The 2017 Rare Neuro-Immune Disorders Symposium is Quickly Approaching This October!
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The 2017 Rare Neuro-Immune Disorders Symposium is Quickly Approaching This October!

On October 20th and 21st, the 2017 Rare Neuro-Immune Disorders Symposium (RNDS) will be held in Columbus, Ohio. The event is meant to bring together patients, families, researchers, and all…

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If You Are Attending a World Federation of Hemophilia Event, You Could Be Eligible for This Scholarship!
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If You Are Attending a World Federation of Hemophilia Event, You Could Be Eligible for This Scholarship!

The Susan Skinner Memorial Fund (SSMF) Scholarship was created to help foster the education of the newest generation of bleeding disorder advocates and researchers. Two scholarships are being offered this…

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Got Primary Immunodeficiency? Get Out of Town in July, Teenager!
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Got Primary Immunodeficiency? Get Out of Town in July, Teenager!

Chances are if you have a primary immunodeficiency disorder, you don’t live near other teens with your same diagnosis. No one else gets what you’re going through. You may have…

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The 2017 Cystinosis Research Network Family Conference is Coming Soon!
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The 2017 Cystinosis Research Network Family Conference is Coming Soon!

The Cystinosis Research Network (CRN) is a non-profit dedicated to supporting individuals and families affected by cystinosis. They are strong advocates for research who simultaneously focus on improving the lives…

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