According to a story from the FH Foundation, the non-profit organization has released a vital consensus statement regarding the diagnosis of familial hypercholesterolemia, which is the most prevalent genetic cause…
According to a story from Cardiovascular Business, The FH Foundation, which is a frontrunning patient advocacy and research organization for familial hypercholesterolemia, recently announced that it has begun enrollment for…
A healthy diet and a good exercise regimen go a long way towards maintaining good health. When health care professionals recommend this combination they’re usually trying to keep dangerous diseases…
According to a story from Charcot Marie Tooth News, a small subdivision of the National Institutes of Health (NIH) is leaning into its role to assist with research into rare…
An article from SRN News is reporting that a lot of people with familial hypercholesterolemia are going through life without getting the treatments that could help them, such as statins.…
According to a story from PR Newswire, the pharmaceutical companies Sanofi and and Regeneron Pharmaceuticals are implementing a plan to make Praluent injections more accessible and affordable for patients with…
According to a story from the Baylor College of Medicine Blog Network, Terry Lim, a women with familial hypercholesterolemia, views her condition with a new perspective after participating in a…
Madrigal Pharmaceuticals recently brought a new familial hypercholesterolemia drug to clinical endpoint. The drug is currently being tested as MGL-3196. Here's what you need to know about the new drug.…
According to a story from Bioportfolio, trials testing the treatment inclisiran are reaching their enrollment goals ahead of schedule. Inclisiran is currently being tested to reduce LDL-cholesterol in a variety…
December and January can be busy months with all the running around and family activities. Before your calendar fills up with holiday happenings, the Familial Hypercholesterolemia Foundation (FHF) wants you…
Can increasing awareness and early screenings have an impact on heart health in Canada? When it comes to familial hypercholesterolemia (FH), Vancouver’s top medical advisors believe it can, according to…
In the ultimate feat of recycling, scientists at UCLA and the Howard Hughes Medical Institute have re-purposed the LeXis gene as a cholesterol-lowering agent. A recent press release issued by…
How does one raise awareness? Shouting on the street corner might work for a few hundred, or maybe even a few thousand, depending on how busy the corner is that…
The eternal struggle of finding a treatment that works for you is a complex and infuriating process (as evidenced by a Managed Health Executive article). Not everyone’s body responds to…
Only 1 in every 250 people have familial hypercholesterolemia (FH) worldwide and it is widely underdiagnosed with more than 90% of people not knowing they have it. In fact, according…
The heart-breaking story of baby Charlie Gard, who recently died of a rare genetic condition called encephalomyopathic mitochondrial DNA depletion syndrome, touched the lives of families around the world. Although…
At 54 years of age, Kathleen was healthy and physically fit. She knew about her grandfather’s death at the age of 30 to a heart attack. She also knew about…
Mended Hearts is a nonprofit group that helps bring hope to heart disease patients, caregivers and families. In Alabama specifically, the local Mended Hearts group had not been active for…
The Familial Hypercholesterolemia Foundation's main mission is to raise awareness of familial hypercholesterolemia (FH) to the public. As part of this goal, the FH Foundation annually hosts Familial Hypercholesterolemia Awareness…
Acute diagnosis is the Holy Grail for all illnesses and conditions. But what if you could predict the likelihood that you would develop a deadly disease and take steps to…
According to some Finnish researchers, children with heterozygous familia hypercholesterolemia (HeFH) should use statins as a treatment with caution. Though they have proven to be able to lower lipid levels…
Halloween is here! The night known for indulging and splurging on candy. For some people this may not be an option though, for instance people with familial hypercholesterolemia. Eating a…
We all know that receiving a rare disease diagnosis brings along a whole wave of emotions. Relief, anger and fear are just a few. It's very common for people to…
Most people know that high cholesterol is a ticking time bomb, and that it’s important to eat heart healthy foods low in saturated fat and cholesterol. Public health awareness—and the…
I love 2001: A Space Odyssey as much as the next person, but sorry, not sorry, despite what it and so many other movies would lead you to think, the…
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
