According to a recent article, a study has shown that keratoconus patients who do not get their timely corneal crosslinking will have permanent changes in their corneal structure. Keratoconus…
Recently, an international group of pediatric rheumatologists and nephrologists met and created a consensus on a standard for a steroid-dosing regimen to treat childhood-onset systemic lupus erythematosus with proliferative lupus…
According to a recent article, a new study is demonstrating how the effects of distal renal tubular acidosis impact a patient’s quality of life. Distal Renal Tubular Acidosis (dRTA) Distal…
According to a recent article, scientists have discovered that epigenetic landscapes have a big role in the way cancer cells potentially respond to therapy initially. “Persisters” There are cancer cells…
According to a recent article, a study has found that denosumab therapy leads to patients with osteoporosis having a higher risk of getting osteonecrosis of the jaw in comparison to…
According to a recent article, the results of a new study shows that patients that are diagnosed with Marfan syndrome and an aortic aneurysm or dissection are at a…
According to a recent article, the Hamoui Foundation and LUNGevity Foundation granted $1 million to three researchers in order to study RET-positive lung cancer. RET-Positive Lung Cancer There are two…
According to a recent article, a new study looked into the histopathologic spectrum of patients with monoclonal gammopathy of renal significance (MGRS). Monoclonal Gammopathy of Undetermined Significance (MGUS) Monoclonal gammopathy…
According to a recent article, a new study shows that by increasing your alcohol intake, you may actually be increasing your risk of head and neck cancer. Head and Neck…
According to a recent article, a pilot study shows that around 30% of patients with wet age-related macular degeneration might have the ability to stop their eye injection therapy…
According to a recent article, researchers have conducted a pilot human trial to test out a falloposcope which captures images of the fallopian tubes in patients, which will hopefully enable…
According to a recent article, a study in Estonia looked at the prevalence and characteristics of spinal muscular atrophy (SMA) over the last 24 years to aid in implementing SMA…
According to a recent article, a study shows that patients with epithelial ovarian cancer do present with at least one symptom the majority (72%) of the time. Ovarian Cancer Ovarian…
According to a recent article, a new study has developed a novel index that differentiates eyes with subclinical keratoconus and normal eyes. Keratoconus Keratoconus is a disorder affecting the cornea…
According to a recent article from MedPage Today, the results from a small prospective study show that sequential radiotherapy (RT) is successful in delaying systemic therapy for oligometastatic renal cell…
Newborn screening (NBS) is a public health service within the United States through which babies are screened for medical conditions that otherwise wouldn't be apparent at birth. Many of the…
Is there a relationship between increased sun exposure and breast cancer risk? At first glance, you might think, “Sure. Sun exposure probably increases the risk.” However, according to an article…
According to a recent article, a study shows that treatment with gene therapy reduces the need for patients with non-β0/ β0 genotype Beta-thalassemia (β-thalassemia)to get transfusions. Beta-thalassemia (β-thalassemia) Beta thalassemia…
According to a recent article, the preliminary results of a study suggest that certain oral and infusion therapies may be beneficial for those suffering from fatigue due to myalgic…
According to a recent article, a low carbohydrate intervention used to reduce type 2 diabetes and for prediabetes regression, may be a treatment option for patients with nonalcoholic fatty liver…
According to a recent article, a new study shows a daily oral dose of Belzutifan may keep patients diagnosed with von Hippel-Lindau disease from needing surgery by shrinking tumors. Von…
According to a recent article, a new study from Boston Children’s Hospital shows that a first-of-its-kind gene therapy technique has succeeded in reversing severe hearing loss from a mutation to…
According to a recent article, a study shows the risk of getting nasopharyngeal carcinoma (NPC) varies considerably in different ethnic groups among Asian Americans. Nasopharyngeal Carcinoma (NPC) Nasopharyngeal carcinoma…
According to a recent article from Medscape, older patients being treated for Graves' disease should not be deterred from thyroidectomies, as they result in low rates of hypoparathyroidism. Graves’…
According to a recent article, a recent study from the U.K. showed that emergency methods of managing hyperkalemia, such as the use of insulin/dextrose, are not the most effective treatments.…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
