Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
According to a recent article featured in News5Cleveland.com, there are over seven thousand rare diseases worldwide that affect over thirty million people in the United States. Several days ago, patients…
Continue Reading
Two Sisters With Rare Diseases Are Working Towards Recovery With the Help of Their Family
When a patient is told that they have a life-threatening rare disease and then told that there is no cure, every effort is made to attend to their physical needs.…
Continue Reading
The Need to Research Mental Health Issues for Rare Disease Patients and Families is Evident
source: pixabay.com
The Orange County Guide features doctors’ articles in each issue. Dr. Justin West’s search to cure his son’s rare disease will be familiar to families also in search of…
Continue Reading
Seeking a Cure for a Rare Form of Childhood Epilepsy
Crispr is no longer a buzzword. According to a recent article in The Guardian, it has become the ‘molecular scissors’ that will enable scientists to rewrite our genes or as often said,…
Continue Reading
CRISPR-Cas9 Has Achieved Worldwide Acceptance
During a recent WZDX News interview with Dr. David Bick, HudsonAlpha Faculty Investigator Dr. Bick stated that in Alabama alone, there are approximately four hundred thousand people with rare diseases.…
Continue Reading
Whole Genome Sequencing Can Search 20,000 Genes to Find Rare Diseases
source: pixabay.com
Billions of dollars have been spent in research over decades, resulting in only two therapies that treat symptoms of Alzheimer’s disease (AD). There are no approved methods that diminish the…
Continue Reading
A First: Human Clinical Trial Assessing Gene Therapy for Alzheimer’s Disease
source: pixabay.com
Research by scientists at Cornell University and Weill Cornell centered around the endothelial cells that form a barrier between tissues and vessels. They control the flow of fluid and substances…
Continue Reading
A New Study Casts Doubt on Lab Models of the Blood Brain Barrier
source: pixabay.com
Policymakers Must Offer Solutions That Provide Patients with Lower Out-of-Pocket Costs For Critical Medicine In addition to coping with chronic illness, many patients are faced with the challenge of…
Continue Reading
A Call To Policymakers For Lower Out-of-Pocket Costs
source: pixabay.com
Dr. Oliver Dorigo of the Stanford University Medical Center was the medical source for an article featured in Oncology. Dr. Dorigo explained that if a woman with ovarian cancer has…
Continue Reading
The FDA Has Approved Niraparib (Zejula) for Platinum-Sensitive Recurrent Ovarian Cancer
source: pixabay.com
Scientists are researching Alzheimer’s disease (AD) from all angles and gradually closing in on the cause of the disease. According to an article in Neuroscience News, a discovery by researchers…
Continue Reading
Each New Discovery Brings Scientists Closer to Finding the Cause of Alzheimer’s Disease
source: pixabay.com
Hundreds of mutations have been connected to autism spectrum disorder (ASD), and a new study finds further evidence that suggests a possible cause of this spectrum of conditions Neuroscience News…
Continue Reading
New Study: Mitochondria Defects in Brain Cells Might Cause Autism Spectrum Disorder
The COVID pandemic affecting eighty-million children in the nation has been a burden on many families. A number that deserves attention is the seven million students who have learning disabilities.…
Continue Reading
Special Needs Students Deserve Quality Online Education
source: pixabay.com
Improving cognition and identifying abnormal molecular pathways in Alzheimer’s disease has been challenging. Current studies of Alzheimer’s disease have focused on reducing such occurrences as amyloid plaque, neuroinflammation, and neurofibrillary…
Continue Reading
Neuroscientists Are Focusing on Synthetic Pharmaceuticals to Restore Cognitive Function in Alzheimer’s Disease
The NZ Herald recently published details about the experience of seven-year-old Logan Walsh of Leeds, England. His mother was told to take Logan home after he had been diagnosed with…
Continue Reading
The Truth About COVID’s Threat to Children After Recovery
Tara Johnston, a resident of London, England is now twenty years old but still coping with severe acne. Tara interviewed with MyLondon in an effort to raise awareness and share…
Continue Reading
Acceptance by Peers Can Be Difficult With Cystic Acne
Dr. Andrew Brunner, an oncologist at Massachusetts Cancer Center was recently interviewed by Targeted Oncology. The discussion centered around a phase 1b clinical trial (NCT03066648) investigating sabatolimab together with hypomethylating…
Continue Reading
Sabatolimab Can Be Added Safely to Hypomethylating Agents in the Treatment of MDS and AML
source: pixabay.com
Toxoplasmosis is transmitted by Toxoplasma gondii, the protozoan parasite which is known to be among the most common parasites worldwide. The infection occurs from contaminated meat, cat feces that…
Continue Reading
A Common Parasite With An Uncommon Name: Toxoplasma gondii is Associated with Brain Cancer
A team of German Scientists is offering hope for people who have sports, traffic, or war-related injuries of the spinal cord. According to a recent article in Neuroscience News, these…
Continue Reading
Paralyzed Mice Can Walk Again Thanks to a Novel Designer Drug
Parkinson’s News Today recently featured an upbeat article describing the progress that researchers have made in developing a method of measuring alpha-synuclein’s (AS) progression that cuts discovery time in…
Continue Reading
New Parkinson’s Test Gets Results in Half the Time With Improved Accuracy
source: pixabay.com
There are many common elements in Alzheimer’s disease (AD), which is the most common type of dementia. It is now evident that there are varied spans of disease progression…
Continue Reading
Discovery of Three Molecular Subtypes Brings Us Closer to Unraveling Alzheimer’s Disease
Although advances in lung cancer care were overshadowed this year by news about the pandemic, Dr. Jennifer Carlisle’s recent interview with Oncology gave details of spectacular advances in lung cancer…
Continue Reading
2020 Brought Exciting Advances in Lung Cancer Care
Sorafenib, a tyrosine kinase inhibitor, has been unbeatable for treating cancer of the liver for the past thirteen years. An article by the Cleveland Clinic stated that during that time,…
Continue Reading
A Giant Step Forward in Treating Hepatocellular Carcinoma
Over the past decade, scientists have made many life-saving advances in all areas of medicine. They have created molecular agents to target neurodegenerative diseases. But they were stopped right there…
Continue Reading
A New Method of Delivering Drugs Through the Blood-Brain Barrier To Treat Neurological Disorders
source: pixabay.com
Researchers at Johns Hopkins School of Medicine noted that osteonecrosis (ON) is one of the more serious complications of systemic lupus erythematosus (SLE). According to a recent article in…
Continue Reading
Increased Risk of Osteonecrosis in Lupus May be Caused by Prednisone
The medical community has been aware for some time now that patient involvement in his or her treatment is a critical part of therapeutic development. Biopharmaceutical companies acknowledge their obligation…
Continue Reading
The FDA and Biopharmaceutical Companies Are Encouraging Patient Involvement