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Dimebag Darrell Guitar for Man with Williams Sydrome
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Dimebag Darrell Guitar for Man with Williams Sydrome

  • Post author:Kendall Mason
  • Post published:January 10, 2022
  • Post category:Williams Syndrome

2021 was a hectic, record-breaking, and all around stressful year. Now that it's 2022, I think it's time to start the year with a positive story. According to an article…

Continue Reading Dimebag Darrell Guitar for Man with Williams Sydrome
“I Have a Voice:” Uniting the Spasmodic Dysphonia Community Through Song
Source: Pixabay.com

“I Have a Voice:” Uniting the Spasmodic Dysphonia Community Through Song

  • Post author:Jessica Lynn
  • Post published:October 12, 2021
  • Post category:Spasmodic Dysphonia

From October 7-11, 2021, the National Spasmodic Dysphonia Association (NSDA) is holding their 2nd annual Walk for Talk fundraiser to help raise awareness around, and funds for, spasmodic dysphonia, a chronic…

Continue Reading “I Have a Voice:” Uniting the Spasmodic Dysphonia Community Through Song
Singer-Songwriter Discusses Experience with Transient Global Amnesia
Pixabay

Singer-Songwriter Discusses Experience with Transient Global Amnesia

  • Post author:Jessica Lynn
  • Post published:September 14, 2021
  • Post category:Transient Global Amnesia

Art and music reflect the way that we feel and the experiences we go through. For singer-songwriter Rodney Crowell, his music reflects immersive topics like love, repentance, and health. In…

Continue Reading Singer-Songwriter Discusses Experience with Transient Global Amnesia
Singer with Trigeminal Neuralgia Releases New Single
Source: www.pixabay.com

Singer with Trigeminal Neuralgia Releases New Single

  • Post author:Jessica Lynn
  • Post published:September 14, 2021
  • Post category:Trigeminal neuralgia/Trigeminal Neuralgia (Tic Douloureux)

  Cait Devin has always been entranced with music. This vocalist and guitarist, now 20 years old, released her first album in 2020, and is currently working on new music.…

Continue Reading Singer with Trigeminal Neuralgia Releases New Single
How Singing Helps This Woman Manage Her Spinal Muscular Atrophy
source: pixabay.com

How Singing Helps This Woman Manage Her Spinal Muscular Atrophy

  • Post author:Kendall Mason
  • Post published:May 6, 2021
  • Post category:Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a rare, genetic disorder that impacts the muscles, making them progressively weaker over time. To combat this muscle atrophy, patients must exercise their muscles to…

Continue Reading How Singing Helps This Woman Manage Her Spinal Muscular Atrophy
Singer with Benign Rolandic Epilepsy (BRE) Releases New Single
Didgeman / Pixabay

Singer with Benign Rolandic Epilepsy (BRE) Releases New Single

  • Post author:Jessica Lynn
  • Post published:January 22, 2021
  • Post category:Benign rolandic epilepsy (BRE)

Have you ever heard a song and heavily related to it? As though it was speaking directly to you? This is how I felt when I first heard German singer-songwriter…

Continue Reading Singer with Benign Rolandic Epilepsy (BRE) Releases New Single
Pre-Order “Thousand Years” from Singer Marc Cotterill, Inspired by His Cystic Fibrosis Experience

Pre-Order “Thousand Years” from Singer Marc Cotterill, Inspired by His Cystic Fibrosis Experience

  • Post author:Jessica Lynn
  • Post published:July 10, 2020
  • Post category:Cystic Fibrosis

  At one point in his journey with cystic fibrosis, Marc Cotterill experienced a rapid loss in lung function. In fact, it dropped to just 29%. As his health worsened,…

Continue Reading Pre-Order “Thousand Years” from Singer Marc Cotterill, Inspired by His Cystic Fibrosis Experience
Teen Born Without a Jaw Is Now a Rapper: A Profile in Resilience
Source: Pixabay

Teen Born Without a Jaw Is Now a Rapper: A Profile in Resilience

  • Post author:Jean Martell
  • Post published:December 4, 2017
  • Post category:Rare Disease

I want to be Isaiah Acosta when I grow up. The 17 year-old from Phoenix, Arizona was born without a jaw, due to the very rare disease situs inversus, which…

Continue Reading Teen Born Without a Jaw Is Now a Rapper: A Profile in Resilience
My Lyme Disease Playlist
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My Lyme Disease Playlist

  • Post author:Patient Worthy Contributor
  • Post published:May 13, 2016
  • Post category:Rare Disease

I had a sneaking suspicion that I was sick before any doctors diagnosed me with chronic, late-stage Lyme disease. The following playlist pretty much spells out my journey from feeling…

Continue Reading My Lyme Disease Playlist
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney Cancerhttps://patientworthy.com/2026/01/20/finding-strength-together-scott-and-katies-journey-with-advanced-kidney-cancer/
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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