Editor’s Choice: Overcoming Obstacles and Fulfilling Dreams with Rare Disease

Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor suffering from TN, dysautonomia and…

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Prince and Pfeiffer
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Prince and Pfeiffer

This article was originally written a year ago. We are republishing it today in Prince's memory.   I’m sure you’ve seen countless tributes to Prince in honor of his legacy.…

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Parents: Did You Know the Comfort Food You’re Feeding Your Kids Could Lead to NASH?
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Parents: Did You Know the Comfort Food You’re Feeding Your Kids Could Lead to NASH?

Feeling distraught because your child may have nonalcoholic fatty liver disease (NAFLD)? Well you should be—but keep in mind there is still time for hope. I read an easily digestible…

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Duchenne Muscular Dystrophy Motivated These Parents to Start the Romito Foundation
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Duchenne Muscular Dystrophy Motivated These Parents to Start the Romito Foundation

Duchenne muscular dystrophy (DMD) affects approximately 15,000 to 20,000 young boys in the US, but for the Richard and Jamie Romito family, those numbers mean nothing. All three of their sons…

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This Video Will Melt Your Heart and Raise Money for Diamond Blackfan Anemia Research
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This Video Will Melt Your Heart and Raise Money for Diamond Blackfan Anemia Research

Diamond Blackfan anemia (DBA) sounds like the villainous star of an action movie, but it's not. It's an extremely rare blood disorder wherein the bone marrow doesn't make enough red…

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