According to a story from ANCA Vasculitis News, the month of May is recognized as Vasculitis Awareness Month, a time for spreading awareness about vasculitis among the general public and…
The month of May is recognized as Myositis Awareness Month, a time to play your part in spreading awareness about myositis among the general public and in the medical community.…
Diabetes impacts many of the body's systems because it's an endocrine disorder. People with diabetes have trouble regulating their internal body temperature. As part of this, those with diabetes may…
New research has demonstrated the importance for understanding risks of bleeding, cardiovascular issues, nonadherence (due to the twice a day dosing), as well as gastrointestinal AE's when deciding to use…
The month of May is recognized as Guillain-Barré syndrome (GBS) and chronic inflammatory demyelinating polyneuropathy (CIDP) awareness month, a time set aside to spread awareness about these rare conditions among…
The month of May is recognized as International Behçet's Awareness Month and May 20th is Behçet's Awareness Day. This is a special time for spreading awareness about Behçet's disease among…
May 16 is recognized each year as HAE Day, a day dedicated to spreading awareness among the general public and the medical community about hereditary angioedema (HAE), a rare disease.…
A team of great researchers need your help! While the researchers who devised this survey (see below for the link) have had a great response from people with Mal de…
According to a story from MSN, 73 year old Ronnie Wood of the Rolling Stones recently discussed in an interview his struggle with small cell lung cancer during the COVID-19…
Quarantine during COVID-19 has been difficult for everyone. It's socially isolating, mentally draining, and physically limiting. We all find community different places. But no matter where we find it, it…
Brickell Biotech has just announced the findings from their Phase 3 study investigating the long-term efficacy and safety of sofpironium bromide gel for the treatment of primary axillary hyperhidrosis. Hyperhidrosis…
According to a story from MSN, basketball player LaMarcus Aldridge of the Brooklyn Trail Blazers has made the fateful decision to retire due to concerns about an irregular heartbeat he…
According to a story from apnews.com, the biopharmaceutical company FibroGen, Inc., has recently announced that its investigational treatment pamrevlumab has earned Rare Pediatric Disease designation from the US Food and…
Is it or was it COVID? That is the question doctors and parents are asking as the number of children admitted to the hospital for a rare pediatric inflammatory…
British researchers recently conducted a study of 235,379 COVID-19 survivors over a six-month period after they survived their initial infection. The researchers discovered that one out of three patients…
Growth hormone deficiency (GHD) influences patients both physically and mentally. The condition means patients' bodies don't produce enough growth hormone. As a result, they don't develop the same way as…
A study published in the Journal of Clinical Oncology has detailed the benefits of different forms of treatment for pediatric patients with adrenocortical carcinoma. These researchers particularly looked at what treatments…
Retinitis Pigmentosa Retinitis Pigmentosa is a rare condition which progressively causes vision loss. Genetic lesions which first affect the rod photoreceptors first cause vision loss at night. Next, cone photoreceptors are…
VISEN Pharmaceuticals has recently announced that enrollment has been completed for their Phase 3 clinical trial examining the safety and efficacy of TransCon hGH compared to daily rhGH in patients…
The Rare Disease Legislative Advocates (RDLA) held its monthly webinar on April 22, 2021. In this informational webinar, the organization featured several speakers who provided updates on some of the…
According to a story from PR Newswire, Solve M.E. is gathering virtually on Capitol Hill for its 5th Annual Advocacy Week, starting April 19th. A record number of people are…
According to a story from dailymail.co.uk, 59 year old Marcia Ferguson-Roa recently died only a few weeks after unusual symptoms, such as fatigue and ulcers on her head, began to…
In a press release, the independent specialty pharmacy Biologics by McKesson recently announced that it has been selected to the be the sole provider of fosdenopterin (marketed as NULIBRY) by…
The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is gearing up to recognize International FOP Awareness Day this year on April 23, 2021. The event is meant to help spread awareness…
According to a story from globenewswire.com, the clinical company Prothena Corporation plc recently presented encouraging results from its phase 1 clinical trial. This trial was evaluating its investigational product candidate…
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