A website called CrowdMed is changing the way patients can be diagnosed. It uses a group of people to collectively analyse challenging medical cases through ‘crowd wisdom.’ A TedMed talk…
According to a story from PR Newswire, a group of scientists have managed to discover a mechanism that allows the liver to repair damage it has sustained. This discovery may…
Springtime is in full bloom and summer is right around the corner, so you know what that means? Beaches, barbecues, and bugs! While beaches and barbecues are fun, the last…
As a society, we're always watching SOMETHING. Television, smartphones, tablets, smart watches, computers - we're always glued to some form of media, so it's always nice when the people we…
This blog post was originally published on the KIF1A blog. We are republishing it here on Patient Worthy with permission. I was recently asked if I was confident that a…
According to a story from bandt.com.au, the Australian Children's Medical Research Institute's "Jeans for Genes" campaign is taking things in a new direction this year with assistance from the marketing…
According to a story from Business Insider, the deer tick, Ixodes scapularis, has been expanding its range in the United States, and where ever it goes, the risk of people receiving…
According to a story from bioengineer.org, scientists from Washington State University have successfully developed a compact and cost effective infection detection device that is comparable in effectiveness to clinical labs.…
According to a story from Healthline, a daily regimen of baking soda consumption could help reduce the severity of inflammation in certain diseases, such as chronic kidney disease and rheumatoid…
According to a story from the Chillicothe Gazette, twelve-year-old Brooke Hopkins has already had to face chronic inflammatory demyelinating polyneuropathy and a devastating injury in her young life. However, through…
Say It Out Loud: There Is No Shame in Mental Illness. These are important words that every child, teen, and adult should hear! May is Mental Health Awareness Month, with…
According to a story from globenewswire.com, Relypsa Inc. said in a recent statement that it has agreed to distribute three research grant awards that are intended to supplement funding for…
According to a story from Rare Disease Report, a recent study indicates that the self-administration of Berinert, a drug used to treat hereditary angioedema, is effective and safe for patients…
According to a story from HSC News, the Hastings Foundation recently gave a gift of $12.5 million for the USC Hastings Center for Pulmonary Research, a subdivision of the University…
According to a story from Rare Disease Report, the pharmaceutical company Alnylam Pharmaceuticals announced the results of Phase 3 trials for its experimental drug patisiran. The drug is in the…
According to a story from the Chicago Tribune, Maine South High School, located in the Chicago suburb of Park Ridge, Illinois, raised over $60,000 for Huntington's disease research. The school…
According to a story from Newsday, a young girl with osteosarcoma named Amelia Eldred had a portion of her left leg amputated, the central section of the leg removed, and…
National Nurses Week begins each year on May 6th and ends on May 12th, Florence Nightingale's birthday. Think about it... every time you visit a doctor's office or hospital, you…
According to a story from curetoday.com, the U.S. FDA has recently approved the CAR-T cell treatment Kymriah for adult patients with diffuse large B-cell lymphoma in cases of relapse or…
According to a story from Rare Revolution Magazine, Georgia Hart was first diagnosed with Friedrich's ataxia when she was 15 years old. Since then, living with this rare disease has…
Duchenne Muscular Dystrophy (DMD) is the most common type of the 9 types of muscular dystrophy. It is a genetic disorder that causes muscle degeneration and weakness. It is a progressive…
According to a story from Scimex, a recent assessment of available treatments for Dravet syndrome and other types of epilepsy has reaffirmed that anticonvulsant medications are still the most effective…
On February 13th, the U.S. FDA announced the approval of Symdeko, a novel combination of two previously used agents to treat cystic fibrosis (CF). Symdeko combines a drug that has been…
According to a story from BioSpace, the pharmaceutical company Scholar Rock recently announced that its drug candidate SRK-015 was recently granted Orphan Drug Designation by the U.S. FDA. The drug…
May the fourth be with you! This week we're spotlighting four patient stories: one about a father whose daughter has Sanfilippo syndrome, one about losing your spouse to CF, the…
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