Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
In terms of the diagnostic process, there are many inequities within the healthcare field: between ethnicities, races, sexes, and more. For example, Healio shares that, despite similar prevalences between sexes,…
In medical research, researchers often use a variety of non-human models to expand their understanding of various diseases or potential treatments. For example, mice models, or non-human primates, are frequently…
Art and music reflect the way that we feel and the experiences we go through. For singer-songwriter Rodney Crowell, his music reflects immersive topics like love, repentance, and health. In…
Cait Devin has always been entranced with music. This vocalist and guitarist, now 20 years old, released her first album in 2020, and is currently working on new music.…
Homologous Recombination (HR) gene mutations play a role in genomic stability and plasticity, and sometimes work to repair cellular DNA damage. These mutations cause genetic information to be shared between…
Have you ever heard of a “chaperone” protein? Well, the term pretty much refers to proteins which help direct the way that proteins fold, or a protein which leads “quality…
For patients with biliary atresia, there are limited treatment options available. Currently, the rare liver and bile duct condition may progress to end-stage liver fibrosis and cannot be prevented or…
By the time glaucoma, a group of conditions characterized by progressive optic nerve damage, manifests in symptoms, it is often too late to restore or recover lost vision. By 2040,…
According to an August 17, 2021 news release from pharmaceutical company Marinus Pharmaceuticals, Inc. (“Marinus”), data is available from a Phase 2 clinical trial evaluating oral ganaxolone for patients…
In mid-August 2021, biotechnology and pharmaceutical development company Biosight Ltd. shared that it had begun a Phase 2 clinical trial regarding one of its proprietary treatments - and that the…
When it comes to the diagnostic process, many refer to their journey as a "diagnostic odyssey." For those with rare or underserved conditions, diagnosis often requires months - or even…
On June 24, 2020, Savanna Wrobel was born. She came a little early as a premature baby: 35 weeks and 3 days. But that didn't stop her parents, Wade and…
It’s no secret that cannabis and its components are highly controversial. However, cannabis has been used to treat a variety of conditions, including seizures. According to Candid Chronicle, another related…
Genetic mutations are associated with a wide range of disorders or medical conditions. According to ALS News Today, researchers sought to understand the underlying genetics associated with sporadic amyotrophic lateral…
Over the last few decades, there have been discussions regarding health issues associated with smoking cigarettes - or even exposure to secondhand smoke. For example, cigarette smoking is associated with…
In the Phase 2 LOTIS-2 clinical trial, researchers evaluated the safety, efficacy, and tolerability of Loncastuximab tesirine for patients with aggressive diffuse large B-cell lymphoma (DLBCL). While there are treatment…
How does disease stage affect treatments and patient outcomes? In terms of adrenocortical carcinoma (ACC) in pediatric patients, disease stage significantly impacts patient outcomes. According to Cancer Therapy Advisor, the…
If you’re anything like me, you enjoy a nice cup of tea in the morning - and maybe the afternoon. Okay, you’ve got me, probably at night as well. In…
According to a news release from pharmaceutical company Citryll, the first healthy volunteer was dosed with CIT-013 in a Phase 1 clinical trial. Altogether, the drug is being developed to…
In the Phase 3 PANTHER clinical trial, also known as the Pevonedistat-3001 study, researchers were evaluating pevonedistat in conjunction with azacitidine for patients with acute myeloid leukemia (AML), myelodysplastic syndromes…
782 words (source) vs. 472 words (mine) - 1% match Some rare diseases or rare cancers are exceedingly difficult to treat. For example, for patients with early-stage cutaneous T-cell lymphoma…
327 words (source) vs. 385 words (mine) - 6% match Looking into the future, new forms of medical technology offer the opportunity to improve patient outcomes like never before. For…
What’s a great way to spark an understanding of diversity and the complex and beautiful differences between different people? A children’s book! Children’s books are often designed to both tell…
On July 18, 2021, the World Health Organization (WHO) first reported two cases of yellow fever within the Democratic Republic of the Congo (DRC), shares Outbreak News Today. This rare…
For Bryson Ackermann of Pittsburgh, PA, baseball has always been his passion. Now 9 years old, Bryson was kept from his team for the last few years. According to KDKA…
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