According to a story from Science Daily, researchers at the University of Michigan have discovered why it is possible for basal cell carcinomas, a common form of skin cancer, to…
According to a story from the Baylor College of Medicine Blog Network, Terry Lim, a women with familial hypercholesterolemia, views her condition with a new perspective after participating in a…
According to a story from the Daily Post, Katie Roy and Tjay Narciso were horrified when doctors told them that their new born daughter Kaila will only survive for a…
New medicines for Parkinson’s may be around the corner. The United States Food and Drug Administration (US FDA) recently approved one drug, and accepted application another. Both new drugs treat…
For so many of us, a good night's sleep is a refuge; from our long hectic days, from our piling problems, or even from the stresses of managing our rare…
According to an article from kait8.com, the pharmaceutical company Yisheng Biopharma announced that YS-ON-001, a leading candidate for the company, received Orphan Drug Designation from the U.S. Food and Drug…
Making big changes to your eating plan can present a challenge for some. Now, factor in having hemochromatosis—a rare condition characterized by the buildup of iron—and you’ve got the ingredients…
According to an article from brightsurf.com, a commonly used allergy medication called cetirizine (commonly marketed under the name Zyrtec) was able to prevent relapse in patients with neuromyelitis optica in…
When I was a young mom, I was not naïve; I knew that life has it ups and downs. I expected a Merry-Go-Round, and got a Roller-Coaster. I thought that…
Many runners shared their inspirations after the Little Rock marathon this week. Among them Nancy Gifford, a thyroid cancer survivor, finished the race. Keep reading to learn more about her…
Dave Fuehrer, a competitive bodybuilder, was diagnosed twice with testicular cancer, reports PM 360 Online. He expressed that the second diagnosis was so much harder, as he was recently married…
33 rare disease organizations across the country have teamed up for $1 million fundraising goal during the months of February and March to fund research and support patients, in honor…
Adrenoleukodystrophy is a rare hereditary condition which affects the myelin sheath and the ability of the body to process a type of fatty acids. The most damaging form primarily affects…
According to a story from the Washington Post, avid handball player Laura Hsiung first began experiences symptoms of a mysterious illness in the middle of a game. Suddenly, without realizing…
Mesoblast Limited announced the primary endpoint success of a phase three trial on February 21st. The drug tested aims to help treat steroid refractory acute graft versus host disease. No…
According to an article from lymedisease.org, Dr. Raphael Stricker is slated to speak about the future of Lyme disease diagnostics at MyLymeData2018: Seeking Cures Together. This conference is intended primarily…
UCLA conducted a new study that looked at patients with claustrophobia and attempted a shortened MRA scan. They hoped to obtain the same quality of images that the current, longer…
Haley Hayes is a normal pre-teen, yet she suffers from Pompe disease. Pompe disease is a genetic condition, which causes muscle and organ impairment. Early diagnosis and enzyme replacement therapy…
Many teenagers live as if they consider themselves nearly immortal, more concerned with navigating social circles than staying alive. Frightening as that actually can be, it’s a far step from…
According to an article from PRNewswire, recent research may have discovered why glioblastoma tumors develop resistance to treatment. Glioblastoma is a deadly form of brain cancer that is known for…
According to an article from Newswise, the Coriell Institute for Medical Research announced the release of rare new N-glycanase deficiency samples. These samples will be available to researchers so that…
According to story from Alpha Galileo, a recent study demonstrated that neuroblastoma cells, a form of cancer that forms in nerve tissue and often occurs in childhood, can transition into…
The final day of Rare Disease Week took place at the NIH Clinical Center last Thursday. Admission to the NIH was free, and participants had the chance to tour the…
According to a story from bioportfolio.com, The California Institute for Regenerative Medicine has given $5.74 million to the City of Hope, a private, nonprofit clinical research center that is primarily…
A new cannabis treatment is going into trial in Australia to treat patients with Tourette syndrome, reports The Courier Mail. This will be the first study in Australia to use…
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