Lori Dunham’s recent article for the Lambert-Eaton News is a message to parents that no matter what disease their children may have, teaching them to advocate for themselves is…
Though myalgic encephalomyelitis or chronic fatigue syndrome (CFS) is more widespread than many people realize, the condition has few resources and no remedy. The disabling condition is complex, with no…
PTC Therapeutics has just announced data from the very first study which examined how taking care of a child diagnosed with aromatic L-amino acid decarboxylase (AADC) deficiency can impact caregivers.…
Mustang Bio, a biopharmaceutical company, and City of Hope, a cancer center, have just revealed that their first participant in their Phase 1 clinical trial for leptomeningeal brain tumors including…
COVID-19 long-haulers, now called Post-Acute Sequelae of SARS-CoV-2 Infection, or PASC, have often been compared to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). However, there wasn't a study directly comparing these two…
NLS Pharma has just announced new data which further supports the mechanism of action of Mazindol. Mazindol is the active ingredient in Quilience, a treatment used for narcolepsy. This therapy…
Head and neck squamous cell carcinoma (SCC) is considered both aggressive and difficult to treat. In fact, doctors estimate that nearly 50% of all patients will eventually see the recurrence…
Recently, the FDA granted Priority Review status to a supplemental New Drug Application (sNDA) for zanubrutinib, MPR reports. While the treatment, under the brand name Brukinsa, is currently indicated for…
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…
To this day, Colleen Sosinski still isn't quite sure how her journey with necrotizing fasciitis began. During summer 2020, she was relaxing and enjoying the sun. Then, as reported by…
The CDC notes that in 2019, an estimated 409,000 people globally died of malaria - but a majority of those who died were children in sub-Saharan Africa. In fact, 94%…
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