Zaida was 3-years-old attending her normal yearly check-up with expectation that all was well, yet they quickly learned six days later of her terrifying cancer diagnosis, reports Daily Camera. Little…
Tyler Chambers, 9-years-old, suffers from scoliosis, with a 65 degree bent spine. His mother is fighting to get him the surgery he needs to rid away his intensifying pain, reports…
According to an article from Newswise, a team of researchers are studying tissue engineering for the repair of knee injuries such as a torn meniscus. The meniscus is the section…
According to a recent article from BioSpace, a study of Accuray's CyberKnife radiosurgical system showed good results with the new technology. The CyberKnife system projects radiation beams from multiple angles…
Easton was born at thirty-six weeks gestation on January 6, 2017. He was almost immediately taken to the NICU for something called PPHN (Persistent Pulmomary Hypertension), Easton was intubated for…
February 14th is Valentine's Day! Make sure to treat your valentine to a special day - and while your at it, spread the word that February 14th is also National…
Andy Trapp is a videographer who runs AB Trapp Productions, a small business documenting weddings and family occasions. He has been living with uncontrolled PKU since the age of 8.…
NBCNews Chief Foreign Correspondent, Richard Engel, opened up about one of the hardest phone calls he ever had to receive-- the call where he received the diagnosis of Rett syndrome for…
According to a story from Newswise, The University of Adelaide in Australia received a $1.19 million grant in order to spearhead an international research project. The project's aim is to…
There are fifty genetic diseases that can be characterized as lysosomal storage diseases (LSDs). Gaucher disease can be characterized as such. LSDs make up about one in every 8,000 births…
In a recent press release, the Patient Access Network (PAN) Foundation announced the opening of a new program that will help people living with hemophilia pay for the cost of…
The National Institute of Arthritis, Musculoskeletal, and Skin Diseases awarded 6.5 million dollars to a team of researchers last month. The grant funding goes towards the creation of a new…
On January 30th, pop singer Jordin Sparks' step-sister Bryanna Jackson-Frias lost her battle with sickle cell anemia, reported People. Complications surfaced that sent her to the ICU. Jordin posted to…
My name is Amy, and I’m a 37 year old single mom of two beautiful girls, ages 8 and 13. I work full time as a business analyst for a…
Chloe Fernandez is an 11-year-old with primary ciliary dyskinesia, and that hasn't stopped her from being an advocate for the disease, reports Los Angeles Times. When given several amazing opportunities…
A new effort to raise awareness and funding for rare disease is underway. SMA News Today reported that NORD, the National Organization For Rare Disorders, organized this campaign to challenge…
England’s National Health Service has just approved a new drug for the treatment of breast cancer. While the drug is most effective in specific cases, advocacy group Breast Cancer Now…
According to a story from Cancer Updates, Research & Education, the Food and Drug Administration (FDA), recently approved the use of Trisenox injection in combination with tretinoin as a treatment…
In an episode CNN's webseries LoveStory, titled Love Accessibly - we follow Kristen as she looks for love in New York City as a woman in a wheelchair. With her…
According to a story from BioPortfolio, the pharmaceutical company Synspira announced the results of a study for poly-N glucosamine (PAAG) as a potential treatment for MRSA, a widespread antibiotic resistant…
Still getting over that crazy Super Bowl game?! If you're an Eagles or Patriots fan, you might need abit more time to gloat/recover - but for the rest of us,…
Welcome back, Patient Worthians! This week, we have an opportunity for Parkinson's patients, and an update on an Amyloidosis app. We also have two stories of teenagers whose lives suddenly…
There is new hope for patients and their families suffering from spinal muscular atrophy (SMA) reported AOL UK News. SMA is a physically debilitating and aggressive disease, and now a new…
"Ok, well first of all...I know nothing. But if your kids are anything like me, they're going to break a lot of toilets!" Those are the starting words writer and…
It is absolutely and unequivocally clear : “The PKU diet must include a medical product, usually consumed as a beverage. There are several brands available that are nutritionally suitable for…
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