Immunocompromised During COVID-19? Not Much Has Changed in the Lives of Many Rare Patients

Relapsing polychondritis is a rare disease which causes damage to the cartilage, trachea, and lungs. It's an autoimmune condition meaning an overzealous immune response causes the body to attack its own…

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Building Community Among Children with Rare Diseases: The Fighting H.A.R.D. Foundation

The Fighting HARD Foundation Rare diseases are difficult to face for a myriad of reasons. They can be financially burdensome, physically painful, and emotionally draining. Further, they can make patients…

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The Future of Inflammatory Bowel Disease Treatment: A Personalized and Optimized Algorithm
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The Future of Inflammatory Bowel Disease Treatment: A Personalized and Optimized Algorithm

According to a story from Healio, Dr. Adam Cheifetz recently spoke about treatment for inflammatory bowel disease (IBD) at GUILD Conference 2020. He says that it is time for each…

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27th UEG Week: Anti-TNF-α Therapy as a Treatment for Inflammatory Bowel Disease
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27th UEG Week: Anti-TNF-α Therapy as a Treatment for Inflammatory Bowel Disease

  The 27th United European Gastroenterology Week took place in Barcelona, Spain in October, at which some of the leading experts in gastroenterology spoke about their field. One of the…

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Study: Inflammatory Bowel Disease Makes Young People Five Times More Likely to Develop Infections
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Study: Inflammatory Bowel Disease Makes Young People Five Times More Likely to Develop Infections

  A new study has found that young people who have inflammatory bowel disease (IBD) are five times more likely to develop an infection than the general population. They also…

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Dayton, OH Crohn’s and Colitis Live Patient Program

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Speakers: Emily Ankrom, PA-C, Digestive Specialists Dan, living with moderate CD Learn More About a Treatment Option for Adults with Moderate to Severe Ulcerative Colitis and Crohn’s Disease Register to…

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Bellevue, WA Crohn’s and Colitis Live Patient Program

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Speakers: Laura Larson, PA-C, Western Washington Medical Group Michelle, living with moderate CD Learn More About a Treatment Option for Adults with Moderate to Severe Ulcerative Colitis and Crohn’s Disease…

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Manhattan, NY Crohn’s and Colitis Live Patient Program

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Speakers: Michele Kissous-Hunt, PA, Fifth Avenue GI Michelle, living with moderate CD Learn More About a Treatment Option for Adults with Moderate to Severe Ulcerative Colitis and Crohn’s Disease Register…

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As the Rate of Ulcerative Colitis Diagnoses Grows, its Clear More Research is Needed

Inflammatory Bowel Disease Inflammatory bowel disease (IBD) is actually a term used to classify a few different conditions. Two of these are Crohn's disease and ulcerative colitis.  These are rare…

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Researchers Find Success in Precision Cutting as a Exciting New Treatment for Inflammatory Bowel Disease

As reported in EurekAlert, an exciting new treatment method has entered the conversation to treat inflammatory bowel disease (IBD). Researchers have successfuly used mice population to show that precision cutting…

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Canadian Study Indicates That Prescribing Practices of Infliximab for Ulcerative Colitis Need Amendment

Inflammatory Bowel Diseases Inflammatory bowel diseases (IBD) is the overarching term for both ulcerative colitis and Crohn's disease. In Canada, there are around 270,000 individuals living with the one of…

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Two Sisters with Rare Conditions Founded The Fighting H.A.R.D. Foundation to Help Other Patients Feel Less Alone

The Origins of Fighting H.A.R.D. The Fighting H.A.R.D. Foundation was established in 2015 by two sisters who both live with multiple rare diagnoses. 16-year-old Allie is diagnosed with juvenile rheumatoid…

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Innovative New Test Could Allow for Inflammatory Bowel Disease Patients to Receive More Personalized Treatment
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Innovative New Test Could Allow for Inflammatory Bowel Disease Patients to Receive More Personalized Treatment

According to a story from EurekAlert!, a team of scientists affiliated with the University of Cambridge have pioneered a new test that could herald a new development in the treatment…

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