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gastroparesis

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Meet the Mom Fundraising for her Two Adult Children with Rare Diseases

Meet the Mom Fundraising for her Two Adult Children with Rare Diseases

  • Post author:Patient Worthy Contributor
  • Post published:June 14, 2018
  • Post category:Cerebral Palsy/Dandy Walker variant/Gastroparesis/Rare Disease/Rett Syndrome

I am a caregiver mom to my two special needs, young adult, rare disease kids. I am also a recent widow; previously, I was a caregiver wife to my very…

Continue Reading Meet the Mom Fundraising for her Two Adult Children with Rare Diseases
PDUFA Fee Waived for Gastroparesis Treatment
source: pixabay.com

PDUFA Fee Waived for Gastroparesis Treatment

  • Post author:James Moore
  • Post published:March 12, 2018
  • Post category:Gastroparesis

According to a story from Financial Buzz, the pharmaceutical company Evoke Pharma announced that the U.S. Food and Drug Administration has approved a small business waiver for Gimoti, a nasally…

Continue Reading PDUFA Fee Waived for Gastroparesis Treatment
Is This the “Smart” Way to a Gastroparesis Diagnosis?
[Source: pixabay.com]

Is This the “Smart” Way to a Gastroparesis Diagnosis?

  • Post author:Chloe Easterbrook
  • Post published:October 5, 2017
  • Post category:Gastroparesis

Smart cars can apply the brakes for us. Smartphones can pay bills for us. Smartwatches measure blood pressure, temperature, and heart rates, as well as the passage of time. Now,…

Continue Reading Is This the “Smart” Way to a Gastroparesis Diagnosis?
Crowd-Sourced Gastroparesis Information Can Be Useful for Discerning Readers
[Source: pixabay.com]

Crowd-Sourced Gastroparesis Information Can Be Useful for Discerning Readers

  • Post author:Al Pendleton
  • Post published:October 4, 2017
  • Post category:Gastroparesis

There is a definitive group of people out there who love to hate on message boards and crowd-sourced information websites, like wikis. Their chief complaint is that anyone can put…

Continue Reading Crowd-Sourced Gastroparesis Information Can Be Useful for Discerning Readers
What Stands in the Way of Gastroparesis Drug Development?
[Source: pixabay.com]

What Stands in the Way of Gastroparesis Drug Development?

  • Post author:Al Pendleton
  • Post published:October 3, 2017
  • Post category:Gastroparesis

Developing drugs for the myriad diseases that afflict humans is a complicated process. Of course, the chemistry behind developing said drugs is complex. However, deciding what diseases and dysfunctions to…

Continue Reading What Stands in the Way of Gastroparesis Drug Development?
Veronika’s Story of Living with Gastroparesis Will Inspire You
Source: Pixabay

Veronika’s Story of Living with Gastroparesis Will Inspire You

  • Post author:Samuel Sachs
  • Post published:September 7, 2017
  • Post category:Gastroparesis

Veronika was diagnosed with gastroparesis as a young girl. The cause was unknown. Her symptoms were demoralizing. Veronika found ways to stay positive and combat her illness. Read more below,…

Continue Reading Veronika’s Story of Living with Gastroparesis Will Inspire You
Advice From One Woman with Gastroparesis: Be Your Biggest Advocate
source: pixabay.com

Advice From One Woman with Gastroparesis: Be Your Biggest Advocate

  • Post author:Octavia Walker
  • Post published:September 6, 2017
  • Post category:Gastroparesis

The International Foundation for Functional Gastrointestinal Disorders website has a section where patients can share their story. Hollie's story is one of the featured stories. Her story starts in 2009…

Continue Reading Advice From One Woman with Gastroparesis: Be Your Biggest Advocate
High Hopes for This Gastroparesis Treatment
Source: pixabay.com

High Hopes for This Gastroparesis Treatment

  • Post author:Athena Lee
  • Post published:August 10, 2017
  • Post category:Gastroparesis/Rare Disease

Theravance Biopharma recently proudly announced the results of a successful Phase 2b trial for their gastroparesis treatment, Velusetrag. The results showed that this treatment safely and effectively improved symptoms and normalized…

Continue Reading High Hopes for This Gastroparesis Treatment
It’s August… Which Means It’s Gastroparesis Awareness Month!
Source: pixabay.com

It’s August… Which Means It’s Gastroparesis Awareness Month!

