Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

    Doctors Report First Ever Successful Transplant of Reprogrammed Cells into the Brain of a Parkinson’s Patient

    A recent article in US News and World Report gives an account of the first patient to have reprogrammed cells successfully implanted in his brain. The patient’s doctors reported that…

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    Research Links Metabolic Syndrome in Parkinson’s Patients Who Have LRRK2 Mutations
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    Research Links Metabolic Syndrome in Parkinson’s Patients Who Have LRRK2 Mutations

      A recent article in Parkinson’s News Today described new findings associated with mutations in the LRRK2 gene, which are associated with Parkinson’s disease (PD). Indications are that patients with…

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    Could Biobots be the Key to Understanding ALS and other Neuromuscular Diseases?
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    Could Biobots be the Key to Understanding ALS and other Neuromuscular Diseases?

      Biological robots, commonly known as biobots, mimic the actions of other organisms (e.g. jumping or swimming). Biobots are composed of artificial materials and also organic material. As published in…

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    UCSF Scientists Use Genes as an On/Off Switch to Fight Autoimmune Diseases and Cancer
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    UCSF Scientists Use Genes as an On/Off Switch to Fight Autoimmune Diseases and Cancer

      Immunotherapies are in the forefront for treating autoimmune diseases and cancer. Northwestern University and the University of California San Francisco conducted a study using genes that have the potential…

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    New International Working Group Answers COVID-19 Questions from Myasthenia Gravis Patients
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    New International Working Group Answers COVID-19 Questions from Myasthenia Gravis Patients

      New information, speculation, statistics, and predictions about COVID-19 are hitting the internet every day. Yet neurologists are attempting to answer their patients’ questions without having sufficient data that would…

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    COVID-19 Patients Were Removed From Ventilators Within Ten Days After Two Infusions of Ryoncil
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    COVID-19 Patients Were Removed From Ventilators Within Ten Days After Two Infusions of Ryoncil

      A recent article in Biospace reported an 83% survival rate for COVID-19 patients after two infusions of the experimental drug Ryoncil, developed by Mesoblast Ltd. The patients who were…

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    One Hundred Vaccines Against COVID-19 Are In Early Stages of Development, But Only a Few Will Survive
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    One Hundred Vaccines Against COVID-19 Are In Early Stages of Development, But Only a Few Will Survive

    A total of one hundred vaccines are being developed by researchers, drug manufacturers, and governments worldwide in an effort to stem the tide of the COVID-19 virus. Reuters Newswire reports…

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    Researchers Add a Third Risk Factor To Alzheimer’s Disease That Affects the Blood Brain Barrier

    It is acknowledged in the medical community that clumps of misfolded tau proteins and amyloid-β are markers of Alzheimer’s disease. The evidence presented in recent article in Nature, shows that…

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    New Task Force Recommends Shared Decision-Making for Parents and Patients with Juvenile Idiopathic Arthritis
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    New Task Force Recommends Shared Decision-Making for Parents and Patients with Juvenile Idiopathic Arthritis

      According to a recent article in BioMed Central, an international task force formed in 2018 created guidelines for the treatment of juvenile idiopathic arthritis (JIA). Treatment targets were identified…

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    ICYMI: First Drug to be Approved for Neurofibromatosis Type 1 and Plexiform Neurofibromas (NF1-PN)
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    ICYMI: First Drug to be Approved for Neurofibromatosis Type 1 and Plexiform Neurofibromas (NF1-PN)

      According to a recent announcement by AstraZeneca, the U.S. FDA granted its approval for Koselugo (selumetinib). This is the first drug to be approved for the treatment of children…

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    Metabolic Syndrome, Cause of Heart Disease and Diabetes, Linked To LRRK2 Mutations

    Certain features of metabolic syndrome may be more prevalent in people with Parkinson’s disease-associated mutations in the gene LRRK2, new research suggests. The research abstract “Metabolic syndrome and genetic Parkinson’s disease, the case…

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