In the fall of 1991, Kathy gave birth to a beautiful baby boy named Isaac. But Kathy and her husband knew something wasn't right. Isaac was their third child. Born…
They say pictures are worth a thousand words. Scroll through these images for a chuckle. Who doesn't love naps? When thinking about how impossible your diagnosis was... Out and about…
When people hear disease, sickness, or chronic illness, 9/10 times they think of weakness. They sadly only look at what they can see, but neglect the heart. Truth is people…
Living with Common Variable Immunodeficiency Disease CVID is challenging enough, but when you factor in medical expenses... Whoah! Check out these upcoming fundraisers and events for super cool kids living with CVID!…
Common Variable Immunodeficiency Disease CVID is a rare disease, affecting 1 in 25,000 to 1 in 50,000 people worldwide. Finding information about the chronic condition can be challenging, especially because…
If all your office chair does is hurt you, maybe it’s time to break up. Sitting for hours can make anyone’s back ache, but for Ankylosing Spondylitis (A.S.) patients making…
Have you ever wondered what it’s like having Common Variable Immunodeficiency Disease (CVID)? This video explores day-to-day life from the point of view of Keith Finch who was diagnosed with…
Psychiatrist Dr. Jennifer Pate, 47, receives life-saving intravenous immunoglobulin infusions every three weeks. This is not by choice, because without them, her immune system is defenseless against potentially lethal infection. Pate…
On June 7, 2015, thousands of people took to the streets across Canada in the annual Walk to End Arthritis. A leading cause of disability, arthritis costs the Canadian economy $33 billion…
It's easy for 20 some year-olds blessed with perfect bodies to easily apply all the insane and cirque du soleil-esque sex positions Cosmopolitan bombards you with in the grocery line. …
We all turn to YouTube here and there; for a good laugh, an informational mini segment on the newest word added to Urban Dictionary, or a clip from the Saturday…
1. Leonard Trask Trask suffered a terrible horse riding incident in his 20s that led to immobility and deformation of his spine. He committed his life to finding a cure…
It is through art that Rebecca Zook manages the emotional and physical challenges of living with a chronic condition. After 3 years of seeing dozens of medical specialists, the Texas…
Your average American probably thinks of middle-aged adults or the elderly when they hear the word arthritis. The sad thing is you really can't blame them. Take this commercial from…
Ahh the age of machines, yep we're in it. Technology has taken over. A few decades ago, when someone talked about technology, you thought about Orwell's novel 1984, science fiction movies about machines and artificial intelligence…
No, not cinco. "CINCA"! CINCA stands for chronic infantile neurological cutaneous articular syndrome. NOMID stands for Neonatal Onset Multisystem Inflammatory Disease. So is CINCA really the same thing as NOMID?…
Looks like Pfizer wants to buy a Swedish company who provides a treatment for neonatal-onset multisystem inflammatory disease, (NOMID). NOMID belongs to a family of conditions known as Cryopyrin-Associated Periodic…
Meet the Attwood family. Out of the 8 family members present, 4 of them are living with Hereditary Angioedema. The heart of the family is led by a strong women…
Just because Burger King ditched "have it your way" as a slogan doesn't mean you have to! Once diagnosed, living with Common Variable Immunodeficiency (CVID) requires lifetime infusion treatment. The pillar of treatment…
Ankylosing Spondylitis is no joke. It is a serious condition that can cause a lot of pain. You wouldn't guess it from these twitter users who are making light of…
In the famous film adaption of the musical, Cabaret, Sally Bowles and the Master of Ceremonies perform the famous lines "Money Makes the World Go Round." Although its obvious in…
Helping hands can do truly amazing things. Eurodis, the champions of Rare Disease Day, displays that in their 2015 Rare Disease Day theme video. https://www.youtube.com/embed/zQIeiQ7S6tQ Started with a cause…
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