Study Archives - Page 2 of 2

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Patients with Chronic Kidney Disease and Hyperkalemia Associated with Major Adverse Cardiovascular Events

Post author:Alyssa Stevens
Post published:December 2, 2021
Post category:Chronic Kidney Disease Hyperkalemia

According to a recent article, a study shows patients with nondialysis-dependent chronic kidney disease and transient or chronic hyperkalemia, correspond with major adverse cardiovascular events (MACE) and even death. Chronic…

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Males With ANCA-Associated Vasculitis Not at Higher Risk of Death or Kidney Failure

Post author:Alyssa Stevens
Post published:November 16, 2021
Post category:Vasculitis

According to a recent article, a study showed males diagnosed with ANCA-associated vasculitis (AAV) are not more at risk than females for kidney failure or even death. Vasculitis Vasculitis refers…

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New Study Looks At Bleeding Patterns of Infants and Toddlers With von Willebrand Disease

Post author:Alyssa Stevens
Post published:November 15, 2021
Post category:Von Willebrand's Disease

According to a recent article, researchers reported their findings from a new study that looked at the bleeding patterns and characteristics in infants and toddlers with von Willebrand disease (VWD).…

Study Shows Novel BTK Degrader Has Meaningful Results for Patients with Chronic Lymphocytic Leukemia

Post author:Alyssa Stevens
Post published:November 11, 2021
Post category:Chronic Lymphocytic Leukemia

According to a recent article, a study looking at an investigational BTK degrader proved to have important results in patients with chronic lymphocytic leukemia. Chronic Lymphocytic Leukemia (CLL) Chronic lymphocytic…

Study Looks at Sleep Patterns in Adult Patients with Bardet-Biedl Syndrome

Post author:Alyssa Stevens
Post published:November 11, 2021
Post category:Bardet-Biedl Syndrome

According to a recent article, a study looked at the symptoms of Bardet-Biedl syndrome that can affect a patient’s sleep patterns. Bardet-Biedl Syndrome Bardet-Biedl syndrome is a rare disorder that…

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Corona and Other Viruses Are Trackable Through Your Poo

Post author:Alyssa Stevens
Post published:November 3, 2021
Post category:COVID-19

According to a recent article, surveying sewage proved to be the key to helping scientists predict new virus outbreaks. How It Works It may seem crazy that your feces could…

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Juvenile Idiopathic Arthritis: The Role of CD71+ Erythroid Cells

Post author:James Moore
Post published:July 20, 2021
Post category:Juvenile idiopathic arthritis

In a study published in the research journal Scientific Reports, CD71+ erythroid cells (CECs) have an immunoregulatory function. They often appear in people with cardiopulmonary or hemolytic disorders, as well as in…

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Study of the Week: Mosaic Mutations Can Cause Spina Bifida and Other Birth Defects

Post author:James Moore
Post published:March 1, 2021
Post category:Spina Bifida

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

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Study: Visual Hallucinations in Parkinson’s Patients and Retinal Thinning

Post author:Kendall Mason
Post published:December 30, 2020
Post category:Parkinson's Disease

Visual hallucinations have been a known symptom of Parkinson's disease for a long time, but the cause has evaded medical professionals. That is, until now. A recent study, titled "Visual…

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Study: Neupro Patches Are an Effective Treatment for Parkinson’s

Post author:Kendall Mason
Post published:September 3, 2020
Post category:Parkinson's Disease

A study has concluded that Neupro Patches are a viable treatment option for those living with Parkinson's disease, according to a Parkinson's News Today article. The patch, which can treat…

Study: Stem Cell Therapy Shows Sign of Efficacy for Gaucher Disease Treatment

Post author:Jean Martell
Post published:October 2, 2019
Post category:Gaucher Disease

Stem cell therapy via intravenous injection lessened symptoms and prolonged survival of Gaucher disease, reports a study using a mouse model. The study was published in Human Molecular Genetics, and reported…

Case Study: Rare Form of Inducible Urticaria Successfully Treated

Post author:Jean Martell
Post published:December 27, 2018
Post category:Chronic Idiopathic Urticaria

There is some promising news coming out of the American College of Asthma, Allergy and Immunology (ACAAI) annual meeting in Seattle, Washington. According to a case study, rare forms of inducible urticarias…

University of Florida Study: Barth Syndrome Gene Therapy Preclinical Results Look Good

Post author:Jean Martell
Post published:December 18, 2018
Post category:Barth Syndrome

A University of Florida research team has announced its results of a gene replacement therapy in the treatment of Barth syndrome, which delivered promising results in its initial phase of testing.…

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Award and Funding for Cystic Fibrosis Studies

Post author:Meagan Fulps
Post published:March 2, 2018
Post category:Cystic Fibrosis

