Tips by a Myelodysplastic Syndromes Patient on How to Navigate the Internet When Researching Your Rare Disease

Jane Biehl Jane Biehl has worked as a professor, rehabilitation counselor, and a librarian. She holds three different degrees, and spreads her knowledge through freelance writing. She also has a…

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The New 5F9 Antibody Looks Encouraging as it Targets MDS and AML Leukemia in a Phase 1b Clinical Trial

  The California Institute for Regenerative Medicine (CIRM) has funded a study by a company called Forty Seven, Inc. The clinical trial is investigating the benefits of a drug therapy for two cancers…

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Immunotherapy Elicits Positive Response in Acute Myeloid Leukemia and Myelodysplastic Syndromes Patients
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Immunotherapy Elicits Positive Response in Acute Myeloid Leukemia and Myelodysplastic Syndromes Patients

According to a story from mdmag.com, a recent study that was presented at the 2019 meeting of the American Society of Clinical Oncology has demonstrated the potential of a two…

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The Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, PNH Conference

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The 2019 Living With Aplastic Anemia, MDS, PNH Patient and Family Conference This unique conference, which will be held in Albuquerque, New Mexico is an exceptional opportunity for patients with aplastic…

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New Phase I/II Trial for Myelodysplastic Syndrome, Acute Myeloid Leukemia, and Multiple Myeloma is Now Underway!

The very first patient in Medigene AG's clinical trial examining MDG1011 has officially received the treatment. This is the company's first human clinical trial for this TCR therapy. The trial…

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Upcoming FREE MDS Event in Florida!

Our partner, The MDS Foundation is sponsoring another free MDS Patient & Family/Caregiver Forum. This forum will take place in Jacksonville, Florida When: Saturday, March 30th, 2019 Where: Mayo Clinic Cancer…

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A New Phase II Trial for Myelodysplastic Syndromes and Acute Myeloid Leukemia is Underway!
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A New Phase II Trial for Myelodysplastic Syndromes and Acute Myeloid Leukemia is Underway!

Myelodysplastic syndromes (MDS) is the name used to describe a group of stem cell disorders in which the body can't produce an adequate amount of platelets and blood cells. Currently,…

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Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, or PNH Patient Conference in Miami

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Living with Aplastic Anemia, MDS, or PNH Patient Conference Join us and connect with patients, families, and caregivers who are living with aplastic anemia, PNH, MDS, and AML.  Meet and hear top medical experts…

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Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, or PNH Patient Conference in Los Angeles

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Living with Aplastic Anemia, MDS, or PNH Patient Conference Join us and connect with patients, families, and caregivers who are living with aplastic anemia, PNH, MDS, and AML.  Meet and hear top medical experts…

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Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, or PNH Patient Conference in Providence, RI

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Living With Aplastic Anemia, MDS, or PNH Join us and connect with patients, families, and caregivers who are living with aplastic anemia, PNH, MDS, and AML.  Meet and hear top medical experts discuss…

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Welcome AAMDS, a New Patient Worthy Advocacy Partner!

We're happy to introduce a new partner to Patient Worthy's mission of advocating for rare disease patients! The Aplastic Anemia and MDS International Foundation (AAMDS) supports, connects and educates patients, caregivers…

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Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference

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A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more…

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Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference

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A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more…

Continue Reading Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference