medical gaslighting – Patient Worthy

Rare Community Profiles: #RAREis: Increasing Medical Access and Equity for the Hispanic Community through The Akari Foundation’s Initiatives

Post author:Jessica Lynn
Post published:June 6, 2024
Post category:Duchenne Muscular Dystrophy

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

source: shutterstock.com

Infantile Spasms: Mom Saves Baby’s Life After Being Dismissed by Two Hospitals

Post author:Rose Duesterwald
Post published:November 9, 2023
Post category:Infantile Spasms Infantile spasms broad thumbs

Imagine the frustration of Faustina Cavero, unable to follow her maternal instincts that told her something was wrong with her baby. Doctors at two different hospitals disagreed with her and…

source: shutterstock.com

The Rare Fair 2023: We Need to Talk About Medical Gaslighting

Post author:James Moore
Post published:October 3, 2023
Post category:Rare Disease

From September 7-9, 2023, the Rare Fair was held in Research Triangle Park, North Carolina, and was also available for attendance online. This event began in 2018 and has been spearheaded by The Dash…

source: pixabay.com

Rare Community Profiles: Empathy through Art: A Mission to Raise Hypoparathyroidism Awareness

Post author:Jessica Lynn
Post published:July 19, 2023
Post category:hypoparathyroidism

Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

https://pixabay.com/en/book-heart-love-grains-sand-sea-2115176/

Rare Community Profiles: Shantel S. and Shriners Children’s are Transforming the Way We Understand Arthrogryposis Multiplex Congenita (AMC)

Post author:Jessica Lynn
Post published:June 20, 2023
Post category:Arthrogryposis Multiplex Congenita Timely

Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

source: shutterstock.com

Rare Community Profiles: How Stephanie’s Desmoid Tumor Journey Inspired Her Fight Against Medical Gaslighting

Post author:Jessica Lynn
Post published:April 20, 2023
Post category:Desmoid tumor

Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Photo courtesy of Pari Schroeder

A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 2)

Post author:Jessica Lynn
Post published:March 3, 2023
Post category:Ehlers Danlos Syndrome Ehlers-Danlos Syndrome Eosinophilic Esophagitis

Make sure to check out Part 1 of the Schroeder family's story before reading further. CURED Currently, the Schroeder family is doing as well as they can to manage and to ensure…

Rare Community Profiles: #RAREis: Increasing Medical Access and Equity for the Hispanic Community through The Akari Foundation’s Initiatives

Infantile Spasms: Mom Saves Baby’s Life After Being Dismissed by Two Hospitals

The Rare Fair 2023: We Need to Talk About Medical Gaslighting

Rare Community Profiles: Empathy through Art: A Mission to Raise Hypoparathyroidism Awareness

Rare Community Profiles: Shantel S. and Shriners Children’s are Transforming the Way We Understand Arthrogryposis Multiplex Congenita (AMC)

Rare Community Profiles: How Stephanie’s Desmoid Tumor Journey Inspired Her Fight Against Medical Gaslighting

A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 2)

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