Though "Ernest" is a family name that's been passed down for generations, James truly earned his middle moniker when, at the age of five, he told his mother that "laughing is stupid unless EVERYBODY is happy." Since then, the serious little bastard has been on a mission to highlight the world's shortcomings (and hopefully correct them). In addition to his volunteer work at hospitals and animal shelters, James also enjoys documentaries and the work of William Faulkner. He is originally from Oklahoma.
Crista Procopio is a self-described type A personality. "I never, ever let anything stop me from getting involved and succeeding," she says. "When I set a goal, I always reach…
"I AM FEELING LIKE I MAY NOT EVER MAKE A DIFFERENCE." Through the power of the Internet (blogs, videos, message boards, or what have you) those living with rare diseases have the…
Postural Tachycardia Syndrome (POTS) prevents the body from maintaining blood pressure and blood flow to the brain and other major organs when a person stands. Here's what you need…
When all else fails and you long to be Something better than you are today I know a place where you can get away It's called a dance floor, and…
Hey guys... I have a confession to make: I hate dancing. HATE. IT. I hate it because I'm bad at it, and I don't like doing things I'm bad at, especially…
"Sticks and stones may break my bones But words will never hurt me" Despite the fact that most of us grew up reciting this old adage, by the time we're adults…
Depending on the intricacies of our personal health challenges, some of us may be motivated to take actions that others would find unreasonable. For example, I once met a man…
Michael Needham is a Vietnam veteran who served in the Navy before being discharged as a result of his ankylosing spondylitis (AS). In order to live with the pain of his…
Todd Hart's name should really be Badass McGee. A triathlete, Hart completed the 2009 Boilermaker 15k in 58:22. (The race's site bills it as "the most competitive 15k road race…
Andy Long's mom was sick all her life. She passed away in 1969 at the age of 24. Andy, just 5 years old, was sent to live with his paternal…
Whether you think so or not, you have the strength to live well with Myasthenia Gravis (MG). But for your times of doubt and frustration, it can be helpful to have…
"As far back as I can remember, i was told pain was normal, or in my head, and to keep going" Welcome to the life of Dawn Michelle Shepley...and,…
It could be a story out of a spy novel: While coded messages are being passed, an outsider attempts to infiltrate and disrupt communication. Part of the mission involves smuggling important equipment…
Meet one of the latest Immune Deficiency Foundation (IDF) Teen Council members, Baylee Gregory! Baylee was diagnosed with Combined Variable Immune Deficiency (CVID). Though any diagnosis is difficult, Baylee is…
What if you lived with chronic pain every day of your life--and not just little "ouchie" pains, but real 8 on a scale of 1 to 10 kind of pain? Kirah DeCarlo…
For 90-95% of people living with sarcoidosis, the disease affects their lungs. As granulomas grow throughout the organs, they may experience coughing, chest pain, shortness of breath, and sometimes even…
You know what they say about a guy with big feet... ...he's also got a BIG dictionary, ya know, since he's probably had to research acromegaly. Okay, maybe they don't say…
It's no secret that people are more dependent on technology than ever. We've got computers in our cars, TVs on our phones, and WiFi on our airplanes. It shouldn't be…
How much do you think the average five-year-old girl weighs? According to kidshealth.org, the answer is about 45 pounds. Now, how much do you think a wheelchair for that same…
Monday, November 2, was Color the World Orange Day, an initiative to help bring awareness to Complex Regional Pain Syndrome, also referred to as Reflex Sympathetic Dystrophy Syndrome (RDS). Color the World…
Recently, the FDA gave "breakthrough therapy" status to a potential new drug that may help prevent HAE attacks. But how does that affect you, the patient? What does "breakthrough therapy" really mean?…
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