Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

    Donate Blood in the Name of Bleeding Disorders Awareness Month
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    Donate Blood in the Name of Bleeding Disorders Awareness Month

    Let's talk blood donation. I recently spoke with a man from a small African country who suffers from hemophilia. He told me that when he was growing up, there was no…

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    Neuromyelitis Optica (NMO) Doesn’t Fool Around! Get Diagnosed, Get Treated!

    Devic's disease, also known as neuromyelitis optica (NMO), affects the spinal cord and the optic nerves. It is a relapsing-remitting disease, meaning its symptoms can appear and disappear. In NMO,…

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    Could Modern Medicine Have Saved Beethoven’s Life? We’ll Never Know.
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    Could Modern Medicine Have Saved Beethoven’s Life? We’ll Never Know.

    Does the name Ludwig van Beethoven ring a bell? It should. He was one of the greatest composers the world has ever seen. He also suffered from cirrhosis of the liver, infectious…

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    Primary Sclerosing Cholangitis Can Do a Number on Your Liver
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    Primary Sclerosing Cholangitis Can Do a Number on Your Liver

    Primary sclerosing cholangitis, or PSC, is a chronic progressive disease that damages the bile ducts. And, if you didn't know, bile is a liquid that assists the body in the…

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    When MG Strikes…  Learn More at the March Conference!
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    When MG Strikes… Learn More at the March Conference!

    Myasthenia gravis is a chronic neurological autoimmune disorder that causes weakening of the voluntary muscles in the body. The most frequently affected muscles control eyelid movement, swallowing, and facial expression. In the…

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