One of the complications of COVID-19 is juvenile dermatomyositis (JDM), a connective tissue disease. In the Children's Medical Center in Iran, researchers documented that from Feb of 2020 to Feb…
It's no secret that COVID-19 can cause lingering symptoms, some of which persist for months. In fact, there is a name for those who deal with the lasting symptoms of…
Pfizer’s Regional President for Rare Disease, Reda Guiha, recently offered his opinion to The Parliament magazine about the urgency of what he refers to as the ‘rare disease crisis.’ Pres.…
Written by Kevin Schnurr A renal patient seeks clarity amidst ongoing, conflicting reports. It’s not every day I’m constantly reminded of my status as someone post-organ transplant, but…
In 2020, COVID-19, a novel coronavirus, began impacting the globe. Caused by the SARS-CoV-2 virus, COVID-19 has resulted in 172 million diagnoses and 3.7 million deaths worldwide. While acute kidney…
Altogether, AB Science has been evaluating a tyrosine kinase inhibitor, masitinib, for a variety of conditions including amyotrophic lateral sclerosis (ALS), COVID-19, and mastocytosis. But according to ALS News Today,…
Sobi as well as the Hellenic Institute for the Study of Sepsis have just announced successful results from their SAVE-MORE study for those with COVID-19. The results were from 28…
As COVID-19 makes its way around the globe, scientists are discovering new ways the infection will linger in the months and years to come. As reported in John Hopkins Medicine,…
COVID-19 long-haulers, now called Post-Acute Sequelae of SARS-CoV-2 Infection, or PASC, have often been compared to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). However, there wasn't a study directly comparing these two…
India has been dealing with a harsh second wave of COVID-19, resulting in 300,000 deaths as of Monday, May 24th. Now, there is a new fear for those who have…
Now that there are FDA-approved vaccines for COVID-19, millions are flocking to get their doses. A very small portion of these people are now experiencing myocarditis, and 18-year-old Evan Morud…
Nobody knew how much of an impact COVID-19 would have when it first appeared on the scene. Now, as of May 20, 2021, the novel coronavirus pandemic has led to…
The COVID-19 pandemic has brought attention to a number of different rare conditions as medical professionals worked to understand the virus. Over the course of the last year, we have…
Over the last 15~ months, the world has grappled with the impact of COVID-19, a novel coronavirus. Altogether, COVID-19 has led to over 156 million million cases with an associated…
Professional musicians generally practice several hours every day, but that does not hold true for Reece Jacob, age 29, from Manchester. UK’s Daily Mail recently carried an article about Reece…
Recently, there have been a number of reports of mucormycosis, a rare but sometimes fatal fungal infection, spreading throughout hospitals in India. According to MSN, the fungal illness is becoming…
According to a recent article in MedicalXpress, researchers at Houston Methodist have reported acute transverse myelitis (ATM) in forty-three COVID-19 patients across twenty-one countries. Spinal cord lesions developed in these…
Quarantine during COVID-19 has been difficult for everyone. It's socially isolating, mentally draining, and physically limiting. We all find community different places. But no matter where we find it, it…
Is it or was it COVID? That is the question doctors and parents are asking as the number of children admitted to the hospital for a rare pediatric inflammatory…
British researchers recently conducted a study of 235,379 COVID-19 survivors over a six-month period after they survived their initial infection. The researchers discovered that one out of three patients…
In a case study published on dovepress.com, a 17 year old girl diagnosed with COVID-19 developed Guillain-Barre syndrome, a neurological disease causing muscle weakness, as her symptoms progressed. While COVID-19…
According to a story from insidesources.com, many in the chronic fatigue syndrome/myalgic encephalomyelitis community has been very grateful for the news that the National Institutes of Health (NIH) has committed…
Over the past 14 or so months, COVID-19 has dominated the headlines. It has reshaped the way that we work, attend school, build relationships with others, and receive medical treatment.…
According to a story from PR Newswire, Solve M.E. is gathering virtually on Capitol Hill for its 5th Annual Advocacy Week, starting April 19th. A record number of people are…
The Johnson & Johnson (J&J) vaccine was welcomed as the third alternative to Moderna and Pfizer vaccines but with even more perks. It was a one-time shot that used “viral…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
