By Danielle Bradshaw from In The Cloud Copy 19-year-old Marky Jaquez’s feet have never touched the ground because the sensitive skin of his soles would tear away. As such, he…
By Natalie Homan from In The Cloud Copy The COVID-19 pandemic has changed the lives of millions around the world in an incredibly short span of time. It’s hard to…
By Natalie Homan from In The Cloud Copy Two businesses that advocate for patients with rare and orphan diseases announced recently that they are teaming up to help patients get…
This was originally published as the Seventh Newsletter for the Leukodystrophy Resource Research Organisation (LRRO) on April 19th 2020. You can read more from their newsletter here. To state the blatantly…
By Natalie Homan from In The Cloud Copy The United States goes through blood shortages from time to time when donation numbers drop, usually because of summer travel. In March…
By Natalie Homan from In The Cloud Copy In the United States, about 14% of students receive special education services. This means that around 7 million children and teens have…
By Jodee Redmond from In the Cloud Copy Thermo Fisher Scientific, a world leader in the life sciences community, has announced that it has developed a new test for Gaucher…
Happy Thursday! The week is almost over! One more day to go! To get you through this final bit, we have three stories that we think demonstrate different aspects of…
This week I heard from a grandfather who had been wanting to take his grandson fishing. The grandson had always been too busy and had far too many organized activities.…
Por Jodee Redmond de In the Cloud Copy Los glioblastomas son tumores que son particularmente difíciles de tratar. Comienzan a formarse en las células gliales del cerebro y la médula…
By Natalie Homan from In The Cloud Copy It’s estimated that about 3.4 million Americans have epilepsy, one of many conditions that can cause seizures. Seizures occur when there is…
By Natalie Homan from In The Cloud Copy Rochelle was a 28-year-old mom of two when she went to sleep one night feeling perfectly normal. A few hours later, she…
by Danielle Bradshaw from In The Cloud Copy A year-long study has shown that Tracleer greatly reduces the skin-related symptoms of scleroderma. The results also showed that although it helped…
by Jodee Redmond from In the Cloud Copy Emma Larson’s parents were not particularly concerned when their daughter wasn’t standing or walking by her first birthday. They figured that plenty of children had not reached…
By Danielle Bradshaw from In The Cloud Copy Seventeen-year-old Marissa, from Clinton Township, Michigan, might be what most would consider a model student. She earns good grades and she really enjoys…
Continued From Part Two Written by Payel Bhattacharya I hope for aid from the government to cover the high cost of subsequent medicines including anti-rejection medicines, radiological and lab…
Hello! We hope that within all this chaos, you're still able to enjoy some parts of spring. Today, we have a story about kids with disabilities who are affected by…
Continued From Part One written by Payel Bhattacharya Pharmaceutical science has medications to control the pain. I was initially put on medicine but it mostly didn’t contain the pain. I…
By Natalie Homan from In the Cloud Copy What Is Ulcerative Colitis? Ulcerative Colitis is a condition where the colon and rectum become inflamed and develop ulcers. It is a painful…
By Danielle Bradshaw from In the Cloud Copy The Swiss-born pharmaceutical company, Novartis, has been given permission by the Food and Drug Administration (FDA) to begin distributing their oral…
By Payel Bhattacharya, living with von Hippel-Lindau syndrome I, Miss Payel Bhattacharya, was an unusual child. I was never concerned with petty things, the trivia, the dregs in life. My…
By Jodee Redmond from In the Cloud Copy Glioblastomas are tumors that are particularly difficult to treat. They start forming in the glial cells of the brain and spinal cord…
by Danielle Bradshaw from In The Cloud Copy Hereditary angioedema (HAE) is a rare condition in which a person has swelling beneath their skin (which can occur in any part…
By: Natalie Homan from In The Cloud Copy Connie Elson was a happy, independent little girl before she started showing worrying symptoms at the age of four. After many doctor…
By Jodee Redmond from In The Cloud Copy Hannah Witton, a YouTuber with 600,000 subscribers to her sex and relationships channel, got tired of hearing comments that people with disabilities…
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