This is the first installment of a three part dysautonomia story. “Every woman has a moment in life that changes everything. What’s that moment for you?” I read this question…
According to a story from Physician's Weekly, a recent study found that small amounts of invisible blood in stool increases the possibility of early death from other causes. The study…
According to a story from KVIA, the University Medical Center at El Paso, Texas, is offering an innovative "hot" chemotherapy treatment that has the potential to treat a variety of…
According to a story from Science Daily, researchers have discovered a mechanism that drives the development of renal cell carcinoma. This mechanism could lead to new therapeutic approaches that take…
According to a story from the Sydney Morning Herald, Hayley Wyatt appeared to be calling for her mother in her final moments, but there was nothing anyone in her family…
According to a story from globenewswire.com, the company Progenic Pharmaceuticals recently reported the the U.S. Food and Drug Administration has recently approved the company's product iobenguane I 131 (AZEDRA). This…
According to a story from publicnow.com, a recent study suggests that it is possible for pancreatic cancer to be diagnosed with a breath test. The discovery could allow for this…
According to a story from Charcot-Marie-Tooth News, a recent study suggests that changes in the levels of two proteins in the body could serve as biomarkers to indicate the progression…
According to a story from MIT Technology Review, it was 2011 when Sonia Vallabh received the results of a genetic test that showed that she had the genetic mutation responsible…
According to a public release from University of Texas Health Center at San Antonio on eurekalert.org, research using fruit fly tauopathy disease models has revealed a genetic "copy-paste" activity that…
For anyone who has had to step into a doctor's office, you know the litany of emotions that run through your body. Anxiety, confusion, worry, exasperation - and to say…
The documentary The Bleeding Edge has just been made available on Netflix in the US and UK (27th July 2018). Described by Netflix as “controversial”, the documentary explores the impact…
I met Jon at the 2018 United Leukodystrophy Foundation Conference and had the privilege of learning his and his family's story. Jon was born in Wisconsin in 1992, joining the…
A study of Lynparza (olaparib) in combination with abiraterone for the treatment of metastatic castration-resistant prostate cancer has shown promising results. The full article can be read here, at Bio…
Results from two studies looking at the effects of an experimental drug (bardoxolone) on kidney function in patients with chronic kidney disease (CKD) have been released. One of the studies…
Ailani Banuelos is a 12-year-old with a dream. She not only wants to see the ocean but paddle in it. Living in Chicago made the dream fairly difficult. There simply…
Ashley Wibberly’s son Levi was born in September of 2013 and lived for just 20 months with Krabbe disease. Ashley couldn’t have seen it coming. Now, however, a new test…
What do Dave Winfield, Steve Garvey, and Don Baylor Jr. all have in common? Besides all being big names in major league baseball, each of the famous athletes is contributing…
Meet Andrea Wilson Woods (pictured below with her little sister); an author, public speaker, career coach, organization founder, and patient advocate. In her early twenties, Andrea became the legal guardian…
According to a story from The Japan Times, a team of Japanese researchers from Riken and the National Cancer Center were able to use artificial intelligence to diagnose stomach cancer…
According to a story from the Sydney Morning Herald, Maxwell Hayes thought that is cancer was gone after an eight year period of remission. Then, his mantle cell lymphoma returned.…
Happy End-of-July! As the week comes to a close, we want to spotlight four articles. We have an honest piece from PW contributor, Tom Seaman. Next, we investigate the root…
According to a story from Business Wire, the non-profit foundation CurePSP has agreed to allocate funding for four venture grants. The funding is worth over $300,000 and will be directed…
According to a story from the Royal College of Physicians, the organization has chosen to release new guidelines regarding the treatment of patients with complex regional pain syndrome, a potentially…
Don't feel bad if you've haven't heard of hemochromatosis - that's why we are here! Hemochromatosis (also known as iron overload disorder) is a disease that is often under-diagnosed. It…
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