Editor's Note: We believe that patients are a key part of developing and leading the conversation in disease communities. Patient Worthy sometimes partners with reputable agencies that wish to speak…
This weekend during the Leiden Marathon, more than 30 parents, children, doctors, researchers and members of the public will run to raise money for the Well Bee Study. This important…
When Elena Sheppard, 35, was first told that she was pregnant with twins, she was thrilled. Her pregnancy went by fairly smoothly for the most part. However, she woke up…
Currently, it is possible to screen for Down syndrome during pregnancy. However, the screening measure used – ultrasound imagery – has less than 80% detection accuracy using common indicators,…
Over the last two years, the COVID-19 pandemic has dominated the headlines. In 2021, vaccines became available to prevent severe COVID-19 infection. However, this has also brought up numerous questions…
A retrospective medical records study for interstitial lung disease (ILD) has just been published in Arthritis Care & Research. The results found that for women diagnosed with ILD as well as an…
When a 23-year-old woman, who was 6 weeks pregnant, first appeared at the doctor, she was presenting with non-specific symptoms: pale eyelids, abdominal pain, intermittent cramping, and generalized arm and…
Pregnancy can be stressful enough as is without the looming threat of COVID-19, a novel coronavirus which has played a huge role in our lives since the beginning of 2020.…
At one point in the past, researchers studied a patient with congenital heart disease (CHD) and came out with a potential cause: SORBS2 gene mutations. However, because the study sample was so…
According to MedPage Today, ursodeoxycholic acid significantly improves patient outcomes in relation to intrahepatic cholestasis of pregnancy. This rare liver disorder increases the risk of fetal issues, stillbirths, or preterm…
Peripartum cardiomyopathy is a rare heart ailment, characterized by a weakened heart muscle, that occurs during pregnancy. But why do some pregnant women develop this condition while others do not?…
If you have a rare condition and are also looking to start a family, you might question: how will my condition impact my pregnancy? Will I be able to have…
Lupus Canada and the Lupus Foundation of America have joined together to award the 2020 Lupus Canada Catalyst Award. This grant is intended to fund one year of research that…
Excited, nervous, worried: a lot of varied emotions go into being pregnant and giving birth. But during COVID-19, a global pandemic? It's understandable that those feelings are amplified. Currently,…
At the start of 2020, we had no idea what this year would bring: COVID-19, a novel coronavirus declared a pandemic in March. As of the morning of July 17,…
Finding out that you are pregnant conjures up a lot of feelings: nervousness, excitement, happiness, and love. But if you have a rare disease or disorder, especially a genetic condition,…
Atypical hemolytic uremic syndrome (aHUS) is a rare condition which can be sparked by pregnancy, although it can also occur without it. Essentially, if you are genetically predisposed to the condition,…
According to BioTechniques, American researchers have taken a new, hands-on approach to learning more about cytomegalovirus-induced microcephaly. Although cytomegalovirus has been linked to microcephaly, the topic is somewhat under researched.…
So you're looking to get pregnant or curious about some part of it. Well, you've come to the right place! If you're looking to have a baby, but you also…
According to a study summarized in Gastroenterology Consultant, pregnant women with intrahepatic cholestasis of pregnancy are much more likely to also be diagnosed with nonalcoholic fatty liver disease. You can…
In a story from Medical Xpress, the authors of a recent study declared that maternity care for pregnant women with Ehlers-Danlos syndrome (EDS) is in dire need of improvement. Ehlers-Danlos…
Ahh, el milagro de la vida. Aunque es una cosa hermosa, el embarazo puede convertirse en una cosa cada vez más doloroso para las personas con artritis y enfermedades relacionadas.…
Si usted está considerando el embarazo, mientras gestionas tu espondilitis anquilosante, es posible que tenga muchas preguntas, tales como ¿Va a tener el dolor de espalda típico que las mujeres…
Myasthenia gravis (MG) is not exactly a common disease, but it affects young adult women most, so the question of pregnancy matters a lot. If you're noticing any unusual breathing problems,…
Part 2: Intrahepatic Cholestasis of Pregnancy Click here if you missed Part 1. Before I went through all of this I had the very innocent idea that doctors knew what…
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