Man With Soft Tissue Sarcoma is Refusing to Let His Diagnosis Spoil His Recent Marriage
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Man With Soft Tissue Sarcoma is Refusing to Let His Diagnosis Spoil His Recent Marriage

According to a story from the Peterborough Telegraph, James Willis received a disaster diagnosis on his first Valentine's Day after getting married at age 29. James had been worried about…

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Australian Boy With Spinal Muscular Atrophy is Now Able to Get Critical Treatment
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Australian Boy With Spinal Muscular Atrophy is Now Able to Get Critical Treatment

According to a story from the Sydney Morning Herald, two-year-old William McLennan, son of Naomi Taylor and Ben McLennan, was diagnosed with spinal muscular atrophy about a year ago. The…

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New Collaboration Will Test Experimental Clinical Trial Designs for Stargardt Disease Drugs
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New Collaboration Will Test Experimental Clinical Trial Designs for Stargardt Disease Drugs

According to a story from pharmavoice.com, a new partnership between the biotechnology company Vitrisa Therapeutics and the Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) is in the works in order…

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Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy
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Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy

According to a story from edinburghnews.com, mother Karen Gray is about to seek access to cannabidiol oil for her five-year-old son, Murray, who has a rare type of epilepsy, Myoclonic Astatic…

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The Merrill Family Faces the Challenges of Sanfilippo Syndrome Every Day. Now They Are Fundraising to Help Others
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The Merrill Family Faces the Challenges of Sanfilippo Syndrome Every Day. Now They Are Fundraising to Help Others

According to a story from tapinto.net, the Merrill family was crushed upon learning that their five-year-old daughter Leila was born with Sanfilippo syndrome, a lysosomal storage disease that ultimately causes…

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Study Suggests That Kidney Disease Researchers Aren’t Considering Patient-Focused Outcomes
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Study Suggests That Kidney Disease Researchers Aren’t Considering Patient-Focused Outcomes

According to a story from PR Newswire, a recent study indicated that researchers that were focused on kidney illnesses such as chronic kidney disease, congenital nephrotic syndrome, and glomerulonephritis have not been…

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ICYMI: New Investigational Treatment Could be a Step Forward Against Graft-versus-Host Disease
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ICYMI: New Investigational Treatment Could be a Step Forward Against Graft-versus-Host Disease

According to a story from Financial Buzz, the pharmaceutical company Elsayls Biotech is planning to submit a proposal to the European Medicines Agency (EMA) in order to conduct a clinical…

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A Groundbreaking Marijuana-Derived Treatment is Getting Closer to FDA Approval for Treating Rare Forms of Epilepsy
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A Groundbreaking Marijuana-Derived Treatment is Getting Closer to FDA Approval for Treating Rare Forms of Epilepsy

According to a story from statnews.com, a drug derived from substances originating in the cannabis plant may be nearing approval by the U.S. Food and Drug Administration. The drug is…

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