In a recent press release, the National Hemophilia Foundation announced it has started a new campaign called “Start the Conversation” which will initiate conversations around inheritable blood disorders. Bleeding Disorders…
According to a recent article, a man in Bar Harbor has the entire community behind him as he searches for a stem cell donor for himself and others battling cutaneous…
According to a recent article, Trialbee and ERGOMED have partnered to become the platform for patient recruitment for their new Rare Disease Innovation Center. Trialbee Trialbee is the leading platform…
According to a recent article from MedicineNet, scientists are editing the genomes of ticks to help prevent tick-borne diseases such as Lyme disease. Lyme Disease Lyme disease is a vector-borne…
According to a recent article, researchers have found that adding durvalumab to chemotherapy treatments results in prolonged survival rates in patients with advanced biliary tract cancer. Biliary Tract Cancer Biliary…
According to a recent article, a team at the Heart Institute is working on creating a guide to help cardiologists decide what treatment is best for patients diagnosed with anomalous…
According to a recent article, there are a few warning signs of nasopharyngeal cancer that affect the lower half of your face that you might not be aware of. Cancer…
According to a recent article, the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) is now recommending changing the marketing authorization for avapritinib, which is used…
According to a recent article, a new study shows that by increasing your alcohol intake, you may actually be increasing your risk of head and neck cancer. Head and Neck…
According to a recent article, a cyclist who was closely affected by alpha-1 antitrypsin deficiency (A1AD), is biking across Australia with his good friend to raise awareness and money for…
An article recently came out encouraging people who are experiencing a blocked nose to not just dismiss it as a common cold, as it could be nasopharyngeal cancer (NPC). Nasopharyngeal…
According to a recent article, after the results of a clinical trial, researchers have proven that CAR-T cells can cure patients that are diagnosed with leukemia. Leukemia Leukemia is a…
According to a recent article, researchers in Europe have created a fluorescent biosensor to look at the signaling molecule orexin in mice brains to help understand narcolepsy. Narcolepsy Narcolepsy and…
According to a recent article, a pilot study shows that around 30% of patients with wet age-related macular degeneration might have the ability to stop their eye injection therapy…
According to a recent article, Dr. Jyoti K. Jaiswal shared his research pertaining to gene therapies to be used to treat limb-girdle muscular dystrophy 2B (LGMD2B). Limb-Girdle Muscular Dystrophy (LGMD)…
According to a recent article, trametinib has proven to be successful in treating a rare ovarian cancer subtype, which is a major advancement in treating those with this rare ovarian…
According to a recent article, researchers have conducted a pilot human trial to test out a falloposcope which captures images of the fallopian tubes in patients, which will hopefully enable…
According to a recent article, a study in Estonia looked at the prevalence and characteristics of spinal muscular atrophy (SMA) over the last 24 years to aid in implementing SMA…
Betty Vertin recently wrote an article discussing her experience as a parent of a child with Duchenne muscular dystrophy. She shares the lessons she has learned in order to…
According to a recent article, a woman dealing with chronic fatigue and multiple UTI’s was not diagnosed with ovarian cancer until she was rushed into the hospital after collapsing. Ovarian…
According to a recent article, a research team discovered that the inhibition of sphingolipid synthesis on mice models of Duchenne muscular dystrophy can counteract the certain symptoms of the disease.…
According to a recent article, Revolo Biotherapeutics announced it has obtained approval from the Medicines and Healthcare products Regulatory Agency (MHRA) for two Phase 2 clinical trials to analyze its…
According to a recent article, a study shows that patients with epithelial ovarian cancer do present with at least one symptom the majority (72%) of the time. Ovarian Cancer Ovarian…
According to a recent article, the European Commission (EC) has approved Merck’s KEYTRUDA as an adjuvant treatment for type renal cell carcinoma (RCC), a type of kidney cancer. Renal Cell…
According to a recent article, patients with recurring kidney cancer who would most likely need to get their kidney removed can now possibly keep their organ thanks to a new…
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