Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
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ANCA-associated vasculitis (AAV) generally targets two enzymes, myeloperoxidase (MPO) or proteinase 3 (PR3) located in the granules of monocytes and neutrophils. These enzymes play a critical role in the…
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Two Recent FDA and EMA Approvals Bring Hope to ANCA Associated-Vasculitis Patients
Catherine Nettles Cutter, a professor at Penn State University, vividly recalls two years of her life spent trying to recover from a bodysurfing accident that resulted in the mysterious loss…
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A Body Surfing Accident Led to Eagle Syndrome and Rotational Vertebral Artery Syndrome
One 66-year-old patient who lives in Poughkeepsie, N.Y. received the same diagnosis from three doctors. Each doctor suggested that his symptoms pointed to temporomandibular (TMJ) joint pain. The patient and…
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The Doctors Said TMJ, But the Patient Said Giant Cell Arteritis
After two years of in vitro fertilization treatments, Amber Freed, Age 38, and her husband Mark Freed of Denver, Colorado welcomed their twin babies Riley and Maxwell into the world.…
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A Mother Has Raised Millions to Develop a New Drug to Treat SLC6A1
Victoria Gray’s recent interview with NPR confirmed that her genetically modified blood cells have truly transformed her life. Victoria volunteered in the first-ever attempt in the U.S. to use CRISPR,…
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ICYMI: The First Patient to Receive CRISPR for Sickle Cell Disease
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Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: Compassionate Use, Expanded Access Part One: The Terminology Is Different But the Unmet Need Is the Same
After several clinical setbacks, Vertex Pharmaceuticals found promising results in its study of a drug to treat a genetic kidney disease called focal segmental glomerulosclerosis (FSGS). As reported recently by…
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A New Drug to Treat Focal Segmental Glomerulosclerosis and Renewed Hope for Vertex Pharmaceuticals
A recent article published in Vascular News highlights the importance of plasma desmosine, an elastin component, that provides elasticity for tissue. A breakdown of elastin leads to aortic dilatation and…
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British Heart Foundation Study Identifies Acute Aortic Syndromes
Healio recently published results of the CheckMate 649 study confirming the benefits of combining nivolumab and chemotherapy in treating newly diagnosed patients with gastroesophageal junction cancer and advanced gastric and…
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A Clinical Trial Confirms That Nivolumab Plus Chemotherapy Outperforms Immunotherapy Alone In Gastric Cancer Treatment
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For many years, scientists have known about toxic clumps forming in patients with Huntington’s disease (HD). However, until recently, scientists relied on examining post mortem brain samples of HD…
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Scientists Take a New Look at Huntington’s Disease
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According to Dr. Deepak Chellapandian, a Johns Hopkins specialist in bone marrow transplant for rare diseases, the prognosis for his patient was very poor. Jocelyn was born with chronic…
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Chronic Granulomatous Disease: A Stem Cell Transplant Approach to Speed up the Wait List
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Washington University Researchers readily acknowledge the attributes of sonodynamic therapy (SDT) as a promising therapeutic method to treat hepatocellular carcinoma (HCC). SDT is noninvasive with high tissue penetration, but…
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CRISPR/Cas9 Gene Editing Adds Ultrasound Therapy for Hepatocellular Carcinoma to its List of Possibilities
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Dr. Richard Stone recently interviewed with Targeted Oncology to discuss challenging acute myeloid leukemia subtypes and a list of available therapies. Dr. Stone was asked to look back at…
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Dr. Richard Stone Discusses Development of Eight Drugs for Acute Myeloid Leukemia Within Four Years
Pancreatic cancer so far has been able to escape early detection. When it is discovered, it is usually in an advanced stage and difficult to treat. According to a…
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Researchers are Closing in on Pancreatic Cancer, the Third Leading Cause of U.S. Cancer Deaths
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Discovering a treatment for a rare disease is challenging and rewarding, especially when it is an extremely rare disease such as perivascular epithelioid cell tumor (PEComa). Biospace recently carried…
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The FDA Approves a Therapy to Treat Ultra-Rare PEComa
Although most people are familiar with the term ‘hepatitis,’ many are not aware that it is an autoimmune disease. A recent article in Life Sciences describes autoimmune hepatitis as a…
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A New Test to Diagnose Autoimmune Hepatitis
Eureka Alert recently published a statement by a team of researchers that early results of a new method of treating Alzheimer’s have been “absolutely spectacular.” The new antibody-based therapy…
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Alzheimer’s: German and UK Scientists Successfully Reduced Alzheimer’s Symptoms in Laboratory Animals
The Tokyo University of Science recently published a report stating that its team of scientists was successful in developing a polymer-based-hydrogel, a welcomed improvement to the complicated formulations currently in…
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Tokyo University Researchers Develop a Hydrogel to Prevent Complications in Post Operative Pancreatic Surgery
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Geraldine is Senior Vice President of TheGrio’s, known as Black America’s News. Although she never met Virgil Abloh, she followed his career and knew of his many talents. Geraldine says…
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When A Survivor’s Compassion Turns to Guilt
A recent article in the Northern Kentucky Tribune highlights a rare condition that has been exposed by new technology. Cardiologists have found that many patients diagnosed with heart failure are…
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Some Heart Failure Patients May Have an Underlying Condition Called Cardiac Amyloidosis
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Studies show that there is a relationship between illness or death (morbidity or mortality), scleroderma renal crisis (SRC), and a person’s race. A study using data from the U.S. Military…
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A Study Finds Scleroderma Renal Crisis is More Common Among Black People
Dr. Yi Xiao, oncology instructor at MD Anderson Cancer Center, and his associates discovered a unique role for antihistamines while searching for factors that may influence responses to immunotherapy. As…
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MD Anderson Researchers Discovered Antihistamines Improve Responses to Immunotherapy
Targeted Oncology recently published a report citing a promising class of drugs to treat recurrent platinum-resistant ovarian cancer (PROC), often associated with a poor prognosis. PROC eventually occurs to a…
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Antibody Drug Conjugates Are Being Investigated for the Treatment of Platinum-Resistant Ovarian Cancer
At first, Dr. Rebecca Elon began to notice her husband’s personality changes and an occasional lapse in judgment. These incidents occurred in 2013. Although Dr. Elon’s husband, William Adler III…
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A Geriatrician Gets Frontline Experience as a Caregiver
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Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: Healthcare Workers Made Daily Visits to Cheer Lonely Patients, But Lawyers Questioned the Legality