Popular Canadian singer Justin Bieber stunned the world when he announced he was diagnosed with Ramsay Hunt syndrome following his facial paralysis. Ramsay Hunt Syndrome Ramsay Hunt syndrome (herpes zoster…
Meghan Rourke saw the need for more open conversations about chronic illnesses, sparking her to write The Invisible Kingdom: Reimaging Chronic Illness. In an excerpt from her novel, she shares…
When Alicia McLeod entered her 20s, she began noticing that she was showing a few concerning symptoms. Eventually, Alicia visited the doctors, where she was diagnosed with syringomyelia. According to…
Andrew is a pretty tough kid - he had already undergone four open heart surgeries by the time he was three years old. Now, at age 21, he's added two…
When Lauren Atkins and William Bromley welcomed their son Charlie into their lives, they were thrilled. Jessie, their daughter, may have been even more thrilled, already having a soft spot…
Personable. Loving. Impactful. Those are all words that Angie Kane would use to describe her son Colton, who passed away at 21 years old in October 2021. When Angie talks…
For the last two and a half years, the COVID-19 pandemic has dominated the headlines. It has been hard to look online – or do anything in person – without…
Pancreatic cancer is one of the deadliest forms of cancer. According to the American Cancer Society (ACS), only about 11% of patients are expected to survive more than five years…
Lately, the first thing that enters a person’s mind if they encounter an unusual pain is that they may have cancer. Yet that was the last thing Georgina Masson, an…
According to a recent article, popular Filipina television host, also known as the Philippines' “Queen of all Media," has been diagnosed with Churg-Strauss Syndrome. Churg-Strauss Syndrome Churg-Strauss syndrome, or eosinophilic…
Jeremy Schreifels was just a young child when he was first diagnosed with Tourette syndrome, a nervous system disorder characterized by sudden, involuntary movements or vocalizations (“tics”). In Jeremy’s case,…
Sydney Miller, born in the UK in March 2020, has an extremely rare disease. Newsweek recently carried a story about Sydney and her illness. This little girl captured the hearts…
It is very rare that one might say that a car accident saved their life – but Yolanda Carusciello, who lives in Brooklyn, can say just that. Of course, when…
If you've been paying attention to the news lately, you know there's a shortage of baby formula in the United States. Many, many mothers and children have been affected, leaving…
Two years ago, in 2020, life changed for Ian Foster, then 57. At the time, Ian started experiencing health problems and was eventually diagnosed with kidney failure. According to The…
Nalla Lawson, who lives in Ocala, Florida, recently shared her story and treatment journey through an article published in UF Health. After suffering a fall back in 2016, she was…
Eric Miller was diagnosed with Lyme carditis, which is a very rare complication that can arise from Lyme disease. He is a 43-year-old who works at a boarding school in…
Altogether, there are multiple subtypes of spinal muscular atrophy (SMA), a rare genetic disorder causing muscle weakness and generation. Four months ago, Aniya Porter was born with type I, a…
Mandy Maysey is a 49-year-old mum living in Australia with her three children, who are all coping with an unpredictable disorder. Tourette syndrome (TS) is a neurological disorder involving repetitive…
According to a recent article, the author of the novel Breaking Free, Jan Rothney, shares the connections she has discovered between chronic fatigue syndrome and long covid. Chronic Fatigue Syndrome…
According to a recent article, the family of a young boy from Australia who is diagnosed with the rare genetic disease mucopolysacchariodosis type 1 (MPS 1) is sharing his story to…
At 13 years old, Emma Woods was diagnosed with Turner syndrome, a rare chromosomal condition. Unfortunately, Turner syndrome can cause a number of health or developmental problems, such as heart…
When Sophia Scott was growing up, her parents noticed that she was displaying a variety of different potentially concerning traits. They began undergoing some tests. Eventually, just one day before…
The journey to a rare disease diagnosis can be long and daunting - and, in some cases, may mean facing a few misdiagnoses first. According to KTVB7, this is what…
Sophie had a wish, and this month her mother is going to parliament to fulfill that wish. Sophie’s death has brought about the first House of Commons debate on childhood…
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