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Daily Archives: June 13, 2022

Home » Archives for June 13, 2022
A Car Crash Saved the Life of a Woman with a Thymoma
https://pixabay.com/en/cuba-oldtimer-old-car-forest-red-1197800/

A Car Crash Saved the Life of a Woman with a Thymoma

  • Post author:Jessica Lynn
  • Post published:June 13, 2022
  • Post category:Rare Disease/Thymic epithelial tumor

It is very rare that one might say that a car accident saved their life – but Yolanda Carusciello, who lives in Brooklyn, can say just that. Of course, when…

Continue Reading A Car Crash Saved the Life of a Woman with a Thymoma
Study of the Week: Spinal Muscular Atrophy Type 3 Linked to Cognitive Impairments
source: pixabay.com

Study of the Week: Spinal Muscular Atrophy Type 3 Linked to Cognitive Impairments

  • Post author:James Moore
  • Post published:June 13, 2022
  • Post category:Spinal Muscular Atrophy

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Spinal Muscular Atrophy Type 3 Linked to Cognitive Impairments
Mitapivat Beneficial for PKD, Study Shows
Photo courtesy of Towfiqu Barbhuiya on Unsplash

Mitapivat Beneficial for PKD, Study Shows

  • Post author:Jessica Lynn
  • Post published:June 13, 2022
  • Post category:Pyruvate kinase deficiency

Earlier this year, the U.S. Food and Drug Administration (FDA) approved mitapivat (PYRUKYND) for the treatment of patients with hemolytic anemia due to pyruvate kinase deficiency (PKD). According to 2…

Continue Reading Mitapivat Beneficial for PKD, Study Shows
Severe Atopic Dermatitis Could Heighten Non-Hodgkin Lymphoma Risk
source: pixabay.com

Severe Atopic Dermatitis Could Heighten Non-Hodgkin Lymphoma Risk

  • Post author:Jessica Lynn
  • Post published:June 13, 2022
  • Post category:Cancer/Severe Atopic Dermatitis

This year, the American Academy of Dermatology (AAD) Annual Meeting took place from March 25-29, 2022. During the meeting, researchers and stakeholders discussed trends and research within the field of…

Continue Reading Severe Atopic Dermatitis Could Heighten Non-Hodgkin Lymphoma Risk
An Overview of Chronic Lymphocytic Leukemia (CLL)
source: pixabay.com

An Overview of Chronic Lymphocytic Leukemia (CLL)

  • Post author:Rose Duesterwald
  • Post published:June 13, 2022
  • Post category:Rare Disease

  Leukemia, in general terms, is a form of cancer that affects the bone marrow and blood cells. According an article in Medical News Today, leukemia is categorized in accordance…

Continue Reading An Overview of Chronic Lymphocytic Leukemia (CLL)
Join in On Celebrating Dravet Syndrome Awareness Month!

Join in On Celebrating Dravet Syndrome Awareness Month!

  • Post author:Kendall Mason
  • Post published:June 13, 2022
  • Post category:Dravet Syndrome

During this month, the Dravet Syndrome Foundation (DSF) organizes a variety of activities and resources to help raise awareness for Dravet syndrome, a rare form of epilepsy. They make it…

Continue Reading Join in On Celebrating Dravet Syndrome Awareness Month!

OF INTEREST


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X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition


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Catalyst’s LEMS Aware Podcast Helps Connect Patients

Patient Stories

STUDY OF THE WEEK

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.

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