Corbus Pharmaceuticals has received the Development Award presented by the Cystic Fibrosis Foundation, along with $25 million to support an upcoming study, reports Financial Buzz. Corbus plans to test out…

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Cancer Survival Rates are Improving Faster in Some Countries than Others

Post author:Meagan Fulps
Post published:March 2, 2018
Post category:Cancer Pancreatic Cancer

According to Yahoo! News UK, cancer survival rates have increased over the passed ten years. However, the progress hasn't been evenly distributed across the board of varying cancers. According to…

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Study Demonstrates How Zika Might Pose Threat to Pregnant Women

Post author:Meagan Fulps
Post published:February 19, 2018
Post category:Microcephaly

Drugs reports a new study revealing the harmful effects of Zika virus in pregnant monkeys, which might have correlation to the known linkage between Zika and diseases such as microcephaly.…

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New Study Shows Mice Can Successfully Mimic Human Cancers

Post author:Patient Worthy Contributor
Post published:February 7, 2018
Post category:BRCA-mutated Breast Cancer Rare Disease

A recent study from Michigan State University confirms that mice do indeed have significant similarities to humans which is beneficial for cancer research, reported News Wise. This has been in…

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New Study Cures Mice of Cancer

Post author:Meagan Fulps
Post published:February 2, 2018
Post category:BRCA-mutated Breast Cancer Timely

In a recent study, researchers at Stanford University School of Medicine successfully cured mice of cancer. Already, patients diagnosed with lymphoma are being sought out to undergo clinical trials with…

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Vegetables Prove Helpful With Treating Colorectal Cancer

Post author:Meagan Fulps
Post published:January 27, 2018
Post category:Rare Disease

A recent study conducted by researchers from National University of Singapore Medicine laboratory shows that eating vegetables, specifically broccoli, might prevent and even kill cancer cells that develop into colorectal…

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AveXis, Gene Therapy Development Company, Expands Program

Post author:Meagan Fulps
Post published:January 23, 2018
Post category:Amyotrophic Lateral Sclerosis Rett Syndrome Spinal Muscular Atrophy

The gene therapy development company, AveXis, Incorporation, just announced that they will be expanding their clinical trial development program for the potential gene therapy treatment: AVXS-101, reported Globe News Wire.…

Watch Video: Rare Leukemia Relapsed Patients May Have New Treatment Option

Post author:Jean Martell
Post published:January 11, 2018
Post category:Acute Myeloid Leukemia Rare Disease

Watch Prof. Charles Craddock discuss important and heartening results he and his team presented at the American Society of Hematology 2017 Annual Meeting and Exposition in Atlanta, GA - regarding whether there…

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Acute Myeloid Leukemia Treatment Study Shows Positive Signs of Efficacy

Post author:Jean Martell
Post published:December 1, 2017
Post category:Acute Myeloid Leukemia Rare Disease

The Leukemia Research medical journal published results from a study that showed efficacy when treating Acute Myeloid Leukemia (AML). Great news for the rare disease community! Onconova Therapeutics announced the publication of results…

Patients with Chronic Kidney Disease and Hyperkalemia Associated with Major Adverse Cardiovascular Events

Males With ANCA-Associated Vasculitis Not at Higher Risk of Death or Kidney Failure

New Study Looks At Bleeding Patterns of Infants and Toddlers With von Willebrand Disease

Study Shows Novel BTK Degrader Has Meaningful Results for Patients with Chronic Lymphocytic Leukemia

Study Looks at Sleep Patterns in Adult Patients with Bardet-Biedl Syndrome

Corona and Other Viruses Are Trackable Through Your Poo

Juvenile Idiopathic Arthritis: The Role of CD71+ Erythroid Cells

Study of the Week: Mosaic Mutations Can Cause Spina Bifida and Other Birth Defects

Study: Visual Hallucinations in Parkinson’s Patients and Retinal Thinning

Study: Neupro Patches Are an Effective Treatment for Parkinson’s

Study: Stem Cell Therapy Shows Sign of Efficacy for Gaucher Disease Treatment

Case Study: Rare Form of Inducible Urticaria Successfully Treated

University of Florida Study: Barth Syndrome Gene Therapy Preclinical Results Look Good

Award and Funding for Cystic Fibrosis Studies

Cancer Survival Rates are Improving Faster in Some Countries than Others

Study Demonstrates How Zika Might Pose Threat to Pregnant Women

New Study Shows Mice Can Successfully Mimic Human Cancers

New Study Cures Mice of Cancer

Vegetables Prove Helpful With Treating Colorectal Cancer

AveXis, Gene Therapy Development Company, Expands Program

Watch Video: Rare Leukemia Relapsed Patients May Have New Treatment Option

Acute Myeloid Leukemia Treatment Study Shows Positive Signs of Efficacy

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

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