  • Post author:Athena Lee
  • Post published:August 9, 2017
  • Post category:Gastroparesis/Rare Disease

August signifies the beginning of the end of the summer season and the start of school again, but it is also a month of spreading awareness. Specifically, gastroparesis awareness. Gastroparesis is…

Continue Reading It’s August… Which Means It’s Gastroparesis Awareness Month!
Editor’s Choice: Orkambi Shouldn’t be a Pie in the Sky for UK Patients

Editor’s Choice: Orkambi Shouldn’t be a Pie in the Sky for UK Patients

  • Post author:Patient Worthy Contributor
  • Post published:June 30, 2017
  • Post category:Cystic Fibrosis/Gastroparesis/Guttate Psoriasis/Rare Disease

Happy Independence Day Weekend Everyone! We have the latest update on the UK cystic fibrosis fight for Orkambi. We also have a great contribution on the importance of taking care…

Continue Reading Editor’s Choice: Orkambi Shouldn’t be a Pie in the Sky for UK Patients
How a Pacemaker Can Help Patients with Gastroparesis
https://pixabay.com/en/eat-carrots-peas-healthy-of-course-547511/

How a Pacemaker Can Help Patients with Gastroparesis

  • Post author:Trudy Horsting
  • Post published:June 27, 2017
  • Post category:Gastroparesis/Rare Disease

Gastroparesis causes paralysis of the stomach. It basically means the stomach doesn’t understand its job, and can’t digest food properly. This causes extreme discomfort (to say the least) for gastroparesis…

Continue Reading How a Pacemaker Can Help Patients with Gastroparesis
Boston Red Sox Take a Pie in the Face for Gastroparesis
https://pixabay.com/en/whipped-cream-cake-face-people-man-814218/

Boston Red Sox Take a Pie in the Face for Gastroparesis

  • Post author:Trudy Horsting
  • Post published:June 27, 2017
  • Post category:Gastroparesis/Rare Disease

Andrew Belliveau started the Pie Face Challenge in July of 2016 in order to raise awareness for gastroparesis and stimulate accelerated research for the disease. He took inspiration from the…

Continue Reading Boston Red Sox Take a Pie in the Face for Gastroparesis
Get Out There and Do the Fun Thing for Dysautonomia!

Get Out There and Do the Fun Thing for Dysautonomia!

  • Post author:EmpatheticBadass
  • Post published:July 8, 2016
  • Post category:Dysautonomia/Rare Disease/Timely

Calling all residents of the Mitten State (also known as Michigan) who live with, or care about, someone suffering from dysautonomia or gastroparesis! Sunday, July 10th is the time to party…

Continue Reading Get Out There and Do the Fun Thing for Dysautonomia!
Conozcamos a Melissa: La Panadera Altruista con Gastroparesia

Conozcamos a Melissa: La Panadera Altruista con Gastroparesia

  • Post author:Patient Worthy Contributor
  • Post published:February 12, 2016
  • Post category:Rare Disease

Conoce a Melissa, una esposa, madre y abogada. Patient Worthy entrevistó a Melissa sobre su #InvisibleIllness - gastroparesia. Hace casi dos años, no-bienvenida y sin previo aviso, la gastroparesia entró…

Continue Reading Conozcamos a Melissa: La Panadera Altruista con Gastroparesia
Viviendo con una Enfermedad Rara: No Estas Solo

Viviendo con una Enfermedad Rara: No Estas Solo

  • Post author:Patient Worthy Contributor
  • Post published:January 26, 2016
  • Post category:Rare Disease

Hace 13 años, después de haber sido diagnosticado con una enfermedad crónica, Lisa Copen no podía dormir. Ella estaba tratando de encontrar la manera de manejar su nueva normalidad. Ella…

Continue Reading Viviendo con una Enfermedad Rara: No Estas Solo
Living with a Rare Disease: You are not Alone

Living with a Rare Disease: You are not Alone

  • Post author:Patient Worthy Contributor
  • Post published:October 4, 2015
  • Post category:Rare Disease

13 years ago, after being diagnosed with a chronic illness, Lisa Copen couldn’t sleep.  She was trying to figure out how to manage her new normal. She just wanted to…

Continue Reading Living with a Rare Disease: You are not Alone
Meet Melissa: The Selfless Baker

Meet Melissa: The Selfless Baker

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2015
  • Post category:Rare Disease

Meet Melissa, a wife, mother and advocate. Patient Worthy interviewed Melissa about her #InvisibleIllness - gastroparesis. Almost two years ago, un-welcomed and without warning, gastroparesis enetered Melissa's life. “I was fine one day…

Continue Reading Meet Melissa: The Selfless Baker
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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