Recent Surveys Show What Patients Really Think About Their Standard of Care
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Recent Surveys Show What Patients Really Think About Their Standard of Care

An organisation called PatientsLikeMe that helps to represent patients to governments and pharmaceutical companies has published a press release about the results of two recent studies designed to define and…

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Simple Bedside Test May Help Doctors Diagnose Certain Degenerative Brain Diseases
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Simple Bedside Test May Help Doctors Diagnose Certain Degenerative Brain Diseases

Neurologists working at the NYU School of Medicine have developed a test that can identify some rare degenerative brain diseases, reports NYU Langone Health. Published in the Annals of Neurology…

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Parkinson’s Disease Advocates Will Converge in DC For The Parkinson’s Policy Forum
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Parkinson’s Disease Advocates Will Converge in DC For The Parkinson’s Policy Forum

According to a story from markets.financialcontent.com, approximately 300 Parkinson's disease advocates and disease experts are slated to meet in Washington, DC for the Parkinson's Policy Forum. This year, the event…

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A Unique Experimental Treatment Just Got Orphan Drug Designation for Huntington’s Disease
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A Unique Experimental Treatment Just Got Orphan Drug Designation for Huntington’s Disease

According to a story from Morningstar, the pharmaceutical company Emerald Health Pharmaceuticals announced that its drug candidate EHP-102 was given Orphan Drug Designation by the U.S Food and Drug Administration…

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Transcranial Magnetic Stimulation Isn’t Helping Treat Depression Associated With Parkinson’s
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Transcranial Magnetic Stimulation Isn’t Helping Treat Depression Associated With Parkinson’s

According to an article from Parkinson's News Today, a recent analysis testing transcranial magnetic stimulation demonstrated that the procedure was not effective in treating the depression that is a common…

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How Many of these Celebrities with Rare Diseases Can You Name?
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How Many of these Celebrities with Rare Diseases Can You Name?

If you have a rare disease, chances are, sometimes you feel all alone in your experience. When you look around, there are people all over the world fighting similar battles.…

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German Scientists Find Possible Parkinson’s Treatment in Diabetes Drug
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German Scientists Find Possible Parkinson’s Treatment in Diabetes Drug

Parkinson’s disease is a degenerative movement disorder of the central nervous system that insidiously forms, even starting subtly with a single tremor, progressing into slurred speech, loss of balance, and…

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Norway Researchers Find Potential New Treatment for Patients with Parkinson’s Risk

Norway scientists Suchi Mittal, et al. have found compounds that reduce levels of a key gene that increases the risk of developing Parkinson's disease. Parkinson's disease is a degenerative central…

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Editor’s Choice: Survivor Status and Orphan Status are Both Good Signs in the Rare Disease World

Happy Friday! This week, we have a story that might break your heart about a woman who battled cystic fibrosis. But we also have a story that might inspire you about a…

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Editor’s Choice: Treatments, Methods and Strategies in Coping with Rare Diseases

Happy August Patient Worthy Peeps! This week, we have some awesome posts to keep you up-to-date on some of the latest rare disease developments. There's news on a hopeful possible…

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