilitis anquilosante (EA) y estoy agradecido...

Para muchos, como yo, las vacaciones pueden ser agridulce, ya veces duro. Todos los días, me siento agradecido por las personas que forman parte de...

PW Contributor Angie just blogged about one of the most important messages us in the rare disease world need to hear: The Power of Positivity....

What do you never leave home without? Is it a purse? Your wallet? Keys? Yeah, I have all of those things too. But September through...

The above photo is when Cole arranged a virtual race and Facetimed with Hannah. We were in Ohio walking while Cole and her friend...

This is the last segment of Mariana's medical journey written by Mariana's mother, Carolina. Click here for part one and here for part two. Before...

Dear Ehlers-Danlos Syndrome,  I have been living with you my whole life, but you started to show your ugly face 5 years ago. And during...

Above photo by Sandro Georgi Photography Rob has led an interesting life to say the least. He was in the navy for 20 years and has...

https://www.youtube.com/watch?v=nWI2XuQOrSk In the video above, PW Contributor Rob tells us about working to get an acromegay diagnosis. As he describes: "Acromegaly, unfortunately, a lot of times...

As a mom to a child with a rare disorder I face many challenges everyday. My son's disorder requires me to weigh everything he eats...

When my daughter was born on August 8, 2012 I became a rare mom. I wouldn't know I was until 15 months later, but my little...

I am a Rare Mom! I love that term, because it covers so many different parts of my life. I’m unique, an individual, a working...

Have you ever been worked by your job so hard that you think "I need a vacation!"? I know I have. Have you ever...

God blessed my husband and me with two girls, seven and nine. They are my reasons for living and my reason for fighting cervical...

Editor's Note: Kara LaFrance is an artist and graphic designer fighting acromegaly. She had a late diagnosis at 28 which led to surgery, radiation and...

Liz is living with Cushing's Disease and is on a mission to be happy and well Patient Worthy is so excited to welcome Miss Liz...

Photography by Sandro Georgi Photography Nolan is an incredible person and father who is living with dystonia. He hasn't let the movement disorder hold him back...