5 Questions I Ask Myself at Thanksgiving with Rare Disease
Thanksgiving is a time of gratitude, family and maybe a little gluttony. It was always my favorite time of the year in high school and college. Now, while I still…
Thanksgiving is a time of gratitude, family and maybe a little gluttony. It was always my favorite time of the year in high school and college. Now, while I still…
Thanksgiving is a time of gratitude, family and maybe a little gluttony. It was always my favorite time of the year in high school and college. Now, while I still…
As much as there is so much to talk about regarding dating while battling a chronic illness, I want to focus for a moment on what my long-term boyfriend has…
This is part 2 of Leah's story, click here to read part 1 Leah listened as the doctor explained that her body couldn’t continue to be overexposed in addition to…
As Leah approached her late twenties she was, in her own words, a “tank.” She kept up with her ex-Marine husband’s work outs and ran every day. She was the…
When I was undergoing a tough treatment and reeling from the death of my God-sister, I was definitely down in the dumps. I couldn't really walk and I was hooked…
Lately, I've been thinking the three B’s of burgers, beaches, and cold beverages—my to-do list at the start of warmer weather. Along with outdoor fun, though, health and science experts…
Para ponerse al día en el viaje de la enfermedad de Lyme de Alexis, echa un vistazo a la parte 1 de su historia aquí. "En mi línea de trabajo,…
Welcome to this week's Editor's Choice! Mysthenia Gravis has to be treated delicately, as it's unpredictable and often incredibly painful. That's why the blogger we've highlighted below wants you to…
Okay, you guys, I got a boyfriend! I didn’t think it was possible. I mean, if you have at all been reading my posts through my site TheSickandtheDating.com, you know…
The side effects of Lyme disease treatment can be incredibly painful. One side effect is called herxing, also known as the Herxheimer Reaction, which is the body’s reaction to detoxification. This…
If you or someone you know and love has Lyme, then you know how important it is for the medical community to have as much information as possible about it. Senator…
A lot of people's journey to their Lyme diagnoses starts because they thought they had the flu. The symptoms for Lyme can be wildly contrasting, and two separate cases can look…
Antes de que me diagnosticaran oficialmente con el síndrome de taquicardia postural ortostática (POTS, por sus siglas en ingles), pensaba que los síntomas extraños eran una parte de mí ser.…
Here at Patient Worthy, we can't stress enough how important it is for patients to advocate for themselves. With rare disease, you often have to fight for a diagnosis. But…
Fact: I donated blood before I knew I had Lyme disease, possibly contaminating whoever recieved my donation. I immediately felt guilty once I learned of my diagnosis, even though I had…
Are you a caregiver or support person of someone with a rare disease? If so, then you know the profound effect chronic illness like Lyme can have on the patient